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NebulaNomad

SSDI earnings limit: Monthly vs Annual reporting confusion - will I lose benefits?

I started receiving SSDI last year after my car accident, and I'm finally able to work part-time at my cousin's store. I'm getting really confused about how the earnings limit works though. Do I need to stay under the limit EACH month, or does Social Security just look at my total earnings for the year? I heard different things from two different people at my local office! One said I'd lose benefits immediately if I go over the monthly amount, but another mentioned something about averaging. I'm scheduled to work extra hours for the holidays which would put me over for December, but my annual total would still be under the yearly limit. I'm really worried about losing my medical coverage if I mess this up. Can anyone clarify how this actually works?

The SSDI earnings limit is based on monthly earnings, not annual. This is different from the retirement earnings test which can be calculated annually. For SSDI in 2025, Substantial Gainful Activity (SGA) is $1,550/month for non-blind individuals. If you earn above that in any month, after your Trial Work Period ends, that month is considered above SGA and can affect benefits. So yes, you need to monitor monthly earnings, not just annual totals. The Trial Work Period gives you 9 months (not necessarily consecutive) where you can earn above SGA without affecting benefits. A TWP month is any month you earn more than $1,110 (2025 figure).

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Thank you for explaining! So even during the holidays when I might work more, I need to make sure I stay under $1,550 for that month? I'm not sure if I've used any of my Trial Work Period months yet - how would I know if I've started that?

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my brother got in trouble with this exact same thing!!!! he went over for 3 months straight and they cut him off completely and made him pay everything back. be SUPER careful with this, they dont mess around

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Oh no, that sounds terrible! Did he get his benefits back eventually? I definitely can't afford to pay anything back right now.

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The previous poster gave correct information, but let me add some nuance. Yes, SSDI uses a monthly SGA limit, not annual averaging. However, the Social Security Administration does consider "subsidy and special conditions" when calculating your earnings. This means if you're receiving accommodations or extra support at work due to your disability, a portion of your earnings might not count toward the SGA limit. For example, if you work slower than other employees or need additional breaks, SSA might only count 75% of your actual earnings toward the SGA limit. You would need to document this with SSA though. Also, work-related expenses connected to your disability (IRWE) can be deducted from your earnings before determining if you exceed SGA. This includes things like specialized transportation costs or medical devices needed for work.

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I didn't know about those deductions! My cousin does give me extra breaks and I take medication during work hours that makes me work a bit slower. I also have to take an Uber sometimes since I can't drive anymore after my accident. Would all those count as deductions?

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The SSA computers SUCK for tracking this stuff! I earned over the limit for ONE month last year and they tried to cut my benefits completely! Had to spend MONTHS fixing it. Their system isn't sophisticated enough to handle all these special rules they create!! And good luck getting anyone on the phone to explain anything!!

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I had a similar nightmare trying to reach someone at SSA about my earnings questions. After getting disconnected three times and waiting on hold for over 2 hours, I finally tried using Claimyr (claimyr.com) to get through to a live person. They have a service that holds your place in line and calls you when an agent is available. Saved me tons of time and frustration. You can see how it works in their demo video: https://youtu.be/Z-BRbJw3puU Got through to someone who actually explained my Trial Work Period status and helped me figure out how many months I had used. Definitely worth it for complicated SSDI questions like this.

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just fyi SS counts gross wages not net. so what ur paycheck says before taxes is what counts. also if ur self employed its different rules so check that if it applies 2 u

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Thanks for pointing that out! I'm not self-employed, just a regular W-2 employee at my cousin's store. So I need to stay under $1,550 in gross wages each month then.

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To directly address your question about knowing if you've started your Trial Work Period: You can check this by calling SSA or checking your my Social Security account online. Any month you earn over the TWP threshold (currently $1,110 for 2025) counts as a TWP month. You get 9 of these months in a rolling 60-month period. After you use all 9 TWP months, you enter the Extended Period of Eligibility (EPE) for 36 months. During the EPE, you receive benefits for months you earn below SGA ($1,550) and don't receive benefits for months you earn above SGA. Tracking this can be complicated, which is why it's good to keep detailed records of your monthly earnings.

