Social Security Administration

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Ask the community...

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Mason, I'm really glad you found this community and are getting such helpful advice! As someone who went through a similar situation last year, I want to emphasize something that really helped me: when you're filling out the SSDI application, don't just focus on the medical diagnosis (or lack thereof) - focus heavily on your functional limitations. The fact that your legs give out without warning and you can't walk reliably is EXACTLY what they need to understand. Be very specific about how this affects your daily activities - can you stand for more than 10 minutes? Walk more than a block? Carry groceries? Navigate stairs safely? These functional details often matter more than having a specific diagnosis. Also, if you have any witnesses to your falls or mobility issues (coworkers, family, neighbors), ask them to write brief statements describing what they've observed. Third-party observations can be really valuable supporting evidence. You're doing the right thing by not waiting any longer. The retirement benefits will give you that crucial financial lifeline while you build your disability case. Keep us posted on how the applications go - this community is here to support you through the process!

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This is such valuable advice about focusing on functional limitations! I've been so worried about not having a clear diagnosis, but you're absolutely right that what matters is documenting how my condition actually impacts my ability to work and live day-to-day. I hadn't thought about getting witness statements, but my neighbor has actually helped me after a couple of falls in my driveway, and my former supervisor saw me struggling with mobility issues during my last weeks at work. I'll reach out to them about writing brief statements. Thank you for emphasizing the importance of being specific about functional limitations - I'll make sure to detail exactly how far I can walk, how long I can stand, and all the daily activities that have become impossible or dangerous for me. This gives me a much clearer framework for how to approach the SSDI application once I get my retirement benefits started.

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I just wanted to add my support and share something that might help with the application process. When I applied for both retirement and SSDI benefits, I found it extremely helpful to create a timeline document before starting either application. I listed out: - Exact date symptoms began affecting work performance - Date I last worked - All medical appointments with dates and providers - Any workplace accommodations I tried - Specific incidents (falls, inability to complete tasks, etc.) Having this timeline made filling out both applications much faster and more accurate. For the SSDI application especially, they ask for very detailed information about your work history and medical treatment, and it's easy to forget dates when you're stressed and in pain. Also, I want to reinforce what others have said about applying online if you're able. The online retirement application took me about 45 minutes and I got confirmation immediately. For SSDI, the online application is longer (plan for 2-3 hours) but you can save your progress and come back to it if you get tired. Mason, you're making the smart choice by getting the retirement benefits started right away. That income will be a huge relief while you work through the SSDI process. Hang in there!

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This timeline idea is brilliant! I've been feeling so overwhelmed trying to remember all the dates and details, but organizing everything chronologically first makes so much sense. I'm going to start working on that timeline today while I'm waiting for my retirement application to process. Having everything laid out clearly will definitely make the SSDI application less daunting when I get to that step. Thank you for sharing such a practical approach - it's exactly the kind of organizational strategy I need right now when my brain feels scattered from stress and pain.

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I'm so sorry for your brother-in-law's loss. Losing a spouse is devastating, and dealing with financial stress on top of grief is incredibly difficult. Just to add one more perspective to the excellent advice already given - your brother-in-law might want to consider meeting with a fee-only financial planner who specializes in Social Security claiming strategies. Given the complexity of his situation (the earnings test, potential permanent reduction from early filing, comparing survivor benefits to his own future retirement benefit), having a professional run the numbers could be worth the consultation fee. Also, regarding those medical bills - he should look into whether any qualify for charity care or payment plans through the hospital's financial assistance programs. Many people don't realize hospitals are required to offer these programs, and they can significantly reduce the burden while he figures out the best Social Security strategy. The community here has given him a solid roadmap, but professional guidance could help him make the most informed decision for his specific circumstances.

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This is really thoughtful advice about getting professional help - I hadn't considered that option. Do you know if there are any resources for finding fee-only planners who specifically know Social Security rules? I imagine not all financial planners are equally knowledgeable about survivor benefits and these complex claiming strategies. And thanks for mentioning the hospital charity care programs - that's something we definitely need to look into right away since those bills are really overwhelming him right now.

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I'm really sorry for your family's loss. This is such a difficult time to have to navigate these complex decisions. One thing I want to emphasize that others have touched on - the earnings test isn't necessarily a complete loss. Any benefits that get withheld due to the earnings test before Full Retirement Age will result in a recalculation at FRA that increases his monthly benefit going forward. So while he won't receive those payments now, it's not like that money completely disappears. Also, given that he's 61 and his FRA is likely 67, that's 6 years of potential survivor benefits he'd be giving up by waiting. Even with the earnings test reducing payments significantly, there might still be some monthly amount he'd receive. Sometimes getting even a reduced benefit can help with cash flow during a crisis. My suggestion would be to have him contact SSA (or use that Claimyr service someone mentioned to actually get through) to get the exact numbers for his situation. They can tell him: - What his monthly survivor benefit would be at 61 vs 67 - Exactly how much would be withheld due to his current earnings - How his own retirement benefit at 70 compares to the survivor benefit With those concrete numbers, he can make an informed decision about whether the reduced amount he'd actually receive now is worth it for his financial situation, or if waiting makes more sense long-term.

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One important detail I forgot to mention: if you apply for the divorced spouse benefit, make sure you specify you're applying for the "divorced spouse benefit" and not trying to file on your own record again. Sometimes the intake people get confused when you're already receiving SSDI and try to tell you that you've already filed. Be specific that you're filing for the additional benefit based on your ex-spouse's record.

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This is really helpful advice - I wouldn't have known to be specific about that. I'll make sure to use those exact words when I apply. Thank you!

