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Social Security hearing date wait time for disabled adult child (DAC) claim - how to prepare my anxious daughter

Our family is navigating the SSDI appeals process for my 22-year-old daughter who has a rare chromosomal deletion that affects her intellectual and mental functioning. We just secured an attorney after the reconsideration denial, and now we're waiting for the ALJ hearing. Two questions I'm really struggling with: 1) How long do these hearing wait times typically take? Our attorney mentioned 6-9 months but wasn't certain. Anyone gone through this recently? 2) My daughter currently receives benefits on her disabled father's record, but I've been told she needs to qualify for SSDI on her own to be eligible for Disabled Adult Child (DAC) benefits. Is pursuing DAC benefits part of this same hearing process, or is that completely separate? My biggest worry is the hearing itself. My daughter gets extremely anxious around strangers, especially men, and can completely shut down during stressful conversations. She'll either not respond at all or just say whatever she thinks they want to hear. How much will she need to speak directly to the judge? Should we request a female judge if possible? Any tips for preparing someone with intellectual disabilities for this kind of hearing? The SSA already denied her at reconsideration saying they "don't have enough evidence" of disability, which is frustrating because her chromosomal deletion is documented and causes progressive issues. It feels like they're ignoring her actual condition.

Joshua Wood

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I went through this with my son last year. The wait time for an ALJ hearing was about 7 months from when we requested it, but this varies by location. Some hearing offices have longer backlogs than others. Regarding the DAC benefits - if your daughter qualifies for SSDI on her own record AND can prove her disability began before age 22, then yes, she can receive DAC benefits on her father's record instead of her own (which is usually higher). This will all be part of the same disability determination process. For the hearing itself, your attorney should handle most of the talking. The judge will likely ask your daughter some basic questions about her daily activities and limitations, but nothing too complex. Be honest with the attorney about her communication issues so they can request appropriate accommodations. Some judges are very understanding of these situations and will direct most questions to you or the attorney. Make sure your attorney has ALL medical documentation of her chromosomal deletion and how it impacts her functioning. The key is demonstrating how her condition limits her ability to work.

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Madison Allen

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Thank you so much for this information. 7 months feels like forever, but at least that gives us a timeframe. I'm relieved to hear that the DAC benefits are part of the same process. Our attorney mentioned something about this but didn't really explain it clearly. Did your son have to talk much during the hearing? My daughter can answer simple questions about her daily routine, but she gets overwhelmed easily and then either freezes or just agrees with whatever is being said. I'm worried the judge might think she's more capable than she actually is if she has a "good day" during the hearing.

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Justin Evans

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my cousin got denied twice for her autism then got approved at the hearing. took like 9 months to get the hearing date tho. the waiting is the worst part honestly

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Madison Allen

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9 months is such a long time to wait! Was your cousin an adult when going through this process? Did they have to testify much at their hearing?

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Emily Parker

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The ALJ hearing wait times are RIDICULOUS right now!! My daughter's took 11 months to schedule after we requested it. The whole system is broken and they deny almost EVERYONE the first two times. It's like SSA policy to make disabled people jump through hoops. Your attorney should be handling most of the communication. My daughter has severe anxiety too and we told the judge at the beginning that she has difficulty communicating. The judge was actually pretty understanding and directed most questions to me and the attorney. Bring LOTS of documentation to the hearing - especially anything showing how her condition impacts daily functioning. SSA cares more about functional limitations than diagnoses. And yes, DAC benefits should be part of this same case IF she qualifies for disability on her own record first. Good luck - it's a frustrating process but worth fighting!

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Ezra Collins

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You're right that many claims are initially denied, but it's not actually SSA policy to deny everyone. The approval rates at the initial application are about 22% for SSDI. The system is backlogged due to staffing shortages and increasing applications. One important note about DAC benefits - they actually don't require the adult child to qualify for SSDI on their own record first. DAC benefits require proving: 1) disability before age 22, 2) unmarried status, and 3) parent who is retired, disabled, or deceased with sufficient work credits. Since the parent is already disabled and receiving SSDI, this path may be easier than qualifying on her own record.

