SSI maximum benefits for adult son with Down Syndrome - what housing expense ratio qualifies?
I've been managing SSI benefits for my 26-year-old son who has Down Syndrome for years now, but I'm still confused about how to maximize his monthly payment. He currently receives about $580/month instead of the full SSI amount (around $950). I keep detailed records of all his living expenses - rent to us, food, utilities, etc., but I'm not sure if I'm documenting things correctly or if the ratio of expenses is off. Does anyone know what percentage of household expenses he needs to pay to qualify for the maximum SSI benefit? Is there a specific formula SSA uses? Do we need to charge him exactly 1/3 of everything since we're a family of 3? The SSA rep I spoke with last year was really vague about this, and I keep worrying we're missing out on benefits he's entitled to receive.
18 comments
Ev Luca
This is definitely one of the more confusing aspects of SSI. Your son is likely receiving a reduced amount because of what's called the "one-third reduction rule." Basically, if SSA determines he's living in your household and not paying his fair share of expenses, they reduce his benefit by about 1/3. To get the full Federal Benefit Rate (FBR), he needs to pay what SSA considers his "pro-rata share" of household expenses. That means if there are 3 people in the household, he should be paying 1/3 of the rent/mortgage, food, and utilities. You need to document these payments carefully - preferably with canceled checks or electronic transfers rather than cash. Keep in mind he also needs to be using his own money for these expenses - not just redistributing the SSI funds you receive on his behalf.
0 coins
Lukas Fitzgerald
•Thank you for explaining this! We have a mortgage payment of $1,650/month, utilities around $320/month, and food costs about $950/month for the household. So if I understand correctly, he should be paying about $550/month for housing, $107 for utilities, and $317 for food to hit that 1/3 mark? That actually adds up to more than his current SSI payment...
0 coins
Avery Davis
We went thru this with my daughter!!!! Its SO FRUSTRATING. We had to do a "rental agreement" even tho she lives with us and they STILL didn't give her the full amount for like 8 months!!!! You need to get something in writing and keep EVERY receipt. They told us she needed to pay "fair market value" but never explained what that meant exactly????
0 coins
Collins Angel
•I know right? They expect them to pay market rate rent but don't give them enough money to actually do that! Make it make sense lol
0 coins
Marcelle Drum
I work as a benefits counselor for people with developmental disabilities. Here's what you need to know: 1. The "one-third reduction rule" applies when someone lives in another person's household and receives both food and shelter from them without paying fair market value. 2. To avoid this reduction, your son needs to pay his fair share of household expenses. This doesn't necessarily mean exactly 1/3 if you have 3 people - it means his proportional share based on the number of people in the household. 3. You have two potential approaches: - Have him pay his pro-rata share of actual household expenses (divide total household costs by number of household members) - Create a formal rental agreement at fair market value for a room in your area 4. Document everything with a paper trail - checks, electronic transfers, receipts. 5. Request a "PMV determination" (Presumed Maximum Value) from SSA where they'll calculate exactly what he should pay. The maximum SSI federal benefit in 2025 is $944, and some states add supplements to this amount.
0 coins
Lukas Fitzgerald
•This is really helpful, thank you! We've never heard of the PMV determination. Is that something we request during the annual review or should we make a separate appointment? Also, would it be better to do the rental agreement approach since that might be easier to document?
0 coins
Marcelle Drum
To answer your follow-up question, you can request a PMV determination any time - you don't need to wait for the annual review. Just contact your local SSA office and specifically ask for this calculation. Regarding the rental agreement approach versus pro-rata share of expenses, there are pros and cons to both: Rental Agreement approach: - Pros: Cleaner documentation, less ongoing calculation needed - Cons: Must be at fair market value (which might be higher than his benefit amount), and SSA might scrutinize if it seems artificially created just to maximize benefits Pro-rata share approach: - Pros: Often results in a lower total amount he needs to pay, more clearly follows SSA guidelines - Cons: Requires more detailed recordkeeping as expenses change month to month For most families, the pro-rata approach works better because the total amount is typically lower than market rent for a room.
