SSI household expenses confusion - real estate tax and home insurance not counted for disabled child?
I'm confused about what counts as household expenses for my grandson's SSI application. I'm his legal guardian and we're applying for SSI benefits due to his disability. During our interview last week, the SSA rep only asked about my mortgage payment (which is only $430/month) but didn't want any information about my property taxes ($3,200/year) or homeowners insurance ($1,450/year). I specifically asked if these should be included since they're separate from my mortgage, and she said "no, not needed." This doesn't seem right to me. Shouldn't ALL housing costs be counted when they're determining the household expenses? I'm worried they'll calculate his benefit incorrectly if they don't have the full picture of our housing costs. Has anyone else gone through this process for a disabled child under guardianship? Did they count your property taxes and insurance?
35 comments


Zachary Hughes
They should definitely be counting your property taxes and homeowners insurance as part of housing expenses for SSI. When I went through this with my nephew, all housing expenses were included in the calculations. The rep might be confusing the rules or applying them incorrectly. I suggest calling SSA back and speaking with a different representative, or asking to speak with a supervisor who can clarify the policy. Make sure to document the date/time of your calls and who you spoke with. The way they calculate the child's SSI benefit takes into account the household expenses, so leaving these out could potentially reduce the benefit amount.
0 coins
Rachel Clark
•Thank you! I thought that seemed wrong. Do you think I should call them back right away or wait until we get the determination letter? I'm afraid of messing something up if I call again before they finish processing the application.
0 coins
Mia Alvarez
i had the EXACT same issue last yr with my daughters ssi!!! the 1st rep told me no on taxes/insurance then i got a super low benefit amount. had to appeal and show ALL my housing costs. took 3 extra months but they fixed it and gave backpay. don't wait call them asap!!!
0 coins
Rachel Clark
•Oh no, I definitely don't want to go through an appeal if I can avoid it. Did you have to submit documentation for the property taxes and insurance? I have all the statements but wasn't sure what they'd need.
0 coins
Carter Holmes
You're absolutely right to question this. For SSI purposes, household expenses should include all housing costs - mortgage/rent, property taxes, insurance, utilities, etc. This affects how they calculate the child's portion of household expenses and ultimately impacts the benefit amount. For a disabled child under guardianship, they apply something called "deeming" rules where they look at the guardian's income and resources, and part of that calculation includes determining what portion of household expenses should be attributed to the child. Without your complete housing costs, they can't accurately make this determination. I recommend calling the SSA and specifically asking them to review their policy on counting property taxes and insurance as part of housing expenses for the SSI deeming calculation for a child. Reference POMS SI 01320.175 if needed (that's their internal policy manual section that covers this).
0 coins
Rachel Clark
•Thank you SO MUCH for the specific policy reference! That will be really helpful when I call. I've been so stressed about this whole process, and my grandson really needs these benefits. I'll call them tomorrow morning.
0 coins
Sophia Long
When I applied for my son the rep asked for everything - mortgage, taxes, insurance, even HOA fees. Different reps seem to handle things differently. The problem is that some field offices train their people better than others. You definitely need to call back and get this straightened out BEFORE they make a determination. Once they determine an amount, fixing it becomes much harder.
0 coins
Angelica Smith
•This is exactly right. I used to work adjacent to SSA and the inconsistency between different representatives is a huge problem. Some follow procedures to the letter while others take shortcuts or misapply policies. When it comes to SSI for disabled children, the deeming rules are particularly complex and many representatives don't fully understand them. Definitely call back and request either a different representative or a technical expert who specializes in SSI claims for children. Be polite but persistent - this is your grandson's benefit at stake.
0 coins
Logan Greenburg
my sister went through this mess last year with her kid. took FOREVER to get through to someone who knew what they were talking about. they kept hanging up on her!! so frustrating when ur just trying to help a disabled child get what they need!!
0 coins
Charlotte Jones
•I had the same issue with getting through to SSA for my child's disability review. Spent HOURS on hold only to get disconnected repeatedly. Finally I found this service called Claimyr (claimyr.com) that got me through to an agent in about 20 minutes instead of waiting for hours. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Totally worth it when you're dealing with something as important as benefits for a disabled child. The peace of mind knowing I could actually talk to someone was priceless, especially when dealing with complex issues like deeming rules and household expenses.
0 coins
Mia Alvarez
does ur grandson get medicaid too? make sure they don't mess that up when fixing the ssi stuff!!! sometimes when they adjust one thing it messes up the other
0 coins
Rachel Clark
•Yes, he does have Medicaid! I didn't even think about that - thank you for the reminder. I'll make sure to mention that when I call so they don't accidentally mess up his healthcare coverage.