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Just wanted to say I feel for you and your daughter. The waiting and uncertainty is so stressful. My nephew has Down syndrome and went through this whole process last year. Hang in there!

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Madison Allen

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Thank you for the kind words. It helps knowing we're not alone in this journey. How is your nephew doing now?

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If you're having trouble getting through to SSA to check on your hearing status or ask questions, I found a service called Claimyr that helped me skip the hold times. I was constantly getting disconnected after waiting for hours, which was making my anxiety worse. I used their service at claimyr.com and got through to a real person at SSA in about 10 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Regarding the hearing, my son has autism and the judge mostly asked him simple questions about his daily routine and what he struggles with. The vocational expert and medical expert did most of the talking. Our hearing was by video conference which actually helped my son feel less anxious than having to go to a formal courtroom setting.

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Madison Allen

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I'll check out that service - we've had the same frustrating experience trying to call SSA. It's impossible to get through to anyone! A video conference hearing might be better for my daughter too. Did you specifically request that or was it just what they offered?

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Zara Perez

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my daughter has a genetic disorder too and we had our hearing last month after waiting 8 months. she got approved! the judge was super nice and understood that she couldn't answer complicated questions. mostly asked about what she does all day and what she finds difficult. our lawyer told her she could say 'i don't know' if she didn't understand something. maybe practice some basic questions with your daughter so she feels more prepared?

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Madison Allen

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Congratulations on your daughter's approval! That's wonderful news. Practicing basic questions is a great idea - we'll definitely do that. Did you specifically ask for any accommodations for the hearing?

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Joshua Wood

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Regarding preparing your daughter for the hearing: 1. Request accommodations in advance - your attorney should file this request 2. Practice simple questions about daily activities but don't over-rehearse (judges can tell) 3. If possible, show the judge documentation of her communication difficulties from a psychologist or doctor 4. Consider requesting a video hearing if in-person would be too stressful 5. You can request a female judge, though this may further delay your hearing date Remember that the judge will likely have a medical expert and vocational expert present who will do much of the technical testimony. Your daughter will primarily need to answer questions about her daily life and limitations. One important tip: make sure your attorney emphasizes that your daughter's presentation on her 'best day' is not representative of her typical functioning. People with intellectual disabilities often mask their difficulties in formal settings through learned coping mechanisms.

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Emily Parker

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THIS!! My son does the same thing - puts on his 'best behavior' for doctors and then they don't see his real struggles. It's so frustrating because then they write in their reports that he seems 'fine' when that's NOTHING like how he functions day to day. Make sure your attorney understands this masking behavior!!

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Ezra Collins

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The national average wait time for an ALJ hearing is currently around 8-10 months, though some offices are faster and others significantly slower. You can check the average processing time for your specific hearing office on SSA's website. Regarding the DAC benefits: This is actually a common misunderstanding. If your daughter meets the criteria for disability under SSA rules, and her disability began before age 22, she may be eligible for DAC benefits on her father's record regardless of whether she qualifies for SSDI on her own record (which would require sufficient work credits). Since her father is already receiving SSDI, she could potentially receive up to 50% of his Primary Insurance Amount as a DAC benefit. For the hearing preparation, your attorney should request specific accommodations based on your daughter's condition. The judge is required to make reasonable accommodations under the Americans with Disabilities Act. This might include: 1. Having you present to help explain or rephrase questions 2. Allowing written responses if verbal communication is difficult 3. Scheduling breaks during the hearing if needed 4. Using simple, direct language and questions Make sure all medical records clearly document her communication difficulties so these accommodation requests are supported by evidence.

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Madison Allen

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This is incredibly helpful, thank you! I didn't realize we could request specific accommodations like having me help explain questions. And thank you for clarifying about the DAC benefits - our attorney hasn't been great at explaining this part. Do you know if we need to specifically request DAC benefits or is this something that would automatically be considered once her disability is established?

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