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Aliyah Debovski

Will my disabled adult child (DAC) benefit increase when my spouse dies? SS conversion confusion

My 34-year-old son has been receiving disabled adult child benefits since he turned 22 (he has Down syndrome). He currently gets about $1,215/month based on my wife's earnings record since she was the higher earner in our family. She's been diagnosed with terminal cancer and likely has only months left. I'm trying to understand what happens to my son's benefits when she passes. Will his benefit amount increase? Will it automatically convert to a survivor benefit or do I need to apply? The local SSA office gave me conflicting information - one person said it would increase automatically while another said we'd need to file paperwork. Has anyone been through this transition with a disabled adult child's benefits? I want to make sure there's no gap in his coverage as his care depends on this income.

I went thru this with my brother who has autism. Yes the DAC benefit will increase when ur wife passes away. It changes from 50% of her benefit to 75% of her benefit. But u DO need to notify SSA about her death!! They don't know automatically and the benefit doesnt change unless u tell them. bring the death certificate to SSA office.

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Thank you for sharing your experience. Do you remember how long it took for his benefit to increase after you notified them? And did they backpay from the date of death?

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Cass Green

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You're dealing with what's called a Disabled Adult Child (DAC) benefit conversion from a parent-worker benefit to a parent-survivor benefit. Here's what happens: - Your son currently receives 50% of your wife's Primary Insurance Amount (PIA) as a dependent benefit - After your wife passes, he becomes eligible for 75% of her PIA as a survivor benefit - This IS NOT automatic - you must notify SSA of your wife's passing - You'll need to provide a death certificate and complete an application for survivor benefits - There should be no gap in benefits if you report promptly (within 30 days) The benefit conversion usually takes 30-60 days to process after reporting. I recommend contacting SSA the same month she passes to ensure continuous payments. I'm sorry you're facing this difficult time.

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Thank you for the detailed explanation. That 75% vs 50% difference is significant. I'll make sure to contact them immediately when the time comes. Do you know if I need to make an appointment in advance, or can I just show up at the SSA office with the death certificate?

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Cass Green

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You can report a death and apply for survivor benefits by calling SSA at 1-800-772-1213, but many people find it nearly impossible to get through. You can also visit an office without an appointment, but be prepared for a long wait. For the smoothest process, I recommend scheduling an appointment at your local office in advance. You can do this online through the SSA website or by phone.

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The real answer depends on if anyones ELSE is getting benefits on her record right now. There's something called the family maximum that might limit how much your son can get even after she passes. If it's just him getting benefits then yeah it goes up to 75% but if you or other kids are also on her record it might be different becuase of the family max.

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That's a good point I hadn't considered. Right now it's only my son receiving benefits on her record. I'm 68 and already taking my own retirement benefit (which is much lower than hers was). We don't have other children so it sounds like he should get the full 75% then?

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Yeah if its just him then he should get the full 75% no problem. Just make sure to report her death quick!

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Madison Tipne

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So sorry about your wife. My daughter has been on DAC benefits for years and we had to update things when my husband died. Make sure you bring ORIGINAL documents, not copies. They wouldn't accept the copies I brought and I had to come back. Such a waste of time when I was already grieving!

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Thank you for the tip about original documents. That's really helpful to know. Did your daughter's payment amount change right away the next month, or was there a processing delay?

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I had SUCH a nightmare trying to get through to anyone at SSA after my mom died last year to report it and handle my sister's DAC benefits. Spent literally DAYS on hold and kept getting disconnected. Finally found a service called Claimyr that got me through to a real person at SSA in under 20 minutes. Saved me hours of frustration! You just go to claimyr.com and they connect your call to SSA. They have a video showing how it works at https://youtu.be/Z-BRbJw3puU. I was skeptical but it actually worked when nothing else did. Just a tip for when you need to make that call to report the death - those first days after are hard enough without phone frustrations.