0 coins
Carter Holmes
Just a follow-up tip - when you call back, ask for an itemized breakdown of how they're calculating the portion of household expenses allocated to your grandson. This should be documented in their system notes once the determination is made. Having this breakdown will help you verify they've included all appropriate expenses. Also, request that they note in your case file that you attempted to provide property tax and insurance information during the initial interview but were told it wasn't necessary. This creates a record that you tried to provide complete information from the start, which can be important if you need to appeal later.
0 coins
Rachel Clark
•That's really smart advice! I'll definitely ask for the itemized breakdown and make sure they note that I tried to provide this information initially. I'm feeling so much better prepared to make this call now. Thank you everyone for your help!
0 coins
Charlotte Jones
THE WHOLE SSI SYSTEM IS RIGGED AGAINST US!!! They DELIBERATELY leave out information so they can pay LESS benefits!!! I've been fighting with them for THREE YEARS about my daughter's benefits and they ALWAYS try to count everything against us but won't count things that would HELP us!!! It's a SYSTEM DESIGNED TO FAIL disabled children!!!!
0 coins
Angelica Smith
•While I understand your frustration, I don't think most SSA employees are deliberately trying to reduce benefits. The SSI program rules are incredibly complex, and many representatives simply don't have adequate training on all aspects. What looks like malice is often just a lack of knowledge about specific policies like deeming rules for children. That said, it is important to be your own advocate and question determinations that don't seem right. The appeals process exists for a reason, and many incorrect determinations are successfully overturned.
0 coins
Sophia Long
Make sure you keep a record of everything - all your expenses, who you talked to, when you called, what they said. When I dealt with this for my son's SSI, having detailed notes saved me multiple times. Also bring his medical records with you if you have to go in person again. They like to "lose" important documents.
0 coins
Rachel Clark
•I've been keeping pretty good notes so far, but I'll make sure to be even more detailed going forward. His medical file is huge, so I keep copies of everything. It's frustrating how complicated they make this process!
0 coins
Emma Wilson
I'm a former SSA claims specialist and can confirm that property taxes and homeowners insurance absolutely should be counted as household expenses for SSI deeming calculations. The representative who told you these weren't needed was incorrect. When determining a child's SSI benefit under deeming rules, ALL housing costs are supposed to be included: mortgage/rent, property taxes, insurance, utilities, maintenance, etc. This is clearly outlined in the Program Operations Manual System (POMS). Call back immediately and ask to speak with a Technical Expert (TE) or supervisor who specializes in childhood SSI claims. Don't let them brush you off - your grandson's benefit amount depends on getting this right. Have your property tax bills and insurance statements ready when you call. The fact that you specifically asked about these expenses during your interview and were told they weren't needed should be documented in your case file. This creates a clear record that the error was on their end, not yours.
0 coins
StellarSurfer
•This is incredibly helpful to hear from someone who actually worked at SSA! I feel much more confident now knowing that what I suspected was correct. I'm going to call first thing tomorrow morning and specifically ask for a Technical Expert who handles childhood SSI claims. Having the confirmation that this should be documented in my case file as their error (not mine) is really reassuring. Thank you so much for taking the time to explain this - it means the world to know there are people out there who understand how these systems are supposed to work and are willing to help families like mine navigate them properly.
0 coins
Yuki Tanaka
I'm new to this community but going through a similar situation with my disabled nephew's SSI application. Reading through everyone's responses has been so helpful - I had no idea that property taxes and insurance should be included in the household expenses calculation! Our SSA rep also seemed to gloss over these details during our interview. It's really concerning how inconsistent the training seems to be across different field offices. Thank you especially to Emma Wilson for the insider perspective - knowing that Technical Experts exist and specialize in childhood SSI claims is invaluable information. I'm definitely going to ask for one when I call about our case. Rachel, I hope your call goes well tomorrow! Please update us on how it turns out - I'm sure there are other families dealing with this same issue who could benefit from hearing about your experience.
0 coins
Ryder Ross
•Welcome to the community, Yuki! It's unfortunate that you're dealing with the same issue, but you're definitely not alone. The inconsistency in how different SSA representatives handle these applications is really frustrating, especially when it affects benefits for disabled children. I'm glad Emma's insider knowledge was helpful to you too - having that confirmation from someone who actually worked in the system gives me so much more confidence going into tomorrow's call. I'll definitely post an update once I speak with them. Hopefully our experiences can help other families avoid these same pitfalls. It sounds like asking specifically for a Technical Expert is going to be key for both of us. Good luck with your nephew's case, and thank you for the encouragement!
