Social Security survivor benefits reducing my son's SSI - barely any increase overall? Need NY guidelines help
I'm totally confused about how SSI and survivor benefits work together in NY state. My daughter (6) has autism and gets SSI benefits of $1215/month due to her disability. Her father unexpectedly passed away in September, and now she's eligible for survivor benefits of about $875/month according to the SSA. Here's where I'm getting frustrated: The first SSA rep told me she'd get BOTH payments in full since the survivor benefits are less than her SSI and she has no earned income. But when I called back to check on the backpay timing, a different rep said her SSI would be reduced and she'd only end up with about $30-35 extra per month total! This makes ZERO sense to me! Why would they basically cancel each other out? My SSA account shows both payments scheduled for December ($1215 and $875), but I haven't received any backpay while I know for a fact her half-siblings from her dad's previous marriage already got theirs. Can someone explain the NY rules on this? The phone reps keep telling me different things and I'm at my wit's end trying to plan financially for her needs.
19 comments


Lara Woods
This is a common source of confusion, but I can explain how it works. Social Security survivor benefits are considered "unearned income" for SSI purposes. SSI is needs-based, so when your daughter receives survivor benefits, her SSI is reduced. The formula is roughly: SSI amount - (unearned income - $20 general exclusion) = new SSI payment So in your case: $1215 - ($875 - $20) = $1215 - $855 = $360 remaining SSI Then $360 + $875 = $1235 total monthly benefits, which is only about $20 more than before. This is standard across all states, though NY does have a state supplement for SSI that might add a bit more.
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Oliver Alexander
•Thank you for explaining this! So I guess the first rep was completely wrong then? It just seems so unfair that she barely gets any more money even though her dad worked his whole life and paid into the system. Is there any way to appeal this or ask for a different calculation?
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Adrian Hughes
Same thing happened with my nephew. It's a terrible system that basically punishes disabled children who lose a parent. My sister-in-law spent MONTHS fighting with SSA about this exact situation. The backpay issue is a separate problem though. Call them again specifically about the backpay - it should be calculated from the date of death and they often process it separately from the monthly payments. But be prepared to wait on hold FOREVER or get disconnected multiple times.
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Oliver Alexander
•It really does feel like punishment! Did your sister-in-law ever get anywhere with her fight? I'm worried about the backpay too because it should be substantial (3+ months now), and I need it for some medical equipment insurance won't fully cover.
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Molly Chambers
have u tried Claimyr? i was in a similar spot trying to reach ssa for my kids benefits after their mom died and kept getting disconnected. Claimyr connected me with an actual person at SSA in like 20 mins instead of waiting for hours. website is claimyr.com and they have a video showing how it works https://youtu.be/Z-BRbJw3puU for the benefits question, yea unfortunately thats how it works with ssi and survivors. its frustrating but thats the system
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Oliver Alexander
•I've never heard of Claimyr before! I'll definitely check it out because I'm so tired of being on hold for hours only to get disconnected. I need to talk to someone who can actually explain my specific situation and the backpay issue. Thanks for the suggestion!
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Ian Armstrong
The first representative gave you incorrect information, unfortunately. SSI and survivors benefits DO offset each other as the first commenter explained. Regarding the backpay: Survivor benefits and SSI backpay are processed separately and often on different timeframes. The SSA typically releases survivor benefit backpay faster than they adjust the SSI. This means you might see the survivor backpay first, then a notice about reduced SSI, and potentially even an overpayment notice if they paid full SSI during months when your daughter was also receiving survivor benefits. I would recommend documenting every conversation with the SSA (date, time, rep name if possible, and what was discussed). This will help if you need to request a waiver for any overpayment they might claim later.
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Oliver Alexander
•Oh no, I hadn't even thought about the possibility of an overpayment notice! That would be a nightmare. I'll definitely start documenting everything. Do you know if I can request that they hold off on any SSI reduction until they figure out the backpay situation? I'm worried they'll reduce the SSI before I get the survivor backpay.
