Husband got SSDI Continuing Disability Review while I'm applying for benefits - need mental health documentation ASAP?
My husband just received a Continuing Disability Review (CDR) letter from Social Security for his SSDI benefits. I'm freaking out because he hasn't seen his psychiatrist in almost 9 months. He's been stable on his medications but has severe bipolar disorder with major depression and extreme social anxiety that makes it impossible for him to work in any environment with people. The CDR form is asking for updated medical information and doctor contacts. Should I rush to schedule a mental health appointment before we submit the paperwork? His benefits are our main source of income ($2,875/month) while I'm also in the middle of my own SSDI application after two brain surgeries last year and ongoing complications. I'm terrified they'll terminate his benefits if we don't have recent mental health documentation. Has anyone gone through a CDR with gaps in treatment? What happens if they decide he's "improved" when nothing has actually changed with his condition?
25 comments


Zara Khan
Yes, absolutely schedule that appointment ASAP! When completing a CDR for mental health conditions, recent medical evidence is critical. The SSA needs to see that he's still receiving treatment and that his condition continues to prevent work. Make sure to schedule it within the next 2-3 weeks if possible so you'll have documentation before you need to return the CDR paperwork. Also, have him write down all his symptoms and how they affect daily activities before the appointment so nothing gets forgotten.
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Sean Fitzgerald
•Thank you! I'll call first thing tomorrow. Do you know if they look negatively at gaps in treatment? He takes his meds consistently but just hasn't had actual appointments in a while.
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MoonlightSonata
my husband got one of those last year and we panicked too!! but it ended up being the short form review not the full medical one. check if it says "full medical review" or just asks basic questions about his condition. the short form is WAYYY easier they just rubber stamp it if nothing major changed
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Sean Fitzgerald
•It definitely says "full medical review" with a bunch of forms about his condition, medications, and doctors. I wish it was the short form!
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Mateo Gonzalez
GET THE APPOINTMENT NOW!!! My brother lost his benefits after a review because he hadn't seen his psych doctor in over a year and they said he wasn't following prescribed treatment!!! They don't care if he's been stable - they want to see ONGOING medical evidence from a doctor who actually SAW him recently!!! This is how they cut people off!!!! And they'll say if he's stable enough to not need regular appointments then maybe he's stable enough to work!!!!
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Nia Williams
•This isn't entirely accurate. They can't terminate benefits solely for gaps in treatment without evidence that the medical condition has improved. They need to establish medical improvement related to ability to work. But yes, getting current medical documentation is definitely important.
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Luca Ricci
You should definitely schedule an appointment, but don't panic. Here's what you need to know about the CDR process: 1. The SSA follows a "Medical Improvement Review Standard" (MIRS), which means they need to prove his condition has improved enough to allow work, not the other way around. 2. Make sure to document ALL functional limitations in the CDR paperwork - focus on what he CANNOT do consistently, not what he occasionally manages. 3. Get statements from family members (including you) about his limitations they observe. 4. If his psychiatrist has changed, get records transferred from previous doctors. 5. The fact that he consistently takes medication works in your favor - note this on the forms. For bipolar disorder, emphasize periods of decompensation, inability to interact appropriately with others, and difficulty adapting to changes or handling workplace stressors.
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Sean Fitzgerald
•This is incredibly helpful, thank you! I didn't know about the Medical Improvement standard. I'll definitely focus on documenting his limitations thoroughly and get statements from family members. His mom sees him regularly and can definitely confirm his ongoing symptoms.
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Aisha Mohammed
have u tried calling the SSA to ask about the review? i had to do that for my dad once but it took FOREVER to get thru to anyone. kept getting busy signals for days
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Ethan Campbell
•When I had to call about my CDR last year, I ended up using Claimyr (claimyr.com) to get through to SSA. It connected me to an agent in under 20 minutes when I'd been trying for days on my own. They have a video demo at https://youtu.be/Z-BRbJw3puU that shows how it works. Saved me so much stress, especially since I was also dealing with health issues and couldn't spend hours redialing.
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MoonlightSonata
btw dont forget about your own application too while dealing with his!! when did u apply? brain surgeries should qualify u pretty easily i would think
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Sean Fitzgerald
•I applied about 4 months ago. Still waiting for a decision. The neurosurgeon wrote a really strong letter saying I can't work for at least 18 months post-surgery because of ongoing seizures and cognitive issues. I'm just worried about the timing of everything happening at once!
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Nia Williams
To address your specific questions: 1. Yes, schedule a psychiatrist appointment as soon as possible. Even if there's been a gap in treatment, what matters most is current documentation of his ongoing condition. 2. Make sure the psychiatrist documents specifically how his bipolar disorder, depression, and anxiety continue to prevent substantial gainful activity. 3. Gaps in treatment aren't ideal but aren't automatically disqualifying if he's continued medication compliance. The key is proving his condition still prevents work. 4. Ask the psychiatrist to complete a Mental Residual Functional Capacity (MRFC) form specifically addressing his limitations in workplace settings. 5. For the CDR form itself, be thorough but never exaggerate. List all treatments, medications, side effects, and limitations consistently. 6. If denied (which is unlikely with proper documentation), immediately request reconsideration and consider getting representation.
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Sean Fitzgerald
•Thank you for such detailed advice! I didn't know about the MRFC form - I'll definitely ask the psychiatrist about completing one for his file. His previous psychiatrist retired which is partly why there's been a gap, but he's been consistent with taking his medication.
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Mateo Gonzalez
This whole system is DESIGNED to kick people off benefits!!! They KNOW most disabled people struggle to maintain perfect treatment records!! My cousin's husband has schizophrenia and they tried to terminate his benefits during a review even though he's OBVIOUSLY still disabled!!! It took them hiring a lawyer and waiting MONTHS with NO INCOME before they reinstated his benefits!!! The stress made his condition 10x worse!!!
