SSDI not enough for RN - risks of returning to work at 61 (desk job vs. ICU)?
After a 28-year nursing career, I've been on SSDI for about 18 months now (diabetic neuropathy made standing for 12-hour shifts impossible). I'm 61 and the monthly benefit of $2,450 just isn't cutting it with inflation and my son's college expenses. I'm seriously considering going back to work, but I'm terrified of losing my benefits if things don't work out. Has anyone successfully gone back to work while on SSDI? I'm debating between a part-time hospital admin position (25hrs/week) or taking a scaled-back ICU role (2 shifts/week). The ICU pays better but I'm worried about my physical limitations. What are the Trial Work Period rules exactly? How much can I earn before it impacts my SSDI? Will Medicare continue if I start working again? Any advice from nurses or healthcare workers who've navigated this would be especially appreciated.
18 comments


Sofía Rodríguez
I went through this exact situation last year. The good news is that SSA has the Trial Work Period (TWP) that lets you test your ability to work for 9 months while still receiving your full SSDI benefits regardless of how much you earn. For 2025, any month you earn over $1,110 counts as a TWP month. The 9 months don't have to be consecutive either - they can be spread over a 60-month period. After your TWP ends, you enter a 36-month Extended Period of Eligibility. During this time, you'll get benefits in months where your earnings are below Substantial Gainful Activity (SGA) - which is $1,550/month in 2025 for non-blind individuals. As for Medicare, you'll keep it for at least 93 months after your TWP ends, even if your SSDI benefits stop due to work activity. I'd recommend the desk job to start - it's easier to increase hours than to discover the ICU is too physically demanding after you've committed. Also, make sure to report ALL work activity to SSA!
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Mei-Ling Chen
•Thank you so much for this detailed explanation! The 9 non-consecutive months part is really helpful to know. Do you happen to know if they count gross income or net income for the $1,110 threshold? And would working 2 days a week in the ICU (about $1,400/month) immediately trigger my TWP to start?
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Aiden O'Connor
my sister went back 2 work after ssdi and they TOOK EVERYTHING away even tho she only worked part time!!!! be VERY CAREFULL the goverment does NOT want u 2 succeed they just want to cut u off!!!!
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Zoe Papadopoulos
•While I understand your frustration, this information isn't entirely accurate. SSDI has specific work incentives designed to help people return to work without immediately losing benefits. Your sister's situation may have involved specific circumstances or perhaps she wasn't aware of the reporting requirements. It's important to understand the Trial Work Period and Extended Period of Eligibility rules, which protect benefits during transition to work.
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Jamal Brown
As a fellow RN (retired now), I'd suggest starting with the desk job. ICU work is incredibly demanding even at 2 shifts/week. My neighbor tried returning to the ER after being on disability and lasted only 3 months - the physical toll was more than expected even though she felt ready. The admin role gives you more flexibility to increase hours if it goes well.
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Mei-Ling Chen
•Thanks for the nursing perspective! Did your neighbor have issues with her benefits when she had to stop working again? That's my biggest fear - that I'll try working, lose my benefits, and then be unable to continue working AND have to reapply for SSDI.
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Fatima Al-Rashid
I've been on SSDI for 4 years and just started working again 8 months ago. Here's what I learned: 1. SSA counts GROSS earnings toward the TWP threshold ($1,110 in 2025) 2. You MUST report your work activity to SSA (not just earnings but start dates, hours, job duties) 3. Keep ALL paystubs - you'll need them 4. Get a Benefits Planning Query (BPQY) from SSA before starting - it shows your current status 5. Expedited Reinstatement is available for 5 years if you need to stop working If you're making $2,450/month on SSDI, you probably had high lifetime earnings as an RN. The admin job is safer to start, but don't be afraid of the ICU if that's where your heart is. Just know your limits!
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Giovanni Rossi
•I tried calling SSA to get this BPQY thing you mentioned and sat on hold for HOURS before giving up. Is there any way to actually speak to someone without wasting an entire day?
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Zoe Papadopoulos
In response to the question about reaching SSA - I used a service called Claimyr last month when I needed to discuss my return to work situation. It got me through to a live SSA agent in about 15 minutes instead of the usual hours-long wait. I watched their demo video first (https://youtu.be/Z-BRbJw3puU) to make sure it was legitimate. Their website is claimyr.com if you want to check it out. Definitely worth it for important benefit questions like yours where you really need to speak to someone directly.
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Giovanni Rossi
•Oh wow, I've never heard of this before. Does it work for any Social Security office or just certain ones? I'll definitely check out that video, thanks!
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Aaliyah Jackson
The rules for SSDI & work are confusing but you actually have LOTS of protections. Since your benefit is $2,450/mo, your ICU wages might push you over SGA limits faster than you think. But remember: - During TWP you keep full benefits NO MATTER WHAT you earn - After TWP, during EPE, you only lose benefits in months you earn over SGA - If you stop working within 5 years because of your condition, Expedited Reinstatement means you don't have to reapply Another option: The SSA has a Ticket to Work program with free benefits counseling. They can run calculations specific to your situation to show exactly how working would affect your benefits. Call 1-866-968-7842 for that service.
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Aiden O'Connor
•i tried ticket to work and it was USELESS!!! just another government program that CLAIMS to help but does NOTHING!!! waste of time dont bother!!!
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Jamal Brown
My daughter is a nurse and recently went back after disability. She made sure to set up direct deposit to a separate account for her work income so it's easier to track separately from her benefits. Just a practical tip!
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Mei-Ling Chen
•That's actually a brilliant idea. Would make it much easier to track and report earnings. How is your daughter managing physically with nursing work? That's my biggest concern.
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Fatima Al-Rashid
One thing nobody's mentioned: check with your state about Medicaid if you have it as a Medicare supplement. Work earnings might affect that before your SSDI. Also ask your employer if they offer health insurance - might be cheaper than Medicare premiums if you're working part-time.
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Sofía Rodríguez
•Great point about Medicaid. The income limits for Medicaid are typically much lower than the SGA threshold for SSDI. Depending on your state, you might lose Medicaid coverage while still being eligible for SSDI. Many states have Medicaid buy-in programs for workers with disabilities, but you need to apply specifically for those programs.
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Giovanni Rossi
I went back to work after 2 years on disability (not nursing, office work). The most important thing is DOCUMENT EVERYTHING!! Write down every call to SSA with date, time, who you spoke to, and what they said. I got conflicting info from 3 different SSA reps and the only way I protected myself was showing I'd followed the guidance I was given. Good luck!
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Haley Bennett
As someone who just went through the return-to-work process after being on SSDI for 3 years, I can't stress enough how important it is to get everything in writing from SSA before you start. I made the mistake of relying on verbal information from phone calls and ended up with a mess when my case worker changed. Here's what I wish I'd known: request a written confirmation of your TWP status before starting any job. If you've never used your TWP months, you're in a great position. The desk job sounds like the smart choice - you can always transition to more demanding work later if your health allows. One more tip: if you do go with the ICU position, consider asking for accommodations under ADA like supportive shoes, compression socks, or frequent breaks. Your employer might be willing to work with you, especially given the nursing shortage. Whatever you decide, don't let fear keep you from trying. The safety nets are there for a reason, and at 61 with your experience, you have valuable skills that shouldn't go to waste if you're able to use them.
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