0 coins
Lukas Fitzgerald
•That makes a lot of sense. I think we'll try the pro-rata approach since our expenses do fluctuate. One last question - for food expenses, do we need to keep grocery receipts or is a consistent monthly payment from him to us sufficient documentation?
0 coins
Collins Angel
my brother has disabilities and gets SSI to, we just have him pay a flat $600 for everything and he gets full benefits. i think its more about showing that hes paying something consistent rather than the exact amount tbh
0 coins
Avery Davis
•Did you have to provide bank statements? Our caseworker keeps demanding bank statements every 3 months even though nothing changes!!
0 coins
Tate Jensen
I've been helping folks navigate SSI for years, and this question comes up constantly. Here's a simplified explanation: The SSA has two rules that might be reducing your son's SSI: 1. The "one-third reduction rule" - applies when someone lives in another person's household and receives food and shelter for free 2. The "presumed maximum value rule" (PMV) - applies when someone gets food and shelter from others but pays something (just not their full share) If you want to maximize his SSI, you need to ensure he's paying his full pro-rata share of household expenses. For a household of 3, that's generally 1/3 of: - Rent/mortgage - Property taxes/insurance (if not in mortgage) - Utilities (electricity, gas, water, garbage) - Food Creating a simple spreadsheet showing these calculations and keeping proof of payment (bank transfers work best) will help tremendously during reviews. The most common mistake I see is families not including ALL household expenses in their calculations, which makes the pro-rata share lower than it should be.
0 coins
Lukas Fitzgerald
•This is really clear, thank you! I never thought to include the property taxes separately since they're not part of our mortgage payment. That could definitely help make the numbers work better. Can we include internet and phone bills as utilities?
0 coins
Tate Jensen
Yes, you can generally include internet as a utility since it's considered an essential service nowadays. Phone bills are trickier - if it's a shared family plan, you can include his portion. For property taxes, absolutely include those if you pay them separately from your mortgage. Additional household expenses you might be overlooking: - Home maintenance costs - Household supplies (cleaning products, toilet paper, etc.) - Home insurance Keep in mind that even with perfect documentation, dealing with SSA can be incredibly frustrating. They're chronically understaffed and caseworkers can be inconsistent in how they apply the rules.
0 coins
Adaline Wong
•Speaking of dealing with SSA, if you need to talk to someone about updating your son's living arrangement status, I'd recommend using Claimyr. I was trying for weeks to get through to someone at SSA about my daughter's benefits and kept getting disconnected. Claimyr got me connected to an actual SSA agent in under 10 minutes. Totally worth checking out their video demo at https://youtu.be/Z-BRbJw3puU to see how it works. Saved me hours of frustration when I needed to update my daughter's record after she started paying rent to me.
0 coins
Gabriel Ruiz
Everyone here is overthinking this... just have ur son pay "rent" by writing a check each month and depositing it back in his account later if u don't actually need the $. That's what my cousin does with her disabled daughter. SSA doesn't track where the money goes after he pays u.
0 coins
Tate Jensen
•I strongly advise against this approach. This could be considered fraud if discovered, as it's creating a paper trail for transactions that aren't genuinely occurring. The SSA does occasionally conduct more thorough financial reviews, and banking records showing this pattern could lead to serious consequences, including potential overpayment charges, benefit suspension, or even fraud investigations.
0 coins
Lukas Fitzgerald
Thank you everyone for all this helpful information! I'm going to create a spreadsheet tracking ALL household expenses and calculate his 1/3 share. I'll make sure to include property taxes, home insurance, and internet that I wasn't counting before. I'll also set up bank transfers instead of the cash payments we've been doing. I think I need to contact our local office to request that PMV determination so we can get an official calculation. If I have trouble getting through to them, I might try that Claimyr service since it sounds like it could save a lot of time. It's frustrating that SSA makes this so complicated, but I'm determined to make sure my son gets his full benefit. He deserves it, and every dollar makes a difference in his quality of life.
0 coins
Marcelle Drum
•Sounds like you have a solid plan! One more tip - when you go in for the PMV determination, bring a folder with all your documentation already organized. Having everything ready tends to make the process go much more smoothly. Good luck!
0 coins