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Does applying for Social Security disability make sense after already receiving retirement benefits? Terminal illness compassionate allowance question

My mother (68) was just diagnosed with terminal pancreatic cancer last month and her oncologist says she likely has 6-8 months. She's been on Social Security retirement since she was 66, but her hospice coordinator mentioned something called 'compassionate allowance' for SSDI that might provide more benefits. I'm completely confused about whether this is even an option for someone already collecting retirement. Specifically, I need to understand: 1) Can someone switch from SS retirement to disability benefits if they develop a terminal illness? 2) Would the compassionate allowance program potentially provide higher monthly payments than her current retirement benefit? 3) How would this affect my dad's survivor benefits when she passes? Would he receive more if she were on disability vs. retirement? She stopped working completely in November when she started having symptoms, before the official diagnosis. Any guidance would be deeply appreciated - we're trying to make sure both my parents have the financial support they need during this difficult time.

Sorry about your mom. My dad had cancer to and we looked into this. Once someones already getting SS retirement they cant switch to disability. Its one or the other and after full retirement age theres no difference anyway.

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Diego Flores

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Thank you for responding. So there's no potential benefit to applying for disability through compassionate allowance in her case? Even with the terminal diagnosis?

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Sean Flanagan

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I work with seniors and can clarify this situation. Once someone has begun receiving Social Security retirement benefits, they generally cannot switch to SSDI (disability). The Compassionate Allowance program primarily helps expedite disability applications for people with certain severe conditions, but it doesn't typically apply to someone already receiving retirement benefits. Regarding benefit amounts: 1) If your mother started her retirement benefits at her Full Retirement Age (FRA), her disability benefit would be exactly the same amount anyway 2) If she took early retirement before FRA, there might have been a slight difference, but at 68, she's past FRA 3) For survivor benefits, your father would receive the higher of his own benefit or up to 100% of your mother's benefit amount when she passes - this calculation would be the same whether she was on retirement or disability The focus should be on ensuring she's receiving any other benefits she might qualify for, like Medicare's hospice benefit and possibly help with prescription costs.

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Diego Flores

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This is incredibly helpful information, thank you. She did start her benefits at her FRA, so it sounds like there wouldn't be any difference in the amount. Do you know if there are any other programs we should look into that might help with her medical expenses beyond what Medicare covers?

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Zara Mirza

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The previous response is correct. Once someone begins receiving retirement benefits, switching to disability isn't possible. At age 68, your mother is already past Full Retirement Age (FRA), so there would be no monetary advantage to disability benefits even if she could switch. Regarding survivor benefits for your father, the calculation will be based on your mother's Primary Insurance Amount (PIA), and he would generally be eligible for 100% of her benefit amount if he's at his FRA when he claims survivor benefits. This would be the same whether she was receiving retirement or disability benefits. The compassionate allowance program is excellent, but it's designed to expedite the disability determination process for those who haven't yet started receiving any Social Security benefits. It doesn't increase benefit amounts - it just speeds up approval.

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Diego Flores

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Thank you for confirming this. It makes sense now why the hospice coordinator might have mentioned it, but wasn't clear on how it applied to my mom's specific situation. She might have been thinking about patients who haven't yet filed for any benefits.

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NebulaNinja

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When my wife got terminal cancer we tried to get her switched from regular SS to disability thinking it would be more money. The SSA office told us it doesn't work that way. Once your on retirement you cant go back. Something about the disability trust fund being different from the retirement trust fund. Its really frusterating how complicated they make everything!!

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Luca Russo

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The system really is ridiculous. My cousin went through something similar and spent HOURS on the phone trying to figure out what to do. Every time she called SSA she'd get disconnected or told different things. I've heard good things about using Claimyr.com to get through to an actual SSA agent without the wait. They have a video showing how it works at https://youtu.be/Z-BRbJw3puU - might be helpful if you need to call SSA with any other questions about survivor benefits for your dad or anything else. Seriously sorry about your mom's diagnosis. That's really tough.

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Nia Wilson

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I'm so sorry to hear about your mother's diagnosis. I just want to add that you should check if your mother might qualify for any state-specific programs that help with medical costs not covered by Medicare. Some states have additional assistance programs for people with terminal illnesses. Also, make sure your father understands the survivor benefit process. He should contact Social Security promptly after your mother passes (I know it's difficult to think about) as some benefits aren't retroactive if he waits too long. If he's already collecting his own retirement, they'll automatically give him whichever benefit is higher - his own or the survivor benefit based on your mother's record.

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Mateo Sanchez

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This!!!! When my husband died I waited 3 months to call SSA because I was a mess and they told me I lost out on 2 months of higher payments. Tell your dad not to wait like I did!

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Sean Flanagan

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To answer your follow-up question about other programs that might help with medical expenses: Medicare's hospice benefit should cover most hospice-related costs, but there are other options to explore: 1) If your mother has limited income and resources, she might qualify for a Medicare Savings Program that helps pay Medicare premiums and possibly copays 2) Extra Help program for prescription drug costs 3) If costs are still high, check if she qualifies for Medicaid (even with Medicare) 4) Many cancer foundations offer financial assistance - the American Cancer Society can direct you to specific programs 5) Check if your parents have any long-term care insurance or critical illness insurance policies they may have forgotten about A hospital social worker or the social worker at her hospice should be able to help identify which programs she might qualify for in your specific state.

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Diego Flores

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Thank you so much - this gives us a good place to start. I'll talk to her hospice social worker about these specific programs. I hadn't thought about cancer foundations offering financial help, so I'll definitely look into that as well.

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Want to add somthing I found out to late. Tell your dad to make sure SSA has HIS direct deposit info on file before your mom passes. My mom died and dad had no income for almost 2 months because they were depositing to moms account that got frozen when she died. The survivor benefit stuff is a mess.

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Diego Flores

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Thank you everyone for your helpful responses. This clarifies so much for us. I'll make sure to work with the hospice social worker to look into the additional medical cost assistance programs mentioned, and I'll definitely make sure my dad has his direct deposit information on file with SSA. It sounds like there's no benefit to pursuing the compassionate allowance route in our situation, which helps us focus our energy on more productive paths. I truly appreciate all of your insights and experiences during this difficult time.

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Nia Wilson

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Wishing your family strength during this difficult time. Please come back if you have any other questions as things progress.

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