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I just checked my online account but I don't see anything about TWP months there. Maybe I need to look in a different section? I definitely need to call them to figure this out before the holidays.

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Ugh I've been on SSDI for 3 years and I still get confused about this stuff lol. My social worker told me to just basically assume each month is separate and don't worry about annual totals. That's what I do and it's been fine so far. Good luck with everything!!

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Thanks! Yeah, it seems like focusing on the monthly amounts is the safest approach. I appreciate everyone's help with this!

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One final note - make sure you're reporting your earnings to SSA consistently. Even if you're under the limit, you need to report when you start working. This helps avoid overpayments which can be a nightmare to resolve later. You can report wages through your my Social Security account online, the SSA mobile wage reporting app, or by calling/visiting your local office. Keep pay stubs and any documentation of work accommodations or disability-related work expenses. If there's ever a question about your benefits, having this documentation ready will make the process much smoother.

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This is really helpful advice. I've been keeping my pay stubs but I didn't know I could report through the app. I'll download that today and make sure I'm reporting everything correctly. Thank you!

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I've been navigating SSDI work rules for about 2 years now, and I learned this the hard way - always err on the side of caution with monthly limits! What really helped me was creating a simple spreadsheet to track my earnings week by week so I could see when I was getting close to the $1,550 monthly limit. One thing I wish someone had told me earlier: if you're unsure about your TWP status, you can also request a "work history printout" from SSA that shows exactly which months counted toward your Trial Work Period. This is different from what shows up in your online account and gives you the complete picture. Also, since you mentioned working at your cousin's store, make sure they understand your situation too. I had to have an honest conversation with my employer about needing to potentially reduce hours certain months to stay under the limit. Most understanding employers will work with you on scheduling once they know the stakes. The key is staying organized and proactive - don't wait until after you've potentially gone over to figure out the rules!

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This is exactly the kind of practical advice I needed! Creating a spreadsheet to track weekly earnings is such a smart idea - I'm definitely going to set that up. And I had no idea about the "work history printout" - that sounds way more detailed than what I can see online. I'll request that when I call SSA. You're absolutely right about talking to my cousin about this. I've been nervous to bring it up because I don't want to seem like a difficult employee, but you're right that most people will understand once they know the situation. The last thing I want is to accidentally go over and lose my benefits because I was too embarrassed to have that conversation. Thank you for sharing your experience - it really helps to hear from someone who's been through this!

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I've been on SSDI for about 5 years and went through this exact confusion when I first started working again! The monthly limit approach is definitely the way to go - don't get caught up in annual calculations like other benefit programs use. One thing that really saved me was setting up automatic reminders in my phone to check my earnings every Friday. I calculate exactly where I'm at for the month and how many more hours I can safely work before hitting that $1,550 limit. It sounds obsessive, but it's given me so much peace of mind. Also, if you do accidentally go over one month, don't panic immediately. Document everything - your pay stubs, any accommodations your cousin provides, transportation costs, etc. Sometimes there are legitimate deductions that can bring you back under the SGA limit. I had a month where I technically earned $1,600, but after deducting my disability-related transportation costs, I was actually under the limit. The wage reporting app mentioned earlier is a lifesaver too. I report every single paycheck within a few days of receiving it. It creates a clear paper trail and shows SSA that you're being proactive about compliance. You've got this - just stay organized and don't be afraid to be conservative with your hours if you're getting close to the limit!

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Wow, the Friday check-in system is brilliant! I never thought about setting up regular reminders like that, but it makes so much sense to stay on top of it weekly rather than scrambling at the end of the month. Your point about documenting everything even if you go over is really reassuring. I was so scared that one mistake would be the end of everything, but knowing there might be legitimate deductions gives me some breathing room. I definitely have transportation costs since I can't drive anymore - I had no idea those could potentially be deducted from my earnings. I'm going to start reporting through the app right away like you suggested. It sounds like being proactive with SSA is way better than trying to explain things after the fact. Thank you for sharing your experience - hearing from someone who's successfully navigated this for 5 years gives me a lot more confidence that I can figure this out too!

