SSDI calculation for 42-year-old with MS and two minor children - how much can we expect?
My brother-in-law (42) was recently diagnosed with Multiple Sclerosis and his condition has deteriorated quickly over the past 8 months. His neurologist is now suggesting he apply for SSDI as continuing to work full-time isn't realistic anymore. He has two kids (ages 7 and 10) and I'm trying to help him figure out what kind of benefits they might qualify for too. I've been reading about auxiliary benefits but honestly I'm totally confused about how SSA calculates everything. Does anyone know approximately what percentage of his income he might receive? He's been working steadily since college making around $68,000 annually the last few years. Also wondering if there's a minimum waiting period before his children would be eligible for benefits too? Any experiences or insights would be really appreciated!
16 comments
Keisha Taylor
His primary insurance amount (PIA) will be based on his lifetime earnings record with SSA, not just his recent salary. Each dependent child can receive up to 50% of his PIA, but there's a family maximum that caps the total amount all beneficiaries on his record can receive (usually 150-180% of his PIA). For the exact amount, he should create a my Social Security account and check his estimated benefits there. When I was trying to reach SSA about my own SSDI application, I used a service called Claimyr (claimyr.com) that actually got me through to an agent in about 20 minutes instead of waiting on hold for hours or getting disconnected. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU. Saved me a ton of frustration when I needed specific answers about my family benefits.
0 coins
Yara Khoury
•Thank you! He does have a my Social Security account but it just shows retirement estimates, not disability. Is that the same calculation? I'll definitely tell him about Claimyr - he tried calling SSA last week and gave up after being on hold for over an hour.
0 coins
StardustSeeker
my husband has MS to. it took almost 2 years to get approved and we had a lawyer!!! the kids benefits start same time as his does but you have to actually apply for them its not automatic. the wait time for kids is the same 5 months i think
0 coins
Yara Khoury
•Two years?? That's so discouraging. His doctor said his case would be fast-tracked because MS is on some kind of Compassionate Allowance list. Was your husband's condition severe right away or did it progress over time?
0 coins
Paolo Marino
As someone who works with SSDI claimants, I can provide some accurate information: 1) Your brother-in-law's SSDI benefit will be based on his average indexed monthly earnings over his working lifetime, not just recent years. At 42 with steady employment, his Primary Insurance Amount (PIA) might be around $2,300-2,700 monthly based on the salary you mentioned. 2) His children are eligible for auxiliary benefits up to 50% of his PIA each, but the family maximum will likely cap the total at 150-180% of his PIA. 3) There's a 5-month waiting period for SSDI benefits from onset date, but children's benefits would begin at the same time his benefits start. 4) Multiple Sclerosis is indeed on the Compassionate Allowance List, but only certain severe presentations qualify for expedited processing. His neurologist should document functional limitations thoroughly. 5) The decision timeline still varies widely - from 3 months to 2+ years depending on evidence quality and case complexity.
0 coins
Amina Bah
•Just to add - my sister has MS and got approved in 4 months back in 2023! Make sure his doctor SPECIFICALLY mentions Compassionate Allowance in the supporting documentation. That was the key for her quick approval.
0 coins
Oliver Becker
I'm confused about something - I thought SSI and SSDI were the same thing? Which one should he be applying for if he has minor kids? And does his wife's income matter for the calculation?
0 coins
Paolo Marino
•They're two different programs. SSDI (Social Security Disability Insurance) is based on work credits and earnings history - it's what your brother-in-law would apply for. His wife's income doesn't affect SSDI eligibility or payment amounts. SSI (Supplemental Security Income) is needs-based for people with limited income/resources. For SSI, household income would matter. For minor children of a disabled worker, they'd receive auxiliary benefits under his SSDI claim, not separate SSI.
0 coins
Natasha Petrova
The SSA's benefit calculation is INCREDIBLY complex. I spent hours trying to figure it out when my wife became disabled. Essentially: 1. SSA averages your 35 highest earning years (adjusted for inflation) 2. Applies a formula with bend points to calculate PIA 3. Each child can get up to 50% of the disabled worker's PIA 4. BUT there's a family maximum that limits total benefits Based on $68k salary and age 42, your brother-in-law might receive around $2,400-2,600 per month, and each child perhaps $1,200-1,300, BUT the family maximum might reduce those amounts. MS cases can be approved quickly IF the case is severe and well-documented. My wife's friend with MS was approved in 2 months, while another person I know took 18 months. The difference was in the medical documentation and severity.
0 coins
Javier Hernandez
•Wait wait wait - they average 35 years??? So does that mean they're counting years when he was a teenager with no income? That seems totally unfair for someone who's only 42!
0 coins
Paolo Marino
For disabled workers, SSA doesn't necessarily use 35 years - that's for retirement benefits. For SSDI, they use a calculation based on your working years from age 21 up to the year of disability, and they can exclude some low/no earning years. It's called the Disability Primary Insurance Amount calculation and works differently than retirement calculations. The formula essentially gives you credit for the years you would have worked had you not become disabled, which helps younger workers. That's why it's important to apply with complete earnings records.
0 coins
Yara Khoury
•That makes much more sense! I'll make sure he has his complete work history documented. He worked part-time through college too, so hopefully those years count as well.
0 coins
StardustSeeker
CHECK HIS WORK CREDITS!!! my cousins husband got denied because he didn't have enough recent work credits even tho he worked for like 15 years but then took time off to be a stay at home dad for 3 years. you need to have worked 5 of the last 10 years i think
0 coins
Paolo Marino
•That's correct - it's called the 'recent work test.' At age 42, he needs 20 credits total (5 years of work) AND 20 credits within the last 10 years. If he's been working steadily, he should meet this requirement easily.
0 coins
Yara Khoury
Thanks everyone for all this helpful info! I'm going to sit down with him this weekend to create a plan. We'll double-check his work credits, make sure his neurologist documents everything thoroughly with specific mention of the Compassionate Allowance List, and prepare for that 5-month waiting period. His MS symptoms have gotten really severe (mobility issues, extreme fatigue, cognitive problems), so hopefully that will help with getting approved faster. I'm also going to have him set up an appointment with SSA using that Claimyr service to get specific estimates for his situation. Really appreciate all the insights - this is such a stressful time for their family and having some idea of what to expect financially makes a huge difference.
0 coins
Natasha Petrova
•One last tip - have him keep a detailed symptom journal documenting how his MS affects daily activities. Include good days AND bad days, noting when he's too fatigued to perform basic tasks, when cognitive issues interfere with concentration, detailed mobility limitations, etc. This documentation is GOLD during the application process, especially if he needs to appeal.
0 coins