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SSI household expenses confusion - real estate tax and home insurance not counted for disabled child?

I'm confused about what counts as household expenses for my grandson's SSI application. I'm his legal guardian and we're applying for SSI benefits due to his disability. During our interview last week, the SSA rep only asked about my mortgage payment (which is only $430/month) but didn't want any information about my property taxes ($3,200/year) or homeowners insurance ($1,450/year). I specifically asked if these should be included since they're separate from my mortgage, and she said "no, not needed." This doesn't seem right to me. Shouldn't ALL housing costs be counted when they're determining the household expenses? I'm worried they'll calculate his benefit incorrectly if they don't have the full picture of our housing costs. Has anyone else gone through this process for a disabled child under guardianship? Did they count your property taxes and insurance?

They should definitely be counting your property taxes and homeowners insurance as part of housing expenses for SSI. When I went through this with my nephew, all housing expenses were included in the calculations. The rep might be confusing the rules or applying them incorrectly. I suggest calling SSA back and speaking with a different representative, or asking to speak with a supervisor who can clarify the policy. Make sure to document the date/time of your calls and who you spoke with. The way they calculate the child's SSI benefit takes into account the household expenses, so leaving these out could potentially reduce the benefit amount.

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Rachel Clark

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Thank you! I thought that seemed wrong. Do you think I should call them back right away or wait until we get the determination letter? I'm afraid of messing something up if I call again before they finish processing the application.

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Mia Alvarez

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i had the EXACT same issue last yr with my daughters ssi!!! the 1st rep told me no on taxes/insurance then i got a super low benefit amount. had to appeal and show ALL my housing costs. took 3 extra months but they fixed it and gave backpay. don't wait call them asap!!!

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Rachel Clark

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Oh no, I definitely don't want to go through an appeal if I can avoid it. Did you have to submit documentation for the property taxes and insurance? I have all the statements but wasn't sure what they'd need.

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Carter Holmes

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You're absolutely right to question this. For SSI purposes, household expenses should include all housing costs - mortgage/rent, property taxes, insurance, utilities, etc. This affects how they calculate the child's portion of household expenses and ultimately impacts the benefit amount. For a disabled child under guardianship, they apply something called "deeming" rules where they look at the guardian's income and resources, and part of that calculation includes determining what portion of household expenses should be attributed to the child. Without your complete housing costs, they can't accurately make this determination. I recommend calling the SSA and specifically asking them to review their policy on counting property taxes and insurance as part of housing expenses for the SSI deeming calculation for a child. Reference POMS SI 01320.175 if needed (that's their internal policy manual section that covers this).

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Rachel Clark

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Thank you SO MUCH for the specific policy reference! That will be really helpful when I call. I've been so stressed about this whole process, and my grandson really needs these benefits. I'll call them tomorrow morning.

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Sophia Long

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When I applied for my son the rep asked for everything - mortgage, taxes, insurance, even HOA fees. Different reps seem to handle things differently. The problem is that some field offices train their people better than others. You definitely need to call back and get this straightened out BEFORE they make a determination. Once they determine an amount, fixing it becomes much harder.

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This is exactly right. I used to work adjacent to SSA and the inconsistency between different representatives is a huge problem. Some follow procedures to the letter while others take shortcuts or misapply policies. When it comes to SSI for disabled children, the deeming rules are particularly complex and many representatives don't fully understand them. Definitely call back and request either a different representative or a technical expert who specializes in SSI claims for children. Be polite but persistent - this is your grandson's benefit at stake.

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my sister went through this mess last year with her kid. took FOREVER to get through to someone who knew what they were talking about. they kept hanging up on her!! so frustrating when ur just trying to help a disabled child get what they need!!

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I had the same issue with getting through to SSA for my child's disability review. Spent HOURS on hold only to get disconnected repeatedly. Finally I found this service called Claimyr (claimyr.com) that got me through to an agent in about 20 minutes instead of waiting for hours. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Totally worth it when you're dealing with something as important as benefits for a disabled child. The peace of mind knowing I could actually talk to someone was priceless, especially when dealing with complex issues like deeming rules and household expenses.

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Mia Alvarez

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does ur grandson get medicaid too? make sure they don't mess that up when fixing the ssi stuff!!! sometimes when they adjust one thing it messes up the other

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Rachel Clark

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Yes, he does have Medicaid! I didn't even think about that - thank you for the reminder. I'll make sure to mention that when I call so they don't accidentally mess up his healthcare coverage.

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Carter Holmes

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Just a follow-up tip - when you call back, ask for an itemized breakdown of how they're calculating the portion of household expenses allocated to your grandson. This should be documented in their system notes once the determination is made. Having this breakdown will help you verify they've included all appropriate expenses. Also, request that they note in your case file that you attempted to provide property tax and insurance information during the initial interview but were told it wasn't necessary. This creates a record that you tried to provide complete information from the start, which can be important if you need to appeal later.

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Rachel Clark

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That's really smart advice! I'll definitely ask for the itemized breakdown and make sure they note that I tried to provide this information initially. I'm feeling so much better prepared to make this call now. Thank you everyone for your help!

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THE WHOLE SSI SYSTEM IS RIGGED AGAINST US!!! They DELIBERATELY leave out information so they can pay LESS benefits!!! I've been fighting with them for THREE YEARS about my daughter's benefits and they ALWAYS try to count everything against us but won't count things that would HELP us!!! It's a SYSTEM DESIGNED TO FAIL disabled children!!!!

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While I understand your frustration, I don't think most SSA employees are deliberately trying to reduce benefits. The SSI program rules are incredibly complex, and many representatives simply don't have adequate training on all aspects. What looks like malice is often just a lack of knowledge about specific policies like deeming rules for children. That said, it is important to be your own advocate and question determinations that don't seem right. The appeals process exists for a reason, and many incorrect determinations are successfully overturned.

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Sophia Long

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Make sure you keep a record of everything - all your expenses, who you talked to, when you called, what they said. When I dealt with this for my son's SSI, having detailed notes saved me multiple times. Also bring his medical records with you if you have to go in person again. They like to "lose" important documents.

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Rachel Clark

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I've been keeping pretty good notes so far, but I'll make sure to be even more detailed going forward. His medical file is huge, so I keep copies of everything. It's frustrating how complicated they make this process!

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