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I've been through a similar situation and wanted to share some practical tips that helped me prepare for when my daughter's benefits ended. First, create a written timeline now - mark your calendar for when your son turns 17.5 (to watch for that school status form), his 18th birthday, and his expected graduation date. Second, start reaching out to SSA about 4-5 months before he turns 18 to confirm the exact termination date and get any necessary forms. Third, if you're planning to modify child support when benefits end, consider consulting with a family law attorney about 6 months before the benefits stop - they can help you understand your state's specific requirements and timeline for filing. Finally, document everything - keep copies of all SSA correspondence, your annual payee reports, and records of how the benefits were used. This documentation will be helpful both for SSA and for court proceedings. The transition doesn't have to be overwhelming if you plan ahead!
This is such excellent advice! I'm definitely going to create that timeline right away - having specific dates marked will help me feel more in control of this situation. The 6-month advance planning for the attorney consultation is particularly helpful since I know these things can take time. I've been keeping good records for the SSA payee reports, but you're right that I should organize them better for potential court use too. It's reassuring to hear from someone who's actually been through this process successfully. Thank you for taking the time to share such detailed guidance!
I'm new to this community but facing a similar situation with my 15-year-old daughter who receives benefits from her father's disability record. Reading through all these responses has been incredibly helpful! I had no idea about the Student Statement form or that benefits could continue until 19 if still in high school. One thing I'm wondering about - does anyone know if the rules are different for children receiving benefits from a parent on disability versus retirement? My ex went on SSDI rather than early retirement, but I assume the age cutoffs are the same? Also, I've been struggling with those annual payee reports - they're so confusing. Does anyone have tips for organizing records throughout the year to make completing them easier?
Welcome to the community! The age cutoffs are the same for children receiving benefits from a parent's SSDI record versus retirement - benefits continue until 18, or 19 if still in high school full-time. The Student Statement form applies to both situations too. For organizing records for those payee reports, I've found it helpful to keep a simple monthly log or use a dedicated folder (physical or digital) where I track major expenses throughout the year. I note things like housing costs (rent/mortgage portion), food expenses, clothing purchases, medical bills, school supplies, etc. Even keeping receipts in a shoebox labeled by month makes it much easier when report time comes around. Some people use a simple spreadsheet with columns for date, expense type, and amount. The key is staying consistent throughout the year rather than trying to reconstruct everything at report time!
Just wanted to add one more consideration that might be relevant - if your mom's boyfriend is currently 62 and taking reduced benefits, his monthly payment will continue to be reduced for the rest of his life. However, when he passes away (hopefully many years from now), your mom as his surviving spouse would be eligible for survivor benefits based on what he WOULD have received at his full retirement age, not his reduced amount. So even if the spousal benefit doesn't help her now, the marriage could still provide valuable survivor protection down the road. This is different from the spousal benefit calculation and something else to factor into their decision. Of course, nobody likes to think about these scenarios, but it's part of the overall financial picture when considering remarriage at this stage of life.
That's a really thoughtful point about the survivor benefits being based on his full retirement amount rather than his reduced payment! It's good to think about the long-term financial protection aspect even if the immediate spousal benefit doesn't pan out. These kinds of considerations really show how complex Social Security planning can be when you're thinking about remarriage later in life. Thanks for bringing up that important distinction between spousal and survivor benefit calculations.
Great thread with lots of helpful information! I just wanted to add that when your mom calls SSA to get the estimate, she should also ask about the "deemed filing" rules. Since she's already receiving her own retirement benefit and is past full retirement age, if she does become eligible for a spousal benefit after marriage, SSA will automatically pay her the higher of the two amounts. But it's still worth understanding exactly how they calculate everything so there are no surprises. Also, if they do decide to get married, make sure to keep good records of the marriage date since SSA will need proof of the marriage duration when she applies for any spousal benefits. A certified copy of the marriage certificate will be required. Good luck to your mom - it sounds like you're doing a great job helping her navigate this complex decision!
you should check out ABLE accounts if you get disability!! we set one up for my husband and it lets you save money without losing benefits. theres income limits for SSI but not SSDI but the ABLE account is still helpful for planning
I'm going through a similar situation right now at 59 with rheumatoid arthritis and fibromyalgia. Based on my research and consultation with a disability attorney, here's what I've learned that might help you: First, start documenting EVERYTHING now - keep a daily symptom journal, get regular medical appointments, and make sure your doctors are noting functional limitations, not just diagnoses. The SSA wants to see how your conditions prevent you from working ANY job, not just your current one. Second, consider applying for SSDI while you're still working if your condition worsens. You can work part-time and earn up to $1,550/month (2025 limit) during the application process without it affecting your claim. Third, regarding your wife's potential spousal benefits - she could claim on your SSDI record starting at 62, but it would be reduced. However, if she also qualifies for SSDI on her own record, that might be more advantageous since there's no age reduction for disability benefits. One thing that really opened my eyes: my attorney said to think of SSDI as "pre-paying" for your full retirement benefit. You've already earned it through your work credits, and disability just lets you access it early without the typical early retirement penalties. The process is daunting, but don't let that discourage you from applying if you genuinely can't work. Start gathering your medical records now - you'll need them either way.
This is incredibly helpful advice! I had no idea you could work part-time during the SSDI application process - that could really help with the financial strain during the waiting period. The daily symptom journal is something I'm going to start immediately. Can I ask how long you've been working with your disability attorney? Did you hire them before applying or after getting denied? I'm trying to figure out the best timing for getting legal help. Also, the point about SSDI being like "pre-paying" for retirement benefits really helps me think about this differently. Thank you for sharing your experience - it's reassuring to hear from someone in a similar situation.
I'm dealing with a similar situation right now! My husband just turned 66 and we were planning to file for his Social Security next month while continuing to max out our HSA contributions. I had NO idea about this automatic Medicare Part A enrollment issue until I saw your post. This is exactly the kind of critical information that should be prominently displayed on the Social Security application forms and website. Instead, it's buried in fine print that most people miss. We've been contributing to our HSA for 8 years specifically as part of our retirement healthcare strategy, and now we have to completely recalculate our plans. Thank you for sharing your experience - it's saving us from making the same costly mistake. We're going to delay his Social Security filing until we're ready to give up the HