Social Security sent me a work review letter - Do I need to respond or risk losing benefits?
Just got a letter from the Wilkes Barre Data Operations Center asking for "updated information about work to make sure we pay you the right amount of social security benefits." I've been on SSDI for about 3 years after my car accident, and I did some very part-time volunteer work helping at my kid's school last month (maybe 10 hours total?). I didn't think I needed to report that since I wasn't paid. Could that have triggered this? Do I HAVE to respond to this letter? I'm terrified they're going to cut my benefits - we can't survive without them. Has anyone else gotten one of these work review letters? What happens if I ignore it?
20 comments
Amina Toure
These work review letters are standard procedure for the SSA to periodically verify your situation hasn't changed. You absolutely should respond to it - ignoring it could lead to payment interruptions. Even though your volunteer work was unpaid, it's good they're checking because any work activity (paid or unpaid) can potentially affect SSDI eligibility depending on skill level and hours. Complete all the forms they sent with accurate details about your volunteer work, emphasizing it was unpaid and limited. If possible, include documentation from the school confirming the hours and nature of what you did. The fact you only did 10 hours total is well below SGA (Substantial Gainful Activity) levels, so you should be fine.
0 coins
Paolo Ricci
•Thank you so much. I didn't realize I needed to report volunteer work too! The letter came with a form asking about employers and income, but there's no place to explain unpaid volunteer work. Should I just write this in the margins or attach a separate letter explaining? I'm so afraid of doing this wrong.
0 coins
Oliver Zimmermann
Omg I got the exact same letter last year and PANICKED!!! I was literally like shaking when I opened it. But turned out it was just a routine check. They do this randomly to make sure nobody's secretly working while collecting. Just fill out the forms honestly and you'll be fine.
0 coins
Paolo Ricci
•That makes me feel a little better. Did you have to do anything after sending in the forms? Did they follow up or just accept what you sent them?
0 coins
Oliver Zimmermann
•They just sent me a letter like 6 weeks later that said everything was fine and my benefits would continue unchanged. Wasn't a big deal at all once I actually did it!
0 coins
Natasha Volkova
DONT IGNORE IT!!!!! My cousin ignored one of these and they SUSPENDED his benefits for 3 months until he finally responded with the info they wanted!!! The SSA doesn't play around with these things. They can and will cut you off if you don't respond. And getting benefits reinstated is 100X harder than just filling out their stupid form.
0 coins
Javier Torres
These work review letters from the Wilkes-Barre Data Operations Center are part of SSA's Continuing Disability Review (CDR) process. For SSDI recipients, these reviews happen periodically - typically every 3 years for conditions that might improve, or every 7 years for permanent conditions. Regarding your volunteer work: While true that volunteer work doesn't generate income, SSA does consider your ability to perform tasks as potentially relevant to your disability status. However, 10 hours of volunteer work over a month is unlikely to trigger benefit termination. On the form, there should be a section for "remarks" or "additional information" where you can explain the volunteer situation. If there isn't one, include a separate sheet with your SSN at the top explaining: - The volunteer nature of the activity - The limited hours (10 total) - Any accommodations you required to perform this work - Whether the activity caused pain or difficulties related to your disability Complete honesty is crucial here. The form is legally binding, and providing false information could create serious problems later.
0 coins
Paolo Ricci
•Thank you so much for the detailed explanation! There is a small "remarks" section that I didn't notice before. I'll definitely explain everything clearly there and be 100% honest about the volunteer work.
0 coins
Emma Davis
I've had to deal with those annoying SSA work reviews too. Been trying to reach someone at Social Security to understand if my situation would trigger a review, and kept getting disconnected after waiting for hours. Then I found this service called Claimyr that basically gets you through to a live SSA agent without the endless hold times. You can see how it works at https://youtu.be/Z-BRbJw3puU - totally changed my experience dealing with Social Security phone lines. Once I actually spoke with an agent, they explained exactly what I needed to submit and why, which made everything way less stressful.
0 coins
CosmicCaptain
•is this a real thing? sounds to good to be true tbh. social security phone lines are literally the worst thing ever invented
0 coins
Emma Davis
•Yes, it's legitimate. I was skeptical too but I was desperate after trying for three days to get through. The service basically navigates SSA's phone system and waits in the queue for you, then calls you when they reach an agent. Saved me hours of frustration and actually helped me resolve my issue.
0 coins
Malik Johnson
ok so im gonna disagree with everyone here a little bit. these letters ARE routine but they ALSO use them to try and catch people and cut benefits. my brother got one last year and he was doing some cash handyman work on the side that he never reported. they somehow found out and reduced his payment by like $450/month!!! they said he exceeded the SGA limit or something. so be SUPER careful what you put on that form.
0 coins
Javier Torres
•To clarify an important point: What happened to your brother isn't the same situation as the original poster's. Your brother was doing paid work that exceeded the Substantial Gainful Activity (SGA) threshold ($1,470/month in 2025 for non-blind individuals) and not reporting it, which is actually benefit fraud. The original poster did 10 hours of unpaid volunteer work, which is completely different. Voluntary work generally doesn't count toward SGA unless it demonstrates an ability to perform substantial work that could be done for pay. 10 hours of school volunteering over a month is well below any threshold that would impact benefits. It's crucial for SSDI recipients to understand the differences between these situations to avoid unnecessary anxiety.
0 coins
Isabella Ferreira
I had to deal with something similar a few months back. The key is responding quickly and thoroughly. Here's what worked for me: 1. Make copies of EVERYTHING before sending it in 2. Send your response via certified mail so you have proof they received it 3. Call the number on the letter to confirm they received your response (this is where I got stuck in endless phone trees) 4. If you have a MySSA online account, check it regularly for updates For your volunteer work, definitely disclose it but make it very clear it was unpaid and minimal hours. The threshold that matters is Substantial Gainful Activity (SGA), and occasional volunteer work is almost never considered SGA unless it's essentially full-time volunteering.
0 coins
Paolo Ricci
•Thank you for the practical advice! I didn't think about making copies, but that makes complete sense. I also have a MySSA account so I'll keep checking that for updates after I send everything.
0 coins
Oliver Zimmermann
Just wondering - does the letter say anything about a deadline to respond? Some of these have like a 10-day window and others give you 30 days. Don't miss whatever deadline they gave you!
0 coins
Paolo Ricci
•Yes! It says I have 15 days from the date of the letter to respond. The letter is dated March 15, so I need to get this in ASAP. I'm going to fill everything out tonight and mail it tomorrow morning.
0 coins
Amina Toure
One more thing that's important - if your medical condition has changed at all since your last review, be prepared for them to possibly request medical records too. These work reviews sometimes trigger medical reviews, especially if it's been close to that 3-year mark since your initial approval or last review. Make sure your doctors are up to date with documenting your ongoing conditions.
0 coins
Paolo Ricci
Thank you everyone for the helpful advice! I've filled out the form, explained my volunteer work in the remarks section, and I'm mailing it certified tomorrow morning. I'll update this thread after I hear back from SSA. Fingers crossed this is just routine and my benefits continue without any issues.
0 coins
Malik Johnson
•good luck! the waiting is the worst part honestly
0 coins