Husband got SSDI Continuing Disability Review while I'm applying for benefits - need mental health documentation ASAP?
My husband just received a Continuing Disability Review (CDR) letter from Social Security for his SSDI benefits. I'm freaking out because he hasn't seen his psychiatrist in almost 9 months. He's been stable on his medications but has severe bipolar disorder with major depression and extreme social anxiety that makes it impossible for him to work in any environment with people. The CDR form is asking for updated medical information and doctor contacts. Should I rush to schedule a mental health appointment before we submit the paperwork? His benefits are our main source of income ($2,875/month) while I'm also in the middle of my own SSDI application after two brain surgeries last year and ongoing complications. I'm terrified they'll terminate his benefits if we don't have recent mental health documentation. Has anyone gone through a CDR with gaps in treatment? What happens if they decide he's "improved" when nothing has actually changed with his condition?
20 comments
Zara Khan
Yes, absolutely schedule that appointment ASAP! When completing a CDR for mental health conditions, recent medical evidence is critical. The SSA needs to see that he's still receiving treatment and that his condition continues to prevent work. Make sure to schedule it within the next 2-3 weeks if possible so you'll have documentation before you need to return the CDR paperwork. Also, have him write down all his symptoms and how they affect daily activities before the appointment so nothing gets forgotten.
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Sean Fitzgerald
•Thank you! I'll call first thing tomorrow. Do you know if they look negatively at gaps in treatment? He takes his meds consistently but just hasn't had actual appointments in a while.
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MoonlightSonata
my husband got one of those last year and we panicked too!! but it ended up being the short form review not the full medical one. check if it says "full medical review" or just asks basic questions about his condition. the short form is WAYYY easier they just rubber stamp it if nothing major changed
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Sean Fitzgerald
•It definitely says "full medical review" with a bunch of forms about his condition, medications, and doctors. I wish it was the short form!
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Mateo Gonzalez
GET THE APPOINTMENT NOW!!! My brother lost his benefits after a review because he hadn't seen his psych doctor in over a year and they said he wasn't following prescribed treatment!!! They don't care if he's been stable - they want to see ONGOING medical evidence from a doctor who actually SAW him recently!!! This is how they cut people off!!!! And they'll say if he's stable enough to not need regular appointments then maybe he's stable enough to work!!!!
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Nia Williams
•This isn't entirely accurate. They can't terminate benefits solely for gaps in treatment without evidence that the medical condition has improved. They need to establish medical improvement related to ability to work. But yes, getting current medical documentation is definitely important.
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Luca Ricci
You should definitely schedule an appointment, but don't panic. Here's what you need to know about the CDR process: 1. The SSA follows a "Medical Improvement Review Standard" (MIRS), which means they need to prove his condition has improved enough to allow work, not the other way around. 2. Make sure to document ALL functional limitations in the CDR paperwork - focus on what he CANNOT do consistently, not what he occasionally manages. 3. Get statements from family members (including you) about his limitations they observe. 4. If his psychiatrist has changed, get records transferred from previous doctors. 5. The fact that he consistently takes medication works in your favor - note this on the forms. For bipolar disorder, emphasize periods of decompensation, inability to interact appropriately with others, and difficulty adapting to changes or handling workplace stressors.
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Sean Fitzgerald
•This is incredibly helpful, thank you! I didn't know about the Medical Improvement standard. I'll definitely focus on documenting his limitations thoroughly and get statements from family members. His mom sees him regularly and can definitely confirm his ongoing symptoms.
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Aisha Mohammed
have u tried calling the SSA to ask about the review? i had to do that for my dad once but it took FOREVER to get thru to anyone. kept getting busy signals for days
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Ethan Campbell
•When I had to call about my CDR last year, I ended up using Claimyr (claimyr.com) to get through to SSA. It connected me to an agent in under 20 minutes when I'd been trying for days on my own. They have a video demo at https://youtu.be/Z-BRbJw3puU that shows how it works. Saved me so much stress, especially since I was also dealing with health issues and couldn't spend hours redialing.
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MoonlightSonata
btw dont forget about your own application too while dealing with his!! when did u apply? brain surgeries should qualify u pretty easily i would think
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Sean Fitzgerald
•I applied about 4 months ago. Still waiting for a decision. The neurosurgeon wrote a really strong letter saying I can't work for at least 18 months post-surgery because of ongoing seizures and cognitive issues. I'm just worried about the timing of everything happening at once!
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Nia Williams
To address your specific questions: 1. Yes, schedule a psychiatrist appointment as soon as possible. Even if there's been a gap in treatment, what matters most is current documentation of his ongoing condition. 2. Make sure the psychiatrist documents specifically how his bipolar disorder, depression, and anxiety continue to prevent substantial gainful activity. 3. Gaps in treatment aren't ideal but aren't automatically disqualifying if he's continued medication compliance. The key is proving his condition still prevents work. 4. Ask the psychiatrist to complete a Mental Residual Functional Capacity (MRFC) form specifically addressing his limitations in workplace settings. 5. For the CDR form itself, be thorough but never exaggerate. List all treatments, medications, side effects, and limitations consistently. 6. If denied (which is unlikely with proper documentation), immediately request reconsideration and consider getting representation.
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Sean Fitzgerald
•Thank you for such detailed advice! I didn't know about the MRFC form - I'll definitely ask the psychiatrist about completing one for his file. His previous psychiatrist retired which is partly why there's been a gap, but he's been consistent with taking his medication.
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Mateo Gonzalez
This whole system is DESIGNED to kick people off benefits!!! They KNOW most disabled people struggle to maintain perfect treatment records!! My cousin's husband has schizophrenia and they tried to terminate his benefits during a review even though he's OBVIOUSLY still disabled!!! It took them hiring a lawyer and waiting MONTHS with NO INCOME before they reinstated his benefits!!! The stress made his condition 10x worse!!!
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Luca Ricci
•While I understand your frustration, the CDR process does have important protections built in. The Medical Improvement Review Standard places the burden on SSA to prove improvement, not on the beneficiary to reprove disability. With proper documentation and understanding of the process, most people with ongoing severe conditions like bipolar disorder do maintain their benefits. The key is responding thoroughly and obtaining current medical evidence.
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Aisha Mohammed
does he take his meds regularly? make sure to mention that on the forms. my aunt says thats super important for mental health reviews
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Sean Fitzgerald
•Yes, he's really good about taking his medications exactly as prescribed. He uses a weekly pill organizer and I help make sure he stays on track. I'll definitely emphasize that on the forms!
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Zara Khan
One more important tip: when completing the function report portion of the CDR, be very specific about bad days versus good days. Many people with bipolar disorder have some good days where they can function better, but what matters is consistency. Make sure to explain how many bad days he has per week/month and what those look like. SSA needs to understand that even if he can do something occasionally, he can't do it reliably enough to maintain employment. Focus on specifics like: - How often he has episodes of severe depression or mania - How long these episodes typically last - What triggers worsen his symptoms (especially work-related stressors) - How his condition affects sleep, concentration, and ability to complete tasks - Specific examples of difficulties with social interactions This level of detail helps paint an accurate picture of why he remains unable to work despite medication compliance.
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Sean Fitzgerald
•This is excellent advice - thank you! He definitely has good and bad days, but even on his 'good' days he can't handle being around groups of people or dealing with any kind of pressure. I'll make sure to document how unpredictable his condition can be and why that makes consistent work impossible.
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