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Thank you for this recommendation. I've heard the wait times can be horrible, and I'm dreading dealing with bureaucracy during what will already be a difficult time. I'll definitely check out that service when the time comes.

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Malia Ponder

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Actually, the rules for DACs can be complicated. The amount your son will receive depends on several factors: 1. If he's receiving a DAC benefit on his mother's record (50% of her PIA), it will convert to a survivor DAC benefit (75% of her PIA) when she passes away. 2. However, this assumes your son isn't receiving any other benefits. If he's receiving SSI, there could be an offset. 3. You mentioned you're also retired. If your own benefit is significantly higher than 75% of your wife's benefit, SSA might examine whether your son should receive a DAC benefit on YOUR record instead, as this could potentially be more beneficial long-term. 4. There's also what's called the RIB/LIM guarantee for DACs, which can be complex but sometimes results in a higher payment than the standard 75%. I recommend scheduling a formal appointment with a Technical Expert at SSA (not just a Claims Representative) to go through these calculations. This is too important to leave to chance or general advice.

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Thank you for mentioning these complexities. I had no idea about the RIB/LIM guarantee - I'll have to look that up. My benefit is definitely lower than my wife's (about 35% lower), so I assume his benefit would stay on her record. He doesn't get SSI, just the DAC benefit. I'll definitely ask for a Technical Expert when I go in.

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Kyle Wallace

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I went through this exact situation last year. Few important things I learned: 1. There's usually a one-time death payment of $255 you can apply for 2. The conversion from 50% to 75% is correct but takes time to process 3. SSA won't backdate payments to death date automatically - you need to specifically request this 4. If your son receives Medicare through his DAC benefit, nothing changes with that coverage 5. Make sure ALL your son's information is updated in the system (address, direct deposit, etc) when you report the death Don't wait until after she passes - gather all documents now (birth certificates, marriage certificate, your son's medical records proving disability, etc). Being prepared helps tremendously.

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Thank you for these practical tips. I didn't realize I needed to specifically request backdating to the date of death - that's really important information. I'll start gathering all the documents now so I'm prepared. I appreciate your help.

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oh also some funeral homes will report the death to social security for u! ask them if they do this service when the time comes. but u still need to go to SSA yourself for the benefits stuff.

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That's a great point - I'll definitely ask the funeral home if they handle that part. Thank you.

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Dylan Wright

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I'm so sorry to hear about your wife's diagnosis. This is such a difficult time for your family. I wanted to add one more thing that might be helpful - when you do go to SSA to report the death and handle the benefit conversion, consider bringing a trusted family member or friend with you if possible. Processing grief while dealing with bureaucracy is incredibly hard, and having someone there for emotional support and to help you remember all the questions you want to ask can be really valuable. Also, don't hesitate to ask the SSA representative to write down the key information they give you - it's easy to forget details when you're under stress. Take care of yourself during this time.

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This is such thoughtful advice. I hadn't considered bringing someone with me, but you're absolutely right - trying to process important information while grieving sounds overwhelming. My sister has offered to help with arrangements, so I'll ask if she can come to the SSA appointment with me. And asking them to write things down is a great suggestion. Thank you for thinking about the emotional side of this process, not just the technical aspects.

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Liam Sullivan

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I'm so sorry you're going through this difficult time with your wife's diagnosis. As someone who works in disability advocacy, I want to emphasize something important that others have touched on but bears repeating: the transition from a DAC dependent benefit (50%) to a DAC survivor benefit (75%) is NOT automatic, despite what one SSA employee told you. You absolutely must report your wife's death and apply for the survivor benefit conversion. The good news is that if you report within the required timeframe, the increased benefit should be retroactive to the month following her death. I'd also suggest asking SSA for a written estimate of what your son's new benefit amount will be - this can help you plan financially. Given the conflicting information you've already received from SSA staff, getting everything in writing will protect you. My thoughts are with your family during this challenging time.