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Eli Butler
my son gets both too but we only get like $40 more total its so stupid!!! they act like its this big benefit but its basically nothing extra and SO MUCH paperwork and phone calls and stress. the system is broken!!
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Oliver Alexander
•Exactly!! All this stress and confusion for what amounts to basically nothing extra! And meanwhile I'm trying to manage my daughter's medical appointments and therapies while figuring all this out. It's overwhelming.
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Marcus Patterson
This gets even more complicated due to something called "retrospective monthly accounting" (RMA) that SSA uses for SSI. They base each month's SSI payment on income from two months prior. So when survivor benefits start, there's usually a 2-month lag before SSI decreases. For the backpay: SSA is processing survivor claims very slowly right now due to staffing issues. Half-siblings might get processed at different times depending on which field office handles each case. Different offices work at different speeds. The most important thing is to set aside any survivor backpay you receive for your daughter in a separate account. This is because if it pushes her resources over $2,000 in a month, she could lose SSI eligibility. However, you have 9 months to spend down survivor benefits backpay before it counts toward the resource limit.
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Lydia Bailey
•This is really good advice about keeping the backpay separate! My cousin didn't do this when her kid got backpay and they lost benefits for 3 months until they spent it down. Such a headache! Also OP you might want to look into an ABLE account to save some of the money without affecting benefits.
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Molly Chambers
wait do the half siblings have different moms? maybe thats why they got backpay first, different claims specialists handling different families?
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Oliver Alexander
•Yes, they have a different mom and live in a different county. That's a good point - maybe it's just different offices processing things at different speeds. I just worry something is wrong with our claim specifically.
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Adrian Hughes
YOUR DAUGHTER IS ENTITLED TO THOSE SURVIVOR BENEFITS!! The government makes these programs SO COMPLICATED ON PURPOSE to discourage people from claiming what they're owed!! The SSA reps themselves don't even understand their own rules half the time - I got 4 different answers from 4 different people when dealing with my son's benefits. BACKPAY IS ALWAYS A MESS - sometimes it comes in chunks, sometimes all at once, sometimes it's direct deposited, sometimes they mail a check. NO RHYME OR REASON!!
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Ian Armstrong
•While I understand your frustration, it's important to note that the offset between SSI and survivor benefits is working as designed by law. SSI is meant to be a program of last resort, so almost all other income reduces it. The confusion comes from SSA representatives sometimes providing incorrect information, which is unfortunately common with complex cases.
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Lara Woods
One more thing to consider: While your daughter's total monthly benefit only increases slightly, there are some potential advantages to receiving survivor benefits: First, survivor benefits don't have the same strict disability reviews as SSI, so that's one less thing to worry about in the future. Second, survivor benefits typically have fewer reporting requirements than SSI. Third, survivor benefits have no resource limits, so your daughter could potentially have over $2,000 in savings (though this would affect the SSI portion). Lastly, if your daughter's condition improves to the point where she no longer qualifies as disabled for SSI, she could still receive survivor benefits until age 18 (or 19 if still in high school).
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Oliver Alexander
•Those are really good points I hadn't considered. The disability reviews for SSI are so stressful, so having part of her benefits more secure is definitely a plus. And I didn't realize survivor benefits continue regardless of disability status - that's actually a big relief. Thank you for highlighting these advantages!
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Miles Hammonds
I'm so sorry for your loss and the confusion you're dealing with during an already difficult time. As others have explained, the offset is unfortunately how the system works, but I wanted to add a few practical tips that helped me when I went through something similar: 1. Request a written explanation from SSA detailing exactly how they calculated your daughter's benefits - having it in writing helps avoid the conflicting verbal information you've been getting. 2. For the backpay delay, ask specifically about "interim assistance" - sometimes they can provide partial payments while sorting out the full calculation. 3. Keep calling about the backpay every 2-3 weeks. I found that different reps had access to different information, and persistence eventually got results. 4. Consider contacting your local SSA field office directly rather than just the main phone line - they often have more detailed case information. The system is frustrating, but you're advocating well for your daughter. Don't give up on getting the backpay sorted out - it's rightfully hers.
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