0 coins
Freya Andersen
I'm dealing with a very similar situation right now with my daughter's SSI application! We just had our interview last week and the representative told me the same thing - that they only needed to know about our rent payment but not our renter's insurance or utility costs. I questioned it too because it seemed like they should want the complete picture of our housing expenses. Reading through all these responses has been so eye-opening. I had no idea that there were Technical Experts who specialize in childhood SSI claims, or that there's a specific policy manual section (POMS SI 01320.175) that covers this. Thank you Emma Wilson for that insider perspective - it's incredibly valuable to hear from someone who actually worked in the system. Rachel, I'm definitely going to follow your lead and call back to get this corrected before they make a determination on our case. It's so frustrating that we have to advocate this hard just to make sure they're following their own policies correctly, especially when it comes to benefits for our disabled children. I'll be interested to hear how your call goes tomorrow!
0 coins
Ian Armstrong
•Hi Freya! It's both reassuring and frustrating to know that so many of us are dealing with the exact same issue - reassuring because it confirms this isn't just one rogue representative, but frustrating because it shows how widespread the problem is. The fact that you were told the same thing about rent vs. utilities really highlights the training inconsistency that others have mentioned here. I'm planning to call tomorrow morning and specifically ask for a Technical Expert who handles childhood SSI claims, armed with the POMS reference number that Carter provided. I'm also going to request that they document in my case file that I attempted to provide complete housing cost information during the initial interview but was told it wasn't necessary. It really shouldn't be this hard to get them to follow their own policies! I'll definitely post an update after my call so you and others can see how it goes. Best of luck with your daughter's case - hopefully we can both get this sorted out quickly!
0 coins
Sebastian Scott
This thread has been incredibly helpful! I'm currently going through the SSI application process for my autistic son and our representative also seemed to rush through the household expense questions. After reading everyone's experiences here, I realize I need to be much more proactive about ensuring they have complete information. The advice about asking for a Technical Expert who specializes in childhood SSI claims is gold - I had no idea these specialists even existed. It's really disappointing that we as parents and guardians have to become experts in SSA policies just to make sure our disabled children get the benefits they're entitled to. Emma Wilson, thank you so much for sharing your insider knowledge. Having that confirmation from someone who actually worked in the system makes all the difference. And Rachel, I'm really hoping your call goes well tomorrow - please keep us updated! Your persistence in questioning the representative's response is exactly the kind of advocacy our kids need. It sounds like documenting everything and being prepared with specific policy references is crucial. I'm going to gather all my housing expense documents and call them this week to make sure they have the complete picture for my son's case.
0 coins
Aileen Rodriguez
•Sebastian, your situation with your autistic son really resonates with me as someone new to navigating these complex SSI processes. It's overwhelming to realize how much we need to know just to ensure our children receive proper consideration for benefits they're legally entitled to. What strikes me most about this entire thread is how many families are experiencing identical issues with representatives dismissing important housing expenses. This seems to point to a systemic training problem rather than isolated incidents. The fact that Emma Wilson, with her SSA background, confirmed these expenses should absolutely be included gives me confidence that we're not asking for anything unreasonable. I'm planning to call about my own family member's case this week as well, and I'm going to use the strategy everyone has outlined here: ask specifically for a Technical Expert, reference the POMS policy manual section, and request thorough documentation of all interactions. It's unfortunate that we have to be this prepared and persistent, but clearly it's necessary. Thank you to everyone who has shared their experiences and advice - this community support makes such a difference when dealing with these challenging systems. Best of luck to you, Rachel, Freya, and everyone else working through these applications!
0 coins
Sarah Jones
I'm a newcomer to this community but have been following this discussion closely as I'm about to start the SSI application process for my disabled daughter. Reading through everyone's experiences has been both enlightening and concerning - it's clear that many SSA representatives are not properly trained on the deeming rules for childhood SSI benefits. What really stands out to me is how consistent this problem seems to be across different field offices. Multiple people here have reported being told that property taxes, insurance, and other housing costs "don't count" when they absolutely should according to policy. Emma Wilson's insider perspective confirming that ALL housing expenses should be included gives me confidence that families aren't being unreasonable in their expectations - the representatives are simply not following proper procedures. The fact that there are Technical Experts who specialize in childhood SSI claims is invaluable information that I wish was more widely known. I'm going to be very prepared when I have my interview - I'll have all my housing expense documentation ready and won't hesitate to ask for a specialist if needed. Thank you to everyone who has shared their experiences and advice. Rachel, I'm particularly interested to hear how your call goes tomorrow as it will help guide my own approach. It's unfortunate that families dealing with disabled children have to become policy experts just to ensure proper treatment, but this community support makes all the difference in navigating these complex systems.