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Thank you so much for this advice, especially about getting everything in writing. You're absolutely right about the conflicting information from SSA - it's been really confusing to get different answers from different staff members. I'll definitely ask for a written estimate of the new benefit amount when I go in. Having those numbers ahead of time will help me plan better for my son's ongoing care needs. I appreciate you taking the time to share your expertise during what I know is already a difficult situation to discuss.

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Ethan Clark

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I'm so sorry about your wife's diagnosis. This must be an incredibly difficult time for your family. I went through something similar with my disabled brother when our father passed away. Here are a few additional things I learned that might help: 1. When you go to SSA, ask them to put a "death alert" on your wife's record immediately - this prevents any overpayments that could complicate things later. 2. If your son has a representative payee arrangement, make sure that information is current and clearly documented during the transition. 3. Consider asking SSA to mail you a letter confirming the new benefit amount and effective date after the conversion is processed - this gives you a paper trail. 4. Some SSA offices have dedicated staff who specialize in survivor benefits. If the first person you speak with seems unsure, ask to speak with someone who handles survivor benefit conversions regularly. The increase from 50% to 75% should make a meaningful difference in your son's monthly income, which I'm sure will help with his ongoing care needs. Take care of yourself during this process - you're doing everything right by planning ahead.

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Thank you for these incredibly helpful details, especially about the "death alert" - I had no idea that was something I should request. My son does have me as his representative payee, so I'll make sure that's all clearly documented when I go in. Your suggestion about asking for someone who specializes in survivor benefits is really smart given the conflicting information I've already received. I'm trying to stay organized and prepared for all of this while also caring for my wife, but your advice gives me a clear roadmap to follow. The confirmation letter is also a great idea - having everything documented will give me peace of mind. Thank you for sharing your experience and for the thoughtful guidance.

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Logan Stewart

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I'm so deeply sorry about your wife's diagnosis and what your family is going through right now. As a newcomer to this community, I've been reading through all the helpful responses here and wanted to add my support and one small piece of information I learned when my aunt went through something similar. When you do go to the SSA office to report your wife's passing and handle the benefit conversion, make sure to ask them about any potential changes to your son's Medicare coverage or premiums. While most people mentioned that Medicare coverage itself shouldn't change, sometimes there can be adjustments to Part B premiums or other costs that might affect your overall budget planning. Also, I noticed several people mentioned the importance of timing - from what I understand, you generally have up to 2 years to apply for survivor benefits, but the sooner you apply after her passing, the less likely there are to be any complications or delays in processing. Your preparation and research now shows what a caring father you are. Wishing you and your family strength during this incredibly difficult time.

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Elijah Knight

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Thank you so much for bringing up the Medicare angle - that's something I hadn't even thought to ask about. You're right that even small changes to premiums could affect our monthly budgeting, especially since we're already trying to plan for potential changes in income. I'll definitely add that to my list of questions when I meet with SSA. It's reassuring to know I have up to 2 years to apply, though I plan to handle it much sooner than that. I really appreciate you taking the time as a newcomer to add such thoughtful advice. This community has been incredibly helpful during what feels like an overwhelming situation. Thank you for your kind words and support.

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Dmitry Ivanov

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I'm so sorry to hear about your wife's diagnosis and what your family is facing. As someone new to this community, I've been deeply moved by all the thoughtful and detailed responses you've received here. I wanted to add one small but potentially important detail that I don't think has been mentioned yet: when you do visit the SSA office to handle the benefit conversion, consider asking them to flag your son's file for priority processing given that he's a vulnerable adult with ongoing care needs. While I can't guarantee this will speed things up, some offices have procedures to expedite cases involving disabled beneficiaries to minimize any potential gaps in support. Also, since you mentioned your son has Down syndrome, you might want to confirm with SSA that all his current medical documentation supporting his disability determination is still current in their system. Sometimes during benefit transitions like this, it's a good opportunity to make sure everything is properly documented to avoid any future reviews or complications. The fact that you're planning ahead during such a difficult time shows incredible strength and love for your son. From everything I've read in these responses, it sounds like you have a solid understanding of what needs to be done. Wishing you and your family peace during this challenging time.

