Can my wife qualify for child-in-care spousal benefit with adult disabled son on my Social Security record?
We have a complicated family situation with Social Security and I'm hoping someone here has experience with this specific scenario. My stepson (my wife's biological son) was found disabled before age 22 and was on SSI for about 18 months. When I started taking my Social Security retirement at full retirement age last year, he qualified for SSDI benefits on my record instead of SSI. My wife is currently 61 years and 7 months old and wants to stop working soon. We thought she might qualify for the 'child-in-care' spousal benefit since she helps care for her disabled adult son (who lives with us and needs daily assistance). This would allow her to get benefits before 62. We applied last month but got denied. The letter stated she "does not qualify for wife's benefits because she is not caring for a child who is entitled to benefits on my record and she is not 62." This seems contradictory since her son IS getting benefits on my record! We've read through several SSA publications about the child-in-care benefit and thought she would qualify. Has anyone successfully navigated this particular situation? Is there something specific about stepparent relationships that's causing the problem?
20 comments
Nina Chan
The denial reason sounds confusing, but I might know what's happening. For the child-in-care benefit, the child must be under 16 OR disabled before 22. Your stepson meets the disabled before 22 requirement. However, there's another rule - your wife must be exercising parental control and responsibility. Since he's an adult disabled son, SSA sometimes applies a stricter standard for proving parental control. Did you submit documentation showing the specific care she provides?
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Douglas Foster
•Thank you for this insight. We didn't provide specific documentation about her caregiving responsibilities - we just assumed since he lives with us and she helps him with meals, medication management, and transportation to appointments that it would be obvious. Should we appeal and include detailed information about his care needs and her role?
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Ruby Knight
The same thing happened to my sister!!! She had her disabled daughter (26 but disabled since birth) and when her husband retired, they denied her the child in care benefit. She had to FIGHT with them for months!!! The SSA people kept giving different answers every time she called. Some said yes she qualified and others said no. It was a NIGHTMARE!!!!
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Douglas Foster
•That sounds incredibly frustrating. Did your sister eventually get approved? Was there something specific that finally worked?
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Ruby Knight
•YES she did get it eventually but only after she went IN PERSON to the office with all the medical records and a letter from her daughters doctor explaining the daily care needs. They kept telling her different things on the phone so she just went in person and refused to leave until they fixed it!!!
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Diego Castillo
I don't think the stepparent relationship is the issue. I'm a stepdad to a disabled adult son and my wife got the child-in-care benefit when I retired. The key difference might be that we had legal documentation - we had a care plan from his doctor detailing his limitations and my wife's caregiving responsibilities. We also had a signed statement about her daily caregiving activities. The SSA is weird about the definition of "care" for adult disabled children. For young kids under 16, they assume care is happening. For adult disabled children, they want specific proof of ongoing parental care and supervision.
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Douglas Foster
•This is very helpful! So you think we need more formal documentation about his care needs? Did you have to appeal initially or did it get approved right away with the documentation?
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Diego Castillo
•We were denied initially and had to appeal. On the appeal, we included: - Doctor's statement about his condition and care needs - Daily care log my wife kept for 2 weeks showing all assistance - Statement from his therapist about her role in managing his mental health - Our own detailed description of the supervision and care It took about 3 months after the appeal, but it was approved retroactive to our first application.
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Logan Stewart
Are you sure he's getting SSDI on YOUR record? You said he was getting SSI before. Maybe he's still getting SSI and not actually drawing on your record? That would explain the denial letter wording.
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Douglas Foster
•Yes, I'm certain. When I started getting retirement benefits, we received notification that he qualified for Childhood Disability Benefits (what they sometimes call DAC - Disabled Adult Child) on my record. His benefit amount increased, and he was also enrolled in Medicare after 24 months. His benefit letters specifically state he's receiving benefits as a disabled adult child on my record.
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Mikayla Brown
Your situation is exactly what child-in-care benefits are designed for, but SSA's implementation can be frustrating. Here's what's happening: SSA requires proof of both the disability AND ongoing parental care/supervision for adult disabled children. Their definition of "care" is more stringent for adults than for young children. The exact regulation is in POMS RS 01310.001 and actually says a spouse can qualify when caring for "a disabled child age 16 or over only if the child requires personal care and supervision because of his or her mental or physical condition." You need to do two things: 1. File a reconsideration (form SSA-561) within 60 days of the denial 2. Submit evidence of the care and supervision your wife provides
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Douglas Foster
•Thank you for the specific regulation reference! That's incredibly helpful. We definitely have plenty of evidence about the care she provides - we just didn't know we needed to submit it. I'll get the reconsideration form submitted ASAP.
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Sean Matthews
i had endless problems trying to reach SSA about a similar issue with my disabled nephew. calling was useless - wait times of 2+ hours and then often disconnected. after weeks of frustration, i found a service called Claimyr (claimyr.com) that got me connected to a real SSA agent in under 20 minutes. they have a video showing how it works: https://youtu.be/Z-BRbJw3puU it saved me so much time and stress. might be worth checking out if you need to talk to someone at SSA directly about this complicated situation. i was able to get clarification on exactly what documentation was needed.
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Douglas Foster
•Thank you! I've been trying to call them to discuss the denial but the wait times are terrible. I'll check this out - being able to actually talk to someone about exactly what documentation we need would be so helpful.
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Ruby Knight
•this service WORKS!!! i used it last month when i needed to fix a problem with my mothers benefits. soooo much better than waiting on hold for 3 hours!!!
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Ali Anderson
Wait why does she want child in care benefits instead of just waiting a few months until 62 for regular spousal? Isn't she almost 62 anyway? Just curious
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Douglas Foster
•She needs to stop working very soon for health reasons, and those few months of income would really help us. Also, my understanding is that child-in-care spousal benefits don't have the reduction for claiming early that regular spousal benefits do at 62. So she'd get the full 50% of my PIA rather than the reduced amount.
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Mikayla Brown
•That's correct. Child-in-care spousal benefits provide the full 50% of the worker's PIA regardless of the spouse's age. At 62, regular spousal benefits would be reduced to about 35% of your PIA. Big difference! Definitely worth pursuing the child-in-care option.
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Nina Chan
One more important thing: When your wife files the reconsideration, make sure you specifically address the wording in the denial that says "she is not caring for a child who is entitled to benefits on my record." This suggests there might be confusion in their system about your stepson's benefit status. Include a copy of his benefit award letter showing he receives benefits on your record. Also, if the reconsideration is denied, don't give up! Request a hearing with an Administrative Law Judge. They often have a better understanding of these nuanced situations.
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Douglas Foster
•Great point. I'll definitely include his benefit letter with the reconsideration. If we need to go to the ALJ level, we will. This benefit makes a significant difference for us financially. Really appreciate everyone's help and suggestions!
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