Does refusing therapy affect SSDI benefits? My brother's worried about losing Social Security disability
My brother (51) has been receiving SSDI for about 3 years due to severe degenerative disc disease and chronic pain. His doctor recently recommended he start attending pain management therapy, but my brother is refusing to go. He says it's pointless and won't help his condition. Now his wife is panicking that SSA will terminate his disability benefits if he doesn't comply with treatment recommendations. I've never heard of this requirement before, but I'm getting worried too. Can SSA really cut off your SSDI if you decline certain treatments like therapy? Has anyone dealt with this situation? I thought once you're approved for disability, medical improvement reviews are about your condition, not whether you're in treatment.
26 comments


Natasha Ivanova
The short answer is YES they absolutely can terminate benefits if you refuse treatment! SSA regulations state that if you refuse to follow prescribed treatment that could restore your ability to work without good reason, they can stop your benefits. It's in their rules. I've seen it happen to people. Your brother should reconsider or he's risking everything.
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NebulaNomad
•Wait, that doesn't sound right. I've been on SSDI for 7 years and nobody has EVER told me I have to do specific treatments. My understanding is they look at whether your condition still meets disability criteria during reviews, not whether you're doing everything your doctor suggests. Where are you getting this information from?
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Javier Garcia
There's some nuance here that's important. SSA can deny or stop benefits if someone refuses treatment that would likely restore their ability to work - BUT this only applies to certain treatments that are clearly established to improve the condition. For pain management therapy, it's unlikely SSA would terminate benefits solely for refusing this type of treatment because: 1. Pain management therapy doesn't typically "cure" degenerative disc disease 2. The effectiveness varies greatly by individual 3. There are often legitimate reasons someone might decline this therapy During Continuing Disability Reviews (CDRs), they're primarily looking at whether there's been medical improvement related to ability to work, not specifically treatment compliance. Your brother should document his reasons for declining if asked during a review.
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Oliver Fischer
•Thank you for explaining this! That makes much more sense. So basically they're concerned with whether his condition has improved enough to work, not necessarily how he's managing the condition? I'll let him know, but suggest he at least document why he's declining the therapy just in case.
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Emma Taylor
This happened to my cousins friend!!! She didnt go to physical therpy and they cut her off and now shes fighting to get it back for like 8 months already with no income. Tell ur brother dont risk it!!!!!
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Javier Garcia
•There's likely more to that story. SSA doesn't typically terminate benefits solely for declining physical therapy. Usually termination happens because medical improvement was found during a review, or because someone failed to respond to paperwork requests, or there were earnings above SGA. It's important not to spread misinformation that might unnecessarily frighten people.
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Malik Robinson
Having dealt with the Social Security Administration for years with my own disability case, I can share some insight on this. The "failure to follow prescribed treatment" rule exists, but it has specific requirements: - The treatment must be prescribed by your physician - The treatment would clearly restore your ability to perform substantial gainful activity - You have no acceptable reason for refusing Pain management therapy rarely meets the second criteria for degenerative disc disease, which is typically a progressive condition. In most cases, SSA recognizes that pain therapy helps manage symptoms but doesn't "restore" work ability for serious spinal conditions. That said, during his next Continuing Disability Review, if a consulting doctor specifically asks why he declined therapy, he should have a reasonable explanation ready. Something like "I've tried similar approaches before without success" or "I'm managing with other doctor-approved methods" would be better than just "I don't want to.
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Oliver Fischer
•This is really helpful, thank you. He's tried similar therapies before without much relief, so that's probably a legitimate reason. Do you know how often they do these Continuing Disability Reviews for someone with a condition like his?
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Malik Robinson
•For a condition like degenerative disc disease that's unlikely to improve, CDRs typically happen every 5-7 years. If his was classified as a "Medical Improvement Not Expected" case (which is common for degenerative conditions), he might even go longer between reviews. But they can happen more frequently if SSA has some reason to believe improvement occurred.
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Isabella Silva
Getting through to SSA to ask this question directly would give you the most accurate answer for your brother's specific situation. I recently used a service called Claimyr (claimyr.com) to bypass the phone wait times and talk to an actual SSA representative about a similar question for my mother. Saved hours of frustration! They have a video showing how it works: https://youtu.be/Z-BRbJw3puU. The agent I spoke with gave me much clearer information than what I was finding online.
