Applying for Social Security childhood disability benefits after being denied SSI - stuck at step 3 for 13 months

You're definitely on the right track with the Disabled Adult Child benefits (technically called Childhood Disability Benefits or CDB). Since your condition started before age 22 and you have a parent receiving SSDI, this is potentially your best option. Here's what I'd recommend: 1. File a NEW application specifically for CDB under your mother's record. Don't wait for the pending SSI case - these are completely different programs. 2. Get a status update on your pending hearing request. Call and specifically request to speak with the hearing office handling your case. If they won't transfer you, ask for the direct number to that office. 3. Consider getting a disability attorney at this point - most work on contingency (only get paid if you win). They can often speed things up considerably. The 13-month wait at Step 3 is unfortunately not unusual in the current backlog, but it's worth checking if something's stuck in your file. Good luck!

my sister went thru somethign like this!!! the SSI denail then the whole childhood disabilty thing. took her almost 3 YEARS to get approved even tho she had cancer as a teenager!!! its INSANE how they treat ppl who are sick. the systems broken. hope u get better luck than she did

I successfully received Childhood Disability Benefits after my father passed away, though my situation was slightly different. My diagnosis (severe congenital heart defect) was from birth, and I applied when I was 25. Based on my experience, here are the key things that made a difference: 1. Medical documentation is EVERYTHING. Make sure every single doctor has documented how your condition limits your ability to work. General statements like "patient has kidney stones" aren't enough - you need them to specifically document functional limitations. 2. Apply for CDB separately from your SSI case. While technically they should consider all eligibility, in practice, they often don't unless you specifically apply. 3. Your application being stuck at Step 3 for 13 months is concerning. That's the medical review step, and it shouldn't take that long unless there's missing information or your case was misplaced. 4. Get a case status from your local office in person if possible. Phone representatives often can't see the detailed notes. Feel free to message me if you have specific questions about the CDB process. It's less common than regular disability, so even some SSA employees don't fully understand it.

Why would u even qualify for disability for kidney stones??? Plenty of people work with medical conditions. My sister has the same thing and works full time as a nurse!!! Not trying to be rude just saying maybe thats why ur getting denied.

I went through a similar nightmare with my SSDI case a few years ago. After waiting 16 months with no movement, I discovered Claimyr.com which helped me actually reach a human at SSA who could give me real answers. Had my case been sitting in the wrong department for MONTHS! Their service got me through to an agent in 15 minutes when I'd been trying for weeks. They have a video that shows exactly how it works: https://youtu.be/Z-BRbJw3puU After getting through to someone who could actually see my full file, I found out they were missing medical records from one doctor that was preventing them from moving forward. Once I knew the specific issue, I was able to resolve it and my case started moving again. In your situation, I'd definitely recommend starting the CDB application ASAP while also following up on your pending case. Don't wait for one to resolve before trying the other path.

THE WHOLE SYSTEM IS DESIGNED TO MAKE YOU GIVE UP!!!! They KNOW most people will just stop trying after getting denied because were SICK and dont have the energy to fight!!!! Theyre COUNTING on you giving up!!! DONT LET THEM WIN!!!!

Just to clarify some information about Childhood Disability Benefits (CDB): 1. You can qualify under EITHER parent's record if they're receiving Social Security retirement/disability OR if they're deceased. 2. You need to prove your disability began before age 22, which sounds like you can do easily with your diagnosis at 13. 3. Unlike SSI, CDB has no income or resource limits. The financial status of your household won't affect eligibility. 4. The benefit amount is based on your parent's Social Security record (generally 50% if they're alive, 75% if deceased). 5. Most importantly: If you're applying based on your mother's record who is receiving SSDI, you should specifically request that they take a "protective filing date" back to when you first inquired about benefits. This could potentially get you some retroactive benefits. I'd recommend contacting your local field office directly rather than the general SSA number. The field offices often have more flexibility to help with complicated cases.

Hey there - I went through this exact process! So I have hereditary spastic paraplegia (diagnosed at 16) and my dad passed away when I was 19. I didn't know about CDB until I was 34! What finally worked for me: 1) I went IN PERSON to my local SSA office with ALL my medical records organized chronologically (original diagnosis through current) 2) I specifically requested to talk to someone familiar with CDB/DAC benefits (not everyone knows these well) 3) I brought a letter from my neurologist specifically stating my condition began before 22 and has prevented substantial gainful activity continuously since then 4) Here's what they don't tell you - you need to specifically fill out both the adult disability application AND form SSA-4-BK (Child's Benefits) My application was approved in about 4 months, which is lightning fast for disability. I think going in person with everything perfectly organized made all the difference. Good luck!