Social Security retirement timing with a special needs child - work limits vs filing at 65
I'm trying to navigate retirement planning with our family's unique situation. I'm 54, my wife is 49, and we have an 8-year-old with special needs who requires consistent health insurance coverage. I'd really like to retire at 65 (in about 10 years), but I'm concerned about whether this timing makes financial sense for Social Security benefits. Working until 70 seems completely unbearable at this point, but I also want to make smart decisions for our family's security. What retirement age would maximize my benefits while balancing our need for income? And how much could I work after claiming without penalties? With my child's ongoing needs, I'm wondering if there are any special provisions I should know about. Any advice from those who've navigated SS with special needs dependents would be especially helpful!
24 comments


Sara Unger
Hey there! Your situation definitely has some unique considerations. A few thoughts: 1) If you retire at 65, you'll get about 93.3% of your full retirement benefit (your Full Retirement Age is 67 for those born in 1970). 2) IMPORTANT: Your 8-year-old may qualify for benefits on your record when you claim! Children with disabilities can receive benefits if they were disabled before age 22. 3) The earnings limit for 2025 if you claim before your FRA is $22,450 (estimated). Earn over that and SSA withholds $1 for every $2 above the limit. You should definitely speak with an SSA rep about the childhood disability benefits - this could be significant for your planning.
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Tyler Murphy
•I had no idea my child might qualify for benefits on my record! That could be a game-changer for our planning. Do you know if there's a specific name for this type of benefit I should ask about when I call SSA?
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Butch Sledgehammer
My brother takes SS at 65 and still works part time. He says just dont make too much $$ and youll be fine. also check if your kid can get SSI now maybe?? my niece got that for downs
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Freya Ross
•There's a big difference between SSI and benefits a child can receive on a parent's record! SSI is needs-based with strict income and asset limits. Children's benefits on a parent's record are different - they can get up to 50% of a parent's full benefit amount when the parent claims retirement. And special needs children can continue receiving these benefits into adulthood if they were disabled before age 22. Important to know the distinction!
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Leslie Parker
I'm in a similar situation with a special needs son (he's 15) and I spent HOURS researching this. Here's what you NEED to know: - Your child can get benefits on YOUR record once you file for retirement, even if they're an adult, IF their disability began before 22 - These are called "Childhood Disability Benefits" (CDB) or sometimes "Disabled Adult Child" benefits - When you file at 65, you'll get reduced benefits (about 13.3% reduction from your FRA amount) - The earnings test until you reach FRA (67) is brutal! In 2025, if you earn over $22,450, they take $1 for every $2 above - BUT once you hit FRA, there's NO earnings limit! Also remember Medicare starts at 65 regardless of when you take SS benefits. I decided to file at 67 (my FRA) because of the earnings test, but everyone's situation is different.
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Sergio Neal
•this is why i hate the SS system so complicated no one understands it!! and then u call and wait 3 hrs and get a diff answer every time
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Savanna Franklin
Have you calculated how much your SS check would be at different ages? Many people don't realize how MUCH MONEY they lose by filing early! I filed at 65 and regret it SO MUCH now. The SS office never explained to me that I'd be losing so much money EVERY MONTH FOR THE REST OF MY LIFE! If I could go back in time I would have kept working those extra 2 years.
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Tyler Murphy
•That's exactly my concern! I don't want to shortchange myself, but at the same time, I'm already feeling burnout from my job and can't imagine pushing to 67 or 70. Have you used the calculators on the SSA website? Are they pretty accurate?
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Juan Moreno
I think you should really consider health insurance costs too. You'll get Medicare at 65, but what about your wife (she'll only be 60) and your child? That gap in coverage could be expensive unless you have other options.
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Sara Unger
•Great point! OP, your child might qualify for Medicaid based on disability regardless of your income, depending on your state. And your wife would need to bridge that gap until she reaches Medicare age. This is definitely something to factor into your retirement timing.
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Freya Ross
This is going to sound self-serving because I work in benefits planning, but please PLEASE speak with a professional BEFORE making this decision. So many factors to consider: 1. Your PIA (Primary Insurance Amount) at FRA vs reduced amount at 65 2. Child's potential benefits on your record (could be substantial) 3. Spousal benefits for your wife when she's eligible 4. Earnings test implications if you continue working 5. Healthcare coverage for your family members One thing to note: after you reach FRA, SSA will recalculate your benefit and give you credit for any months they withheld benefits due to the earnings test. Many people don't realize this part!
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Tyler Murphy
•I didn't know they recalculated after FRA! That's helpful. Do you have any recommendations for finding a good benefits planner? Our financial advisor seems to have only very general knowledge about Social Security.
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Sara Unger
By the way, I had a horrible time trying to get through to SSA when I was planning my retirement. Called for weeks and kept getting disconnected. Finally used a service called Claimyr (claimyr.com) that got me connected to an agent in about 20 minutes instead of waiting on hold for hours. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Totally worth it for something this important - you really need to speak with SSA directly about your child's potential benefits. These questions are too specific for general advice.
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Tyler Murphy
•Thanks for the tip! I'll check it out. I tried calling SSA last month about something else and gave up after being on hold for an hour and a half. Definitely need to talk to someone about these specific questions.
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Butch Sledgehammer
my cousin works part time after taking SS at 66 and says its fine no problems with his checks
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Leslie Parker
•That's because at 66, your cousin is likely past his Full Retirement Age (depending on birth year). After FRA, there's no earnings limit - you can make any amount without penalty. But before FRA, the earnings test applies, which is what the original poster needs to be concerned about if filing at 65.
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Sergio Neal
OP did you create a my social security account yet? you can see ur exact benefit amounts at diff ages there. that helped me alot
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Tyler Murphy
•I did set up an account last year but haven't logged in recently. Good reminder to check the current estimates. Thanks!
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Juan Moreno
Wanted to share my experience - I retired at 65 with a special needs adult daughter. The childhood disability benefits she receives on my record have been LIFE-CHANGING for our family. Don't overlook this! The monthly amount she gets is tied to my benefit amount though, so that's something to consider when deciding when to file.
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Tyler Murphy
•That's really encouraging to hear! If you don't mind sharing, was the application process difficult for getting your daughter approved for the childhood disability benefits?
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Sara Unger
One more important consideration: if your child qualifies for benefits on your record, they would receive up to 50% of your PIA (your full retirement age amount) even if you file early. However, there's something called the "family maximum" that limits the total amount your family can receive on your record (typically 150-180% of your PIA). So, maximizing your own benefit could potentially increase what your child receives too. Regarding working while collecting: I'd recommend sitting down and calculating exactly how much you plan to earn after claiming benefits. If it's significantly over the earnings limit, it might make sense to wait until your FRA to avoid the penalty.
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Freya Ross
•This is exactly right. The family maximum is a critical consideration here. One strategy some people use is to file a restricted application for just the child's benefits while the worker delays their own retirement filing to increase their benefit amount. However, this option was largely eliminated by legislation except for certain people born before 1954, so it wouldn't apply in OP's case.
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Savanna Franklin
I KNOW YOU DON'T WANT TO HEAR THIS but waiting until 70 would give you 24% MORE than filing at 67 (your FRA). That's a PERMANENT increase for life! I filed at 67 and now at 75 I'm watching my friend who waited collect WAY MORE every month. It's hard to work longer but the math doesn't lie.
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Sergio Neal
•not everyone can keep working tho some jobs are too hard on the body
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