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Oliver Fischer
•Thanks for the tip! I've been on hold with SSA for over an hour before giving up. I'll check out that service since I'd really like to get an official answer.
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Ravi Choudhury
•does that service cost money? i tried calling ssa last week and literally waited 2 hours and then got disconnected when they finally answered!
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NebulaNomad
I think people are confusing SSI with SSDI. With SSI there are more requirements because it's needs-based. With SSDI, which your brother has, it's an insurance program he paid into through his work taxes. They're not monitoring his day-to-day medical choices. I've refused several treatments over the years (didn't want spinal injections) and it's never affected my SSDI benefits. During reviews they just want updated medical records showing you still have the disabling condition.
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Oliver Fischer
•That's a good point about the difference between SSI and SSDI. My brother definitely has SSDI based on his work history. That makes me feel better about his situation.
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Emma Taylor
OMG I just remembered my sister works for a disability lawyer and she said its not therapy they care about, its if you dont go to your regular doctor appointments at all. If you have zero medical records for a long time they might think ur better and working! So ur brother should at least keep seeing his main doctor even if he skips the therapy
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Oliver Fischer
•That makes a lot of sense! He definitely still sees his specialist regularly and gets imaging done to monitor the progression. He just doesn't want to do the therapy part. Thanks for sharing that info from your sister!
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Javier Garcia
After reading through all the comments, I want to clarify the most important points: 1. SSA's "failure to follow prescribed treatment" rule rarely applies to complementary therapies like pain management 2. This rule is most commonly applied in cases like refusing surgery that would clearly restore function, refusing medication for controllable conditions like seizures or diabetes, or refusing psychiatric treatment for severe mental illness 3. For degenerative disc disease, which is generally progressive and permanent, they're mainly checking if the condition still meets disability criteria during reviews 4. Maintaining regular medical care to document ongoing disability is much more important than doing every recommended therapy 5. If asked about declined therapy during a review, having a reasoned explanation is helpful Hope this helps put your mind at ease about your brother's situation.
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Oliver Fischer
•Thank you so much for this clear summary. This whole thread has been really educational. I'll share all this with my brother so he can make informed decisions without the unnecessary stress about losing benefits.
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Logan Stewart
I'm a newcomer here but wanted to share what I learned when I had a similar concern about my own SSDI case. I called my local SSA office directly and spoke with a disability specialist who explained that for SSDI recipients, the focus during reviews is on whether your medical condition still prevents you from working, not on compliance with every treatment recommendation. They specifically mentioned that refusing therapies that manage symptoms (rather than cure the underlying condition) typically won't affect benefits. The key is maintaining regular medical documentation of your ongoing disability. Your brother should keep seeing his primary doctors and specialists, but declining pain management therapy alone shouldn't jeopardize his SSDI. If he's still concerned, documenting his reasons for declining (like previous unsuccessful attempts at similar therapy) would be wise for his medical file.
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Omar Farouk
•Welcome to the community! That's really valuable information from speaking directly with SSA. It's reassuring to hear from someone who got official confirmation about the difference between symptom management therapies and actual curative treatments. Your point about maintaining regular medical documentation is spot on - that seems to be the consistent theme throughout this discussion. Thanks for sharing your experience!
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Levi Parker
As someone who's been navigating the SSDI system for several years, I want to echo what others have said about the difference between treatment compliance and medical improvement. The key thing to understand is that SSA is looking at functional capacity - can your brother still work despite his condition? Pain management therapy, while potentially helpful for quality of life, doesn't typically restore someone's ability to perform substantial gainful activity when dealing with degenerative disc disease. I've declined several recommended treatments over the years (including some invasive procedures) and it's never been an issue during my reviews. What matters most is that he continues to see his treating physicians regularly so there's ongoing documentation of his condition. If he's asked about declining therapy during a future review, having a legitimate reason (like "I've tried similar approaches before without benefit" or "I'm managing my condition through other means my doctor approves of") is perfectly acceptable. The horror stories you might hear about people losing benefits are usually more complex situations involving either medical improvement, failure to attend required consultative exams, or not responding to SSA correspondence. Your brother should focus on maintaining his regular medical care and not worry too much about this specific therapy recommendation.