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Luca Ricci
•While I understand your frustration, the CDR process does have important protections built in. The Medical Improvement Review Standard places the burden on SSA to prove improvement, not on the beneficiary to reprove disability. With proper documentation and understanding of the process, most people with ongoing severe conditions like bipolar disorder do maintain their benefits. The key is responding thoroughly and obtaining current medical evidence.
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Aisha Mohammed
does he take his meds regularly? make sure to mention that on the forms. my aunt says thats super important for mental health reviews
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Sean Fitzgerald
•Yes, he's really good about taking his medications exactly as prescribed. He uses a weekly pill organizer and I help make sure he stays on track. I'll definitely emphasize that on the forms!
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Zara Khan
One more important tip: when completing the function report portion of the CDR, be very specific about bad days versus good days. Many people with bipolar disorder have some good days where they can function better, but what matters is consistency. Make sure to explain how many bad days he has per week/month and what those look like. SSA needs to understand that even if he can do something occasionally, he can't do it reliably enough to maintain employment. Focus on specifics like: - How often he has episodes of severe depression or mania - How long these episodes typically last - What triggers worsen his symptoms (especially work-related stressors) - How his condition affects sleep, concentration, and ability to complete tasks - Specific examples of difficulties with social interactions This level of detail helps paint an accurate picture of why he remains unable to work despite medication compliance.
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Sean Fitzgerald
•This is excellent advice - thank you! He definitely has good and bad days, but even on his 'good' days he can't handle being around groups of people or dealing with any kind of pressure. I'll make sure to document how unpredictable his condition can be and why that makes consistent work impossible.
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CosmicCommander
I went through a similar CDR situation with my wife who has bipolar disorder. Here's what I learned that might help you: 1. Don't panic about the 9-month gap - what matters more is that he's been medication compliant and his condition hasn't actually improved. 2. When you get that psychiatrist appointment, bring a detailed list of his current symptoms and limitations. I made the mistake of assuming the doctor would remember everything from previous visits. 3. Ask the psychiatrist to specifically address in their notes how his bipolar disorder, depression, and social anxiety continue to prevent him from maintaining any type of employment - even sedentary work. 4. For the CDR paperwork, I found it helpful to keep a daily log for about 2 weeks before submitting, tracking his mood episodes, anxiety levels, and what he was/wasn't able to accomplish each day. This gave me concrete examples to reference. 5. Don't forget to mention medication side effects if he has any - drowsiness, brain fog, etc. can also impact work capacity. The good news is that severe bipolar disorder with major depression is typically considered a condition where medical improvement is less likely. Stay focused on documenting his ongoing limitations rather than worrying about the review process itself. You've got this!
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Diego Ramirez
•This is incredibly helpful - thank you so much for sharing your experience! I really like the idea of keeping a daily log for a couple weeks. That would give me concrete examples instead of just trying to remember general patterns. I hadn't thought about documenting medication side effects either, but he does get pretty drowsy from his mood stabilizer and has trouble with concentration some days. It's reassuring to hear from someone who went through this successfully with a similar condition. I'm feeling a bit less panicked now!
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Hugh Intensity
I'm going through something similar right now - my CDR just came in last month and I was terrified too. Here's what I wish someone had told me: the gap in treatment isn't ideal, but it's not automatically a death sentence for his benefits. What saved me was being extremely thorough in documenting how my condition still affects my daily life, even when I'm "stable" on medication. A few practical tips from my experience: - When you call to schedule that psych appointment, explain it's urgent due to a CDR - many offices will try to squeeze you in sooner - Ask his pharmacy for a medication compliance report showing he's been consistently filling prescriptions - Have him start writing down his symptoms and limitations NOW, while you're waiting for the appointment - memory can be fuzzy when you're stressed - If he's had any ER visits, hospitalizations, or crisis situations in the past few years, make sure those are included in the medical records The most important thing is showing that even though he takes his medication religiously, he still has significant functional limitations that prevent consistent work. Bipolar disorder doesn't just disappear because someone is medication compliant - it requires ongoing management and still causes unpredictable episodes that would make maintaining employment impossible. You're doing the right thing by acting quickly. Try not to spiral too much - focus on gathering the documentation they need to see his ongoing disability.
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Brandon Parker
•Thank you so much for this practical advice! I hadn't thought about getting a medication compliance report from the pharmacy - that's brilliant and will definitely help show he's been following treatment even without regular appointments. I'm calling his psychiatrist's office first thing in the morning and will mention it's CDR-related to see if they can get him in sooner. The idea about having him document symptoms now while we wait is also really smart - when he gets anxious his memory gets worse so having it written down ahead of time will be huge. Your point about medication compliance not meaning the condition is gone really resonates - he still has episodes and limitations even when he's taking everything as prescribed. It's just managed better, not cured. Thanks for helping me feel less alone in this process!
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Nadia Zaldivar
I'm so sorry you're dealing with this stress on top of your own health issues! One thing that helped me during my husband's CDR was creating a comprehensive timeline document before the psychiatrist appointment. I listed: - All medications he's currently taking (with dosages and how long he's been on each) - Any dosage changes in the past year - Specific episodes or difficult periods he's had recently - How his conditions affect daily activities (showering, grocery shopping, social situations, etc.) - Any triggers that make symptoms worse Having this organized beforehand made the appointment much more productive, and the psychiatrist was able to write a more detailed assessment. Also, if his previous psychiatrist retired, try to get those records transferred ASAP - continuity of care documentation can be really valuable even with the gap. The fact that he's been medication compliant this whole time actually works in your favor - it shows he's actively managing his condition, not ignoring it. You're handling this exactly right by getting current documentation. Wishing you both the best outcome!
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