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Thank you for mentioning the priority processing option - I had no idea that might be available for vulnerable adults. That could be really helpful since any delay in his benefits would directly impact his daily care needs. Your point about confirming his medical documentation is current is also really valuable. Since he's been receiving DAC benefits for over a decade now, I should probably make sure SSA has all his current medical information on file. It would be terrible to have any complications arise during the transition because of outdated paperwork. I'm grateful for everyone in this community who has shared their knowledge and experience. Having this roadmap from all of you makes what seemed like an impossible situation feel much more manageable. Thank you for your thoughtful suggestions and kind words.

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Liam McGuire

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I'm so sorry to hear about your wife's diagnosis - my heart goes out to your family during this incredibly difficult time. As someone new to this community, I've been reading through all the incredibly helpful responses here and wanted to share something that might be useful. When my neighbor went through a similar situation with her disabled son, she discovered that some SSA offices offer "appointment packages" specifically for survivor benefit cases where they handle multiple related tasks in one visit - reporting the death, applying for survivor benefits, updating representative payee information, and addressing any Medicare-related questions all at once. This can save you from having to make multiple trips during an already overwhelming time. Also, I'd suggest bringing a small notebook or phone to record any case numbers, reference numbers, or confirmation numbers they give you during the process. Having those numbers can be really helpful if you need to follow up or if there are any processing delays. The care and preparation you're showing for your son during this heartbreaking situation is truly admirable. From everything shared here, it sounds like you have a clear path forward and a supportive community to help guide you through this process.

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Isabella Costa

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Thank you for mentioning the "appointment packages" - that sounds incredibly helpful and efficient. Having everything handled in one visit would definitely be less stressful than making multiple trips during what will already be such a difficult time. I'll specifically ask about that when I call to schedule an appointment. Your suggestion about bringing a notebook to record case numbers is really practical too. I can already imagine how easy it would be to forget important details when I'm dealing with grief and trying to process so much information at once. I'm so grateful for this community - everyone has been so thoughtful and thorough in sharing their experiences and advice. It's making something that felt completely overwhelming seem much more manageable. Thank you for taking the time to share these helpful suggestions.

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I'm so deeply sorry about your wife's diagnosis and what you're going through as a family. As a newcomer to this community, I've been reading through all these incredibly detailed and helpful responses, and I'm amazed by the knowledge and compassion everyone has shared. I wanted to add one small thing that might be helpful - when you do schedule your appointment with SSA, consider asking if they can provide you with a written checklist of everything you'll need to bring. Different offices sometimes have slightly different requirements, and having that checklist directly from them could save you from having to make a second trip if you're missing something. Also, I noticed several people mentioned the importance of getting everything in writing. You might want to ask SSA if they can email or mail you a summary of the conversation after your appointment, including the expected timeline for processing and the new benefit amount. Some offices do this automatically, but others will only provide it if you specifically request it. Your dedication to ensuring your son's care continues seamlessly during this transition shows what an incredible father you are. Sending you and your family strength and peace during this difficult journey.

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StarSeeker

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Thank you for this thoughtful suggestion about requesting a written checklist from SSA ahead of time. That's such a practical idea that could prevent a lot of unnecessary stress during an already difficult period. I'll definitely ask for that when I call to schedule the appointment. Your point about requesting a written summary after the meeting is also really valuable - I can see how having all the key details, timelines, and benefit amounts documented would be essential for my records and peace of mind. As someone new to this community, thank you for taking the time to read through everything and add such helpful advice. The support and detailed guidance from everyone here has been incredible during what initially felt like an impossible situation to navigate. I'm so grateful for this community.

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