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Carmen Ortiz
•This is exactly the kind of detailed, experienced perspective that's so helpful! Your point about functional capacity being the key focus really clarifies things. It makes sense that SSA would be more concerned about whether someone can work rather than micromanaging every treatment decision. The examples you gave of legitimate reasons for declining therapy are really practical too. I think what's coming through loud and clear from everyone's responses is that maintaining regular medical documentation is the most important thing, and that pain management therapy specifically isn't the type of treatment that would typically trigger benefit termination. Thanks for sharing your real-world experience with the SSDI review process!
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Darren Brooks
I'm new to this community but dealing with a similar situation with my father who's on SSDI for chronic back issues. After reading through all these responses, I feel much more informed about how the system actually works. What really stands out to me is how many people here have direct experience with declining various treatments without losing benefits, which contradicts some of the scarier stories you hear online. The distinction everyone's making between symptom management (like pain therapy) versus treatments that could actually restore work capacity makes perfect sense. For degenerative conditions like your brother's disc disease, it seems like SSA recognizes these are progressive issues that therapy might help manage but won't "cure." One thing I'm curious about - has anyone here actually been through a Continuing Disability Review where treatment compliance was specifically questioned? It would be helpful to know what that process looks like in practice, especially for spinal conditions. The consistent advice about maintaining regular medical documentation and having reasonable explanations for declining treatments seems like the smart approach regardless.
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Kara Yoshida
•Welcome to the community! Your question about CDRs and treatment compliance is really insightful. I haven't personally been through one where treatment compliance was specifically questioned, but from what I understand from others who have, the focus tends to be much more on current functional limitations rather than drilling down into specific treatment decisions. The reviewers seem to look at things like: Can you still lift/carry certain weights? How long can you stand/walk? What's your pain level on a typical day? They're trying to assess whether your condition still prevents substantial gainful activity. The medical records from your regular doctors usually provide this information without needing to justify why you declined certain therapies. That said, if it does come up, having those reasonable explanations ready (like you mentioned) is definitely the way to go. The pattern I'm seeing from everyone's experiences here is that maintaining that regular medical documentation really is the key factor in successful reviews.
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Liam Murphy
As someone new to this community but unfortunately familiar with SSDI due to my own disability journey, I wanted to add my perspective on this important topic. What I've learned through my own experience and research is that the "failure to follow prescribed treatment" rule is much more narrowly applied than many people fear. The regulation specifically requires three conditions to be met: the treatment must be prescribed by a physician, it must be expected to restore your ability to work, and you must have no good reason for refusing. For degenerative disc disease like your brother has, pain management therapy typically fails the second test - it's designed to help manage symptoms and improve quality of life, not restore someone's ability to perform substantial gainful activity. I've actually refused several recommended treatments myself (including physical therapy that wasn't helping and some medications with severe side effects) and it's never been questioned during my interactions with SSA. What they really care about during reviews is whether your condition still meets the disability criteria, which is determined through your ongoing medical records and functional assessments. The most important thing your brother can do is maintain regular care with his specialists to ensure there's continuous documentation of his condition. If the therapy question ever comes up, having a reasonable explanation like "previous similar treatments weren't effective" or "managing condition through other doctor-approved methods" should be sufficient. The key is showing he's not abandoning medical care entirely, just making informed decisions about specific treatments that may not be beneficial for his situation.
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Logan Scott
•Thank you for sharing such a comprehensive perspective! Your breakdown of the three-part test for the "failure to follow prescribed treatment" rule is really helpful - especially highlighting how pain management therapy typically fails the "restore ability to work" requirement for degenerative conditions. It's reassuring to hear from someone else who has declined treatments without issues during SSA interactions. Your point about showing you're not abandoning medical care entirely, just making selective decisions about specific treatments, really captures the nuanced approach that seems to work best. This whole discussion has been eye-opening about how the system actually functions versus the fears people have about it.
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