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Just wanted to add something that might help with your decision - you can actually request a benefit estimate from SSA before formally applying. This way you'll know exactly what you'd be eligible for on your ex-husband's record versus your current SSDI amount. I did this when I was considering spousal benefits and it saved me from going through the whole application process only to find out I wouldn't get any additional money. The estimate request is much faster than a full application and will give you the concrete numbers you need to decide if it's worth pursuing.

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This is exactly what I needed to hear! I had no idea I could get an estimate first. That would definitely save me a lot of stress and uncertainty. Do you know if I can request this estimate online or do I need to call? With my chronic pain from the workplace injury, anything I can do online would be so much easier than phone calls.

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Social Security earnings record missing 25+ years at family business - can I fix this before FRA?

I'm panicking as I approach my full retirement age and discovered something shocking in my Social Security earnings history. I worked at our family business for nearly 30 years, but I'm only showing ONE YEAR of earnings (1997) on my Social Security record! My ex-husband apparently removed me from the payroll after that year without my knowledge. The missing earnings are substantial - we're talking about $45,000-65,000 annually that should've been credited to my SS record. Based on my current calculation, adding those earnings would more than DOUBLE my monthly benefit. I have almost no documentation since he handled all the business finances. I did manage to get a copy of his earnings history during our divorce proceedings (which was extremely contentious - ended up winning a restraining order against him). We were married for 31 years, but I can't claim spousal benefits because he stopped paying into Social Security years ago for reasons I still don't understand. I've already talked to an attorney who wasn't encouraging. I have a phone interview scheduled with SSA next week, but I'm not sure what to say or what proof they'll need. I have no 401k or substantial savings, so this retirement benefit is literally all I'll have to live on. Has anyone successfully corrected their earnings record for a situation like this? Is there any hope? Or should I just accept the lower amount and try to move on?

I'm so sorry you're facing this situation - it's truly shocking that someone could remove you from payroll without your knowledge after decades of work. One avenue that hasn't been mentioned yet is checking with your state's Workers' Compensation board or Unemployment Insurance office. These agencies sometimes maintain employment records that are separate from what SSA has, and they might show you as an employee during those missing years. Also, if your family business had any contracts, licenses, or permits during that time period, try to get copies. Sometimes these documents list all the people authorized to act on behalf of the business, which could help establish your role. For the SSA interview, I'd suggest asking specifically about the "good cause" exceptions to the normal time limits for correcting earnings records. Given that your removal from payroll was done without your knowledge, this could potentially qualify as fraud or manifest injustice. One more thought - if you had any business insurance policies (liability, property, etc.) during those years, the applications often list all the business owners or key employees. Insurance companies keep records for a long time, so it might be worth checking with your old insurance agent. Don't lose hope. Even if it's an uphill battle, the potential impact on your retirement security makes it worth fighting for every possible avenue.

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These are excellent suggestions about checking with Workers' Comp and Unemployment Insurance offices! I never would have thought of those agencies having separate employment records. The insurance angle is really smart too - we definitely had business liability insurance, and I remember having to sign paperwork for it multiple times over the years. If those applications show me as a business owner or key employee, that could be huge for establishing my role during the missing years. I'm going to add all of these to my list of things to research before my SSA call. It's overwhelming but also encouraging to know there might be multiple paper trails out there that I haven't thought of yet. Thank you for taking the time to think through all these possibilities - it means so much to have people who understand how important this is for my future.

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I'm heartbroken reading your story - this is such an unconscionable betrayal by someone who was supposed to protect your interests. The fact that you discovered this so close to retirement makes it even more devastating. One thing that might help your case is requesting your complete SSA file through a Freedom of Information Act (FOIA) request. Sometimes there are internal notes or correspondence that could shed light on when/how your earnings record was modified. You can file this online at ssa.gov. Also, have you considered checking with your local Small Business Administration (SBA) office? If your family business ever applied for any SBA loans or programs, those applications often require detailed information about all business owners and key employees. The SBA keeps extensive records that could help establish your role in the company. Another avenue: if you filed any business tax returns jointly (Form 1065 partnerships or 1120S S-corp returns), the IRS should have copies going back many years. These returns often show profit/loss distributions to partners or shareholders, which could help prove your ownership stake even if payroll records are missing. The "fraud or manifest injustice" exception that others mentioned is real - the key is building a compelling case with whatever documentation you can gather. Your ex's deliberate removal of you from payroll without your knowledge during a marriage could absolutely qualify as fraud. Don't let anyone tell you this is hopeless. Thirty years of work deserves to be recognized in your Social Security record.

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I think ur overthinking this tbh. as long as ur daughters checks keep coming its fine

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You're probably right. I just panic about anything that might affect her benefits!

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I understand your concern about the genetic carrier status! As someone who's dealt with similar genetic testing situations, I can share that being a Fragile X carrier typically doesn't meet SSA's disability criteria unless there are actual functional impairments. Many carriers of genetic conditions live completely normal lives without any symptoms that would affect their ability to work. SSA's disability determination is based on whether someone can perform "substantial gainful activity" - if your husband is working and functioning normally, the carrier status alone wouldn't qualify him as disabled under their definitions. The labeling on your daughter's paperwork was most likely either a clerical error or an internal coding issue related to family medical history tracking. You were right to correct it initially. If you're still concerned, a quick follow-up call to clarify the genetic carrier distinction might give you peace of mind, but it shouldn't impact your daughter's benefits since her own disability determination is separate from household member classifications.

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This is really helpful, thank you! I think you've captured exactly what I was worried about. The distinction between being a genetic carrier versus having functional impairments that affect work ability makes perfect sense. I feel much better knowing that the carrier status alone wouldn't meet their disability criteria. I might still make that follow-up call just to be absolutely sure, but at least now I understand the difference and won't panic about potentially affecting my daughter's benefits.

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