Am I eligible for any Social Security benefits at 54 with disabled husband (63) and minor children?
I need some guidance on potential Social Security benefits in our complicated family situation. My husband is 63 years old and has been receiving SSDI (disability) for almost a decade now. His monthly benefit isn't huge, but it keeps us afloat. I'm much younger at 54, still working part-time, and wondering if there's anything I might qualify for through his record? Our two youngest kids (16 and 14) currently receive auxiliary benefits as minor children of a disabled worker. I think they get around $425 each month. But I've never received anything myself, and honestly never thought to ask until a friend mentioned I might be eligible for something. Do spouses of disabled workers get anything even if they're under retirement age? Or do I need to wait until I'm 62? I'm especially concerned because when my husband reaches full retirement age, his disability will convert to regular retirement benefits. Will that change anything for our family? So confused about all these complicated rules!
16 comments
CaptainAwesome
Unfortunately, you won't qualify for spousal benefits until you reach age 62 (the earliest eligibility age for spouse benefits). The fact that your husband is on disability rather than retirement doesn't change this rule. Your children qualify because they're under 18, but there's no provision for younger spouses unless you're caring for a child under 16 or disabled who receives benefits on your husband's record. Since your youngest is 14, you're not eligible under the "caring for a young child" provision either. When your husband transitions from SSDI to regular retirement at his Full Retirement Age (probably 66 and some months), nothing will change for your benefit eligibility - you'll still need to wait until you're 62.
0 coins
Amara Okafor
•Thank you for explaining this. So even though I'm taking care of teenagers who get benefits, I don't qualify because they're over 16? That seems like such an odd cutoff. Do you know if there's any way to apply for an exception or hardship provision?
0 coins
Yuki Tanaka
my wife was in a similar situatin, she didnt qualify for anything until 62. its really annoying how they have these random age cutoffs when families need the money. i think its especially weird that the kids benefits contineu until 18 (or 19 if in school right?) but the caring parent benefit stops at 16. never made sense to me
0 coins
CaptainAwesome
•You're right about the seemingly inconsistent rules. Children's benefits continue until age 18 (or 19 if still in high school), but the provision for a caring parent only applies until the child turns 16. The logic behind this is that once a child reaches 16, the Social Security Administration assumes they don't require the same level of care/supervision, allowing the parent to work. Not saying I agree with it, but that's their rationale.
0 coins
Esmeralda Gómez
I was in EXACTLY your situation a few years back!!! My husband was on disability since his early 50s and I was 55 wondering the same thing. Unfortunately I had to wait until 62 to get ANYTHING from Social Security. It's really unfair because I had to reduce my work hours to help care for him (his disability got worse over time) but apparently the SSA doesn't consider that important enough. The system is BROKEN when it comes to supporting caregiving spouses!!!
0 coins
Amara Okafor
•That's exactly my concern. I've already reduced my hours because my husband needs more help now than when he first got disability. Did you find any other resources or programs that helped bridge the gap until you reached 62?
0 coins
Klaus Schmidt
You've received good information about the age requirements for spousal benefits. I'd like to add a few things to consider for your future planning: 1. When you do reach 62, you can apply for spousal benefits, but they'll be permanently reduced if taken before your Full Retirement Age (which is 67 for people born in 1970 or later). 2. If you've worked and earned enough credits on your own record, you might qualify for higher benefits on your own work record rather than as a spouse. 3. When your children turn 18 (or 19 if still in high school), their auxiliary benefits will stop. 4. Your husband's transition from SSDI to retirement at his FRA won't change the benefit amount - it's the same check, just from a different program. You might want to create a my Social Security account at ssa.gov to see your own earnings record and get estimates of future benefits based on your work history.
0 coins
Aisha Patel
•I work with families in similar situations, and I'd recommend also looking into state-level programs that might help. Many states have caregiver support programs or additional assistance for families with disabilities. You might qualify for these now, even though you don't yet qualify for SS benefits. Your local Area Agency on Aging or ADRC (Aging and Disability Resource Center) would be a good place to start.
0 coins
LilMama23
Anyone else spend HOURS trying to get someone on the phone at Social Security to ask these kinds of questions? I swear I tried calling for 3 days straight last month about my husband's disability review and never got through. So frustrating!
0 coins
Dmitri Volkov
•I had the same problem last year trying to sort out my widow's benefits. After getting disconnected four times and waiting on hold for nearly 2 hours once, I found this service called Claimyr that got me through to a real person at SSA in about 15 minutes. It was such a relief! They call SSA for you and then connect you when they reach a representative. Check out their site at claimyr.com - they even have a video showing how it works: https://youtu.be/Z-BRbJw3puU. Seriously saved my sanity during a really stressful time.
0 coins
Amara Okafor
Thank you all for the helpful responses. It's disappointing that I'll have to wait until 62, but at least I know where I stand now. I'm going to check out my own Social Security record online and also look into those state-level caregiver programs that were suggested. Does anyone know if my husband's benefit amount will change when he converts from disability to retirement? He's worried it might decrease. Also, will my children's benefits continue exactly the same after that conversion happens?
0 coins
CaptainAwesome
Your husband's benefit amount will stay exactly the same when he converts from SSDI to retirement benefits. It's essentially just an administrative change on SSA's end - different pot of money, same benefit amount. And yes, your children's benefits will continue unchanged until they age out at 18 (or 19 if still in high school). One thing to consider: if you've been working part-time all these years, you might have built up a decent work record of your own. When you reach 62, you should compare what you'd get as a spouse (max 50% of his PIA if you wait until your FRA) versus what you'd get on your own record. You'll automatically get whichever is higher.
0 coins
Yuki Tanaka
•this is why the whole system is so confusing!! why do they make you wait to 67 (or whatever your FRA is) to get the full 50% spousal benefit but the disabled person already gets their full benefit? and then theres that whole thing where if you take your own benefit early it affects your spousal benefit later but not the other way around? or did i get that backwards? so complicated...
0 coins
Aisha Patel
Just want to add that while you're waiting to reach age 62, it might be worth exploring if you qualify for the Medicare Savings Program if your family income is limited. This program can help pay Medicare premiums for your husband, which could free up some monthly income. Requirements vary by state, but it's worth checking into. Also, make sure your husband is receiving all the benefits he's entitled to. Sometimes people on SSDI don't realize they might also qualify for SSI if their SSDI payment is low enough and they meet the resource limits.
0 coins
Amara Okafor
•I hadn't thought about the Medicare Savings Program! My husband does have Medicare, and the premium definitely takes a chunk out of his monthly check. We'll look into that right away. I don't think he'd qualify for SSI though - his SSDI is about $1,850 monthly which is probably too high for SSI, right?
0 coins
Klaus Schmidt
You're correct - at $1,850/month SSDI, your husband wouldn't qualify for SSI as that exceeds the federal benefit rate. However, definitely check out the Medicare Savings Program (MSP) options. Depending on your total family income and resources, you might qualify for one of the MSP levels that could pay his Part B premium ($174.70 in 2023), which would put that money back in your pocket each month. Also, when your children age out of their benefits, that will be a significant reduction in household income. Start planning for that transition now, especially if your 16-year-old will be heading to college.
0 coins