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I'm relatively new to SSDI myself and this thread has been incredibly helpful! I just wanted to add something I learned from my disability advocate - keep a simple calendar or journal where you write down your daily work hours and earnings. It doesn't have to be fancy, but having a physical backup of your work schedule has saved me twice when there were discrepancies with my paystubs. Also, don't forget that the SGA limit can change each year - it went up from $1,470 in 2024 to $1,550 in 2025. I almost missed that update and was planning my hours based on the old limit! SSA usually announces the new amounts in October for the following year, so it's worth checking their website each fall. One last tip: if you're really worried about the holiday hours putting you over, consider asking your cousin if you could work some of those extra hours in January instead when you'll have a fresh monthly limit. Most family businesses are flexible about scheduling, especially when they understand it's about protecting your benefits. Stay strong - navigating SSDI work rules is stressful, but this community is proof that lots of us are successfully managing it!

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Thank you so much for the calendar tip! I actually started keeping track in my phone notes but you're right that having a physical backup is smart - technology can fail at the worst times. I completely missed that the SGA limit increased this year! I was still thinking it was around $1,400 from what I heard months ago. Thank you for catching that and explaining when they announce the changes - I'll definitely mark October in my calendar to check for updates each year. Your suggestion about shifting some holiday hours to January is genius! I hadn't even thought about that option. My cousin is pretty flexible and I bet she'd understand, especially since it means I can still help during the busy season without risking my benefits. This whole thread has been so reassuring. When I first posted I was panicking about losing everything, but now I feel like I have a real plan to manage this safely. It's amazing how much practical knowledge everyone here has shared!

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I wanted to jump in here because I went through almost the exact same situation about 8 months ago! Working at a family business while on SSDI can be tricky, but it's totally manageable once you get the system down. The advice everyone's given about monthly limits is spot on - definitely focus on staying under $1,550 each month rather than thinking annually. What really helped me was creating what I call a "safety buffer" - I actually aim to stay under $1,400 per month so I have some wiggle room for unexpected overtime or if my cousin needs extra help during emergencies. Since you mentioned medical coverage concerns, here's something that might ease your mind: even if you do accidentally exceed SGA after your Trial Work Period, you don't immediately lose Medicare. Medicare continues for at least 93 months after your Trial Work Period ends, regardless of your work activity. This gave me so much peace of mind when I was worried about making mistakes with the earnings rules. For the holiday scheduling issue, I'd definitely recommend having that conversation with your cousin sooner rather than later. In my experience, family members are usually really understanding once they realize how important it is to protect your benefits. You might even be able to work out a system where you cover for other employees who want time off during holidays, spreading those extra hours across multiple months. Keep detailed records of everything, stay in communication with SSA, and don't be afraid to ask questions. You've got this!

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This is such helpful information, especially about the Medicare continuation! I had no idea it continues for 93 months after the Trial Work Period - that's a huge relief since losing medical coverage was my biggest fear about making a mistake with earnings. Your "safety buffer" approach is really smart too. Aiming for $1,400 instead of the full $1,550 gives that cushion for unexpected situations. I think I'll adopt that strategy since working at a family business can sometimes mean unpredictable hours when they really need help. I'm definitely going to have that conversation with my cousin this week. Reading everyone's experiences here has made me realize that being upfront about the situation is so much better than trying to navigate it secretly and potentially messing up. She's been really supportive through my whole disability situation, so I'm sure she'll understand. Thank you for sharing your timeline too - knowing you went through this just 8 months ago makes it feel so much more manageable. It's clear that lots of people successfully balance SSDI and work once they understand the rules!

