Does household deeming affect SSI payment amount for child under guardianship?
I recently became the legal guardian of my 12-year-old niece who was approved for SSI disability benefits last month. I'm confused about how they're calculating her payment amount. The SSA representative mentioned something about "deeming" from household income, but didn't explain it clearly. My husband and I both work, and we have two biological children as well. Does our household income affect her SSI payment even though she's under guardianship rather than adoption? Her approval letter shows she qualified for $914 but her actual payment is only $456. Is this because of deeming? Any insights on how this works would be so helpful!
18 comments


Alicia Stern
Yes, household deeming absolutely applies in your situation. When a child under 18 lives in a household, SSA "deems" a portion of the guardian/parent's income to be available to the child. This reduced payment amount is definitely from deeming calculations. Even as a legal guardian (not adoptive parent), your household income affects her payment because she lives with you. The exact calculation is complex and involves your income, your husband's income, and allowances for your other children.
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Alexander Zeus
•Thank you for explaining! So there's no way around this deeming situation? I wasn't prepared for her payment to be cut in half - that barely covers her therapy copays.
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Gabriel Graham
Same thing happened with my grandson! They cut his payment down to practically nothing because of our income. Its so FRUSTRATING because his medical expenses r way more than what SSI gives!!!! The system is totally broken if u ask me.
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Alexander Zeus
•I'm sorry you're dealing with this too. Did you find any solutions? I'm wondering if we need to set up some kind of special account for her medical expenses.
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Drake
To add some clarification here - deeming applies when the child lives in the same household as parents or guardians. SSA considers part of your income and resources to be available to the child. The calculation is based on several factors: 1. Your total household income 2. Number of non-SSI children in household (your biological children) 3. Whether guardian/parents have income 4. Certain expenses like medical expenses may reduce countable income You should request a detailed breakdown of the deeming calculation from SSA so you understand exactly how they arrived at $456. You have the right to this information and can appeal if you think there's an error.
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Sarah Jones
•This! Also make sure they accounted for all the allowable deductions. When my nephew got SSI, they didn't count some of his medical expenses at first until I pointed it out, and his payment went up by like $175 after they recalculated.
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Sebastian Scott
I spent WEEKS trying to get someone at Social Security to explain deeming calculations for my disabled daughter. Kept calling that 800 number and either waited for hours or got disconnected. Finally used a service called Claimyr (claimyr.com) that got me connected to an agent in under 10 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU The agent walked me through the whole calculation and found they had incorrect information about my household size which was affecting the payment. Got it fixed and my daughter's payment increased by $230/month. Definitely worth requesting the detailed calculation breakdown like the previous poster suggested.
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Alexander Zeus
•Thank you for this suggestion! I've been trying to call SSA for three days with no luck. I'll definitely look into this service because I need to understand how they're calculating her payment.
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Emily Sanjay
my sisters kid gets ssi and she said something about an ABLE account helping with the money situation maybe check that out
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Alicia Stern
•ABLE accounts are great for saving money without affecting SSI eligibility, but they don't actually change the deeming calculations that determine the monthly payment amount. They're more for building savings above the $2,000 resource limit without losing benefits.
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Jordan Walker
Wait I'm confused... is SSI different from SSDI? My daughter gets disability but we don't have any income limits. Is that because she's getting a different program?
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Drake
•Yes, they're different programs. SSI (Supplemental Security Income) is needs-based with strict income and resource limits. SSDI (Social Security Disability Insurance) is based on work credits (either the recipient's or in a child's case, sometimes a parent's record). SSDI doesn't have the same income and resource restrictions as SSI. Sounds like your daughter may be receiving SSDI benefits rather than SSI.
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Gabriel Graham
FYI they always mess up the calculations!!! When my sister became guardian of her granddaughter they calculated wrong THREE TIMES before getting it right. Keep pushing them!!!
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Alicia Stern
Something else to consider: If your niece has significant medical expenses, you might want to document all of them. Certain medical expenses and disability-related expenses can sometimes be excluded from deeming calculations, which could potentially increase her payment. When you speak with SSA, specifically ask about IRWE (Impairment-Related Work Expenses) exclusions or medical expense exclusions that might apply in a child's SSI case.
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Alexander Zeus
•That's really helpful information. She does have regular therapy appointments and some specialized treatments that insurance only partially covers. I'll definitely document everything and ask about these exclusions when I talk to SSA.
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Andre Dubois
Just wanted to add another perspective here - I work as a benefits coordinator and see this situation frequently. The deeming rules can be really harsh, especially for guardians who step up to care for disabled children. A few additional things to keep in mind: 1. The deeming calculation uses a specific formula that subtracts allowances for you, your spouse, and your other children before applying the deemed amount to your niece's case. 2. If your niece has her own income (like from a special needs trust or other sources), that gets factored in too. 3. Sometimes there's a delay in SSA updating their records about household composition changes, which can affect the calculation. I'd strongly recommend getting that detailed breakdown others mentioned, and also consider consulting with a disability attorney who specializes in SSI cases if the numbers still don't make sense. Many offer free consultations and can spot calculation errors that might not be obvious to us non-experts. Your niece is lucky to have someone advocating for her - don't give up if something seems off with the math!
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Victoria Scott
•Thank you so much for this detailed breakdown! As someone new to navigating SSI, this is exactly the kind of information I needed. I had no idea there were specific allowances built into the formula or that household composition changes could cause delays in updates. I'm definitely going to pursue getting that detailed calculation breakdown, and the suggestion about consulting with a disability attorney is really helpful too. It's reassuring to know that calculation errors do happen and can be corrected. I really appreciate you taking the time to share your professional perspective - it gives me hope that we can get this sorted out properly.
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Lincoln Ramiro
I went through something very similar when I became guardian of my nephew last year. The deeming calculation is incredibly frustrating because it assumes you have more disposable income than you actually do after taking on a disabled child's care. What really helped me was creating a detailed monthly budget showing all of his disability-related expenses - not just medical copays, but things like specialized equipment, transportation to appointments, respite care, etc. When I presented this to SSA along with requesting the calculation breakdown, they found they had missed some exclusions. Also, don't forget that as his guardian, you might be able to claim him as a dependent on your taxes and potentially qualify for certain credits that could help offset the reduced SSI payment. The system is definitely not set up well for guardianship situations, but keep advocating - there might be more room to work with the numbers than it initially appears.
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