0 coins
Nia Johnson
•Hi Sarah, welcome to the community! Your preparation approach sounds spot-on based on everything we've learned from this discussion. It's really smart that you're getting all your documentation ready before your interview rather than having to go back and correct things later like many of us are having to do. The consistency of this problem across different field offices is what strikes me most too. It really does seem to be a training issue rather than isolated incidents, which is both frustrating and somewhat reassuring - at least we know we're not crazy for thinking these expenses should count! Having Emma's confirmation about the Technical Experts existing has been a game-changer for all of us. I wish this information was more readily available to families going through the application process. It shouldn't take a community forum to learn about resources that could make such a difference in getting proper benefits for our children. Your point about families having to become policy experts is so true. We're already dealing with the challenges of caring for disabled children, and then we have to navigate these complex bureaucratic systems on top of it. But at least we have each other to share information and support! Best of luck with your daughter's application - you're going into it much better prepared than most of us were. Hopefully the trend of representatives not counting housing expenses properly will start to change as more families push back with the right information.
0 coins
Andre Moreau
As someone new to this community, I'm appalled but not entirely surprised by how widespread this issue seems to be. I'm currently preparing to apply for SSI benefits for my disabled son, and reading through all these experiences has been both incredibly helpful and deeply concerning. The fact that so many representatives across different field offices are giving identical incorrect information about housing expenses suggests this is a systemic training problem, not isolated incidents. It's particularly troubling that families are being told their property taxes and insurance "don't count" when these are clearly significant housing costs that should factor into the deeming calculations. Emma Wilson's insider confirmation that ALL housing expenses should be included is invaluable - it gives me confidence that when I have my interview, I need to be prepared to advocate strongly for complete documentation. I'm definitely going to ask specifically for a Technical Expert who handles childhood SSI claims if I encounter any resistance. What strikes me most is how much specialized knowledge families need just to ensure their disabled children receive benefits they're legally entitled to. We shouldn't have to become SSA policy experts, but clearly it's necessary given the inconsistent training representatives receive. Thank you to everyone sharing their experiences - this community support is making a real difference for families navigating these complex systems. Rachel, I'm especially eager to hear how your call goes as it will help guide many of our approaches!
0 coins
Emma Davis
•Andre, you've really captured what many of us are feeling - it's both validating and frustrating to see how systematic this problem is. Your point about needing to become SSA policy experts just to get our kids proper benefits really hits home. What gives me hope is seeing how this community has come together to share knowledge and support each other through these challenges. Emma's insider perspective has been invaluable, and seeing multiple families ready to advocate more effectively because of this discussion shows the power of sharing experiences. I'm going into my own situation much more prepared now thanks to everyone here - knowing to ask for Technical Experts, having the POMS reference numbers, and understanding that documentation is key. It's unfortunate we have to fight this hard, but at least we're not fighting alone. The fact that you're preparing so thoroughly before your interview gives me confidence that the next generation of families going through this process will be better equipped to get proper treatment from the start. Good luck with your son's application!
0 coins
Yara Sabbagh
As a newcomer to this community, I'm both grateful and disheartened to find this discussion. I'm currently in the middle of an SSI application for my disabled nephew who I have guardianship of, and our representative gave us the exact same runaround about property taxes and homeowners insurance "not being needed." Reading through everyone's experiences, it's clear this isn't an isolated problem but a widespread training issue across SSA field offices. The consistency of representatives dismissing legitimate housing expenses is alarming, especially when it directly impacts benefit calculations for disabled children who desperately need these resources. Emma Wilson's confirmation from her SSA background that ALL housing costs should be included gives me the confidence I need to push back. I had that nagging feeling something was wrong when our rep rushed through the housing expense questions, but I didn't know enough about the policies to challenge it effectively. I'm going to call tomorrow and specifically request a Technical Expert who specializes in childhood SSI claims - I had no idea these specialists even existed until reading this thread. It's incredibly valuable information that should be more widely available to families going through this process. Thank you to everyone who has shared their experiences and advice. It's unfortunate that we have to become advocates and policy experts just to ensure our disabled children receive benefits they're entitled to, but this community support makes all the difference. Rachel, please update us on how your call goes - your experience will help guide many of us facing the same battle!