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I just wanted to add something that might be helpful for your specific situation - since you're working at your cousin's store, make sure you understand how they handle your pay schedule. Some smaller family businesses are flexible about when they issue paychecks, and this can actually work in your favor for managing monthly earnings. For example, if you're getting close to the $1,550 limit in December but still have a few days left in the month, you could ask your cousin to hold your final paycheck until January 1st. SSA counts earnings based on when you receive the pay, not when you earned it. This is completely legal and can help you avoid accidentally going over the monthly limit. Also, I noticed you mentioned being new to SSDI after a car accident. If you haven't already, consider reaching out to a local disability advocacy organization or independent living center. Many of them offer free workshops specifically about working while on SSDI, and they often have staff who can help you understand your specific situation better than trying to figure it all out alone. The fact that you're asking these questions now, before potentially going over the limit, shows you're being really proactive. That's going to serve you well as you navigate this process. Don't let the complexity scare you away from working - thousands of people successfully balance SSDI and employment every day!

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This is such valuable advice about pay timing! I never thought about how the timing of when I actually receive my paycheck matters more than when I worked the hours. That could be a huge help for managing those holiday hours - if I work extra days at the end of December, maybe my cousin could hold that paycheck until January starts. I really appreciate the suggestion about finding a local disability advocacy organization too. I've been trying to figure all this out on my own, but having someone who specializes in SSDI work rules walk me through my specific situation sounds so much better. I'll start looking into what's available in my area. You're absolutely right that being proactive is key. When I first got approved for SSDI, I was so focused on just surviving day to day that I didn't think much about eventually working again. Now that I'm feeling better and able to contribute, I want to make sure I do it right from the start. Thank you for the encouragement too - it really helps to hear that thousands of people are successfully doing this. Sometimes when you're in the middle of figuring it all out, it feels impossibly complicated, but this whole thread has shown me it's definitely manageable with the right approach!

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This is such a comprehensive thread with amazing practical advice! I've been on SSDI for about 18 months now and just started looking into part-time work myself, so reading through everyone's experiences has been incredibly valuable. One thing I wanted to add that hasn't been mentioned yet - if you're using any assistive technology or adaptive equipment for work (like special software, ergonomic tools, or communication devices), those costs can often qualify as Impairment-Related Work Expenses (IRWE) and be deducted from your gross earnings when calculating SGA. Since you mentioned your car accident, you might have equipment needs that could help reduce your countable earnings. Also, I learned recently that if you're in your Trial Work Period, you can actually earn above the $1,550 SGA limit without losing benefits - it's only after you've used all 9 TWP months that the monthly SGA limit becomes critical. So definitely get clarity on your TWP status before stressing too much about December's earnings. The spreadsheet tracking idea is brilliant, and I love the suggestion about shifting holiday hours to January. Family businesses really are ideal for this kind of flexibility when you explain the situation properly. You're asking all the right questions and being so thoughtful about this process. That proactive approach is going to serve you really well as you balance work and benefits!

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Thank you for bringing up the assistive technology and IRWE deductions! I didn't even think about that, but I do use some adaptive equipment since my accident. I have a special cushion for sitting long periods and sometimes need to use voice-to-text software when my hands get stiff. I had no idea those kinds of costs could potentially be deducted from my earnings. Your point about the Trial Work Period is really important too - I definitely need to get clarity on whether I'm still in that phase or not. From what everyone's saying, it sounds like the rules are different during TWP versus after, so knowing exactly where I stand is crucial before I panic about December earnings. It's so reassuring to hear from someone else who's just starting to look into work after being on SSDI. This whole thread has turned into such a wealth of practical knowledge that you just can't find easily anywhere else. I feel like I have a real roadmap now instead of just worrying about all the what-ifs. Thanks for adding your insights - the more perspectives I can get from people who are actually living this experience, the more confident I feel about moving forward!

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I'm new to this community but have been dealing with similar SSDI work questions for the past few months. This thread is incredibly helpful! Just wanted to add one more resource that's been invaluable for me - the Red Book from Social Security Administration. It's their official guide to employment supports and you can download it free from their website (ssa.gov). It explains all these rules in detail with examples that really help clarify the monthly vs annual confusion. What really stood out to me from reading everyone's advice is how important it is to document EVERYTHING. I started taking photos of my timesheets and pay stubs with my phone as backup, and keeping a simple notebook where I write down my daily hours. It seems like overkill, but after reading about people having to fight discrepancies with SSA, I figure it's better to be over-prepared. @NebulaNomad - your situation with the holiday hours is so relatable. I was in almost the exact same spot last month and ended up having an honest conversation with my employer about needing to cap my December hours. They were completely understanding once I explained that going over could jeopardize my benefits and medical coverage. Most people get it when you frame it that way. Stay strong and keep asking questions - this community clearly has so much collective wisdom to share!

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Thank you so much for mentioning the Red Book! I just looked it up and downloaded it - you're right that having the official SSA guide with actual examples is going to be so much more reliable than trying to piece together information from different sources. Your point about documenting everything really resonates with me too. After reading all these stories about people having to fight discrepancies or prove their earnings later, I can see how having multiple forms of backup documentation could be a lifesaver. Taking photos of timesheets is such a simple but smart idea - I'm going to start doing that immediately. It's really encouraging to hear that your employer was understanding about capping December hours. I've been putting off that conversation with my cousin because I was worried she'd think I was being difficult, but everyone's experiences here show that most people are actually pretty reasonable when they understand what's at stake. I'm definitely going to have that talk with her this week. Thank you for the encouragement and for adding another great resource to this thread. This community really is amazing - I came here panicked and confused, and now I feel like I have a solid plan and so many helpful tools to manage this properly!

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Zara Shah

This has been such an incredibly helpful thread to read through! As someone who's been on SSDI for about 6 months and just starting to think about returning to work, seeing everyone's real experiences and practical advice has been invaluable. @NebulaNomad - I wanted to specifically address your original question since I went through something similar recently. You're absolutely right to focus on monthly limits rather than annual totals. The key thing is that SSDI uses the monthly SGA threshold ($1,550 for 2025), not annual averaging like some other programs. One thing that really helped me was contacting my local SOAR (SSI/SSDI Outreach, Access, and Recovery) coordinator through my state's disability services office. They have specialists who help people navigate the work incentive programs and can often clarify your Trial Work Period status more easily than trying to get through to SSA directly. Also, since you mentioned working at your cousin's store, you might want to ask about getting your work arrangement documented as "supported employment" if your cousin provides any accommodations. This can sometimes help with the subsidy calculations that others mentioned. The advice about creating that safety buffer below the $1,550 limit is spot-on. I aim for $1,400 max per month to account for any unexpected bonuses or overtime. It's given me so much peace of mind knowing I have that cushion. Keep us updated on how your conversation with your cousin goes - and definitely don't stress too much about December if you can shift some of those hours to January like others suggested!

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Thank you for mentioning the SOAR coordinator - I had no idea that resource existed! That sounds like exactly what I need to get clear answers about my Trial Work Period status without having to navigate SSA's phone system. I'll definitely look into finding one in my area. The suggestion about documenting my work arrangement as "supported employment" is really interesting too. My cousin does provide accommodations - she lets me take breaks when I need them and doesn't pressure me to work at the same pace as other employees because of my limitations from the accident. I hadn't thought about getting that officially documented, but it sounds like it could be helpful for the subsidy calculations. I love how everyone here is emphasizing that safety buffer approach. It makes so much sense to aim for $1,400 instead of pushing right up to the $1,550 limit. That extra $150 cushion could prevent so much stress and potential problems. I'm planning to talk to my cousin tomorrow about the December hours situation. Reading everyone's positive experiences with these conversations has given me the confidence to be upfront about what I need. I'll definitely update the thread on how it goes - this community support has been incredible!

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