0 coins
Toot-n-Mighty
•Yara, your situation sounds almost identical to what so many of us have experienced - it's both reassuring to know we're not alone and frustrating that this is such a widespread problem. The fact that your representative also rushed through housing expenses and dismissed property taxes and insurance really reinforces that this is a systemic training issue rather than isolated incidents. I'm so glad you found this discussion before making your call! Having Emma's insider knowledge and all the strategies everyone has shared here puts you in a much stronger position to advocate effectively for your nephew. Asking for a Technical Expert right away is definitely the smart approach - don't let them brush you off with incorrect information like so many of us initially experienced. It really shouldn't require this level of preparation and advocacy just to get proper consideration of basic housing expenses, but unfortunately that seems to be the reality we're dealing with. The important thing is that we're sharing information and supporting each other through these challenges. Best of luck with your call tomorrow - you're going into it much better prepared than most of us were initially. I hope you get connected with a knowledgeable Technical Expert who can ensure all your housing costs are properly documented and included in the benefit calculations. Your nephew is lucky to have such a dedicated advocate!
0 coins
Evelyn Xu
As a newcomer to this community, I'm both shocked and grateful to have found this discussion. I'm currently going through the SSI application process for my disabled foster daughter, and our caseworker gave us the exact same response about property taxes and homeowner's insurance - that they "weren't necessary for the application." Reading through everyone's experiences here has been eye-opening. The fact that multiple families across different field offices are being told identical incorrect information really does point to a widespread training problem rather than isolated mistakes. It's deeply concerning that representatives are consistently dismissing legitimate housing expenses that should be included in deeming calculations. Emma Wilson's insider perspective confirming that ALL housing costs should be counted has given me the confidence I needed to challenge this. Like many of you, I had that gut feeling something wasn't right when our rep rushed through those questions, but I didn't have the policy knowledge to push back effectively at the time. I'm planning to call this week and specifically ask for a Technical Expert who handles childhood SSI claims - I had no idea these specialists existed until reading this thread. Having the POMS reference number (SI 01320.175) and knowing to request documentation of my previous attempts to provide complete information will be crucial. Thank you to everyone who has shared their stories and advice. It's unfortunate that families caring for disabled children have to become SSA policy experts just to ensure proper benefit calculations, but this community support is invaluable. Rachel, I'm definitely interested in hearing how your call went - your experience will help guide many of us dealing with this same issue!
0 coins
Jake Sinclair
•Evelyn, welcome to the community! Your situation with your foster daughter is so similar to what many of us have experienced - it's both validating and frustrating to see how consistent this problem is across different offices and case types. The fact that you're dealing with this as a foster parent adds another layer of complexity, but the same principles apply regarding housing expenses. You're absolutely right that having Emma's insider confirmation gives us the confidence to push back effectively. It's one thing to have a gut feeling something is wrong, but having someone with actual SSA experience confirm the policies makes all the difference when advocating for our children. Going in prepared with the POMS reference and knowing to ask for a Technical Expert right away is definitely the smart approach. The documentation aspect is so important too - making sure they note your previous attempts to provide complete information protects you if there are any questions later. It's really unfortunate that foster parents, guardians, and families are having to become policy experts just to navigate these systems properly, especially when we're already dealing with the challenges of caring for disabled children. But I'm grateful we have this community to share knowledge and support each other through these battles. Best of luck with your call this week - you're going into it much better prepared than most of us were initially. Your foster daughter is lucky to have such a dedicated advocate fighting for her benefits!
0 coins
Sadie Benitez
I'm new to this community and going through a very similar situation with my disabled daughter's SSI application. Our representative also told us that property taxes and homeowners insurance weren't needed, which immediately seemed wrong to me since these are major housing expenses. Reading through all of your experiences has been incredibly helpful and confirms my suspicions that this is a widespread training issue across SSA offices. The consistency of representatives giving identical incorrect information is really concerning, especially when it affects benefit calculations for our most vulnerable children. Emma Wilson's insider perspective has been invaluable - having confirmation from someone who actually worked in the system that ALL housing expenses should be included gives me the confidence I need to call back and advocate properly. I had no idea Technical Experts who specialize in childhood SSI claims even existed, but I'm definitely going to ask for one when I call. It's frustrating that we have to become SSA policy experts just to ensure our disabled children get the benefits they're entitled to, but I'm grateful for this community support. The advice about documentation, POMS references, and being persistent but polite is exactly what I needed to hear. Rachel, I hope your call went well! Please update us when you can - your experience will definitely help guide the rest of us who are dealing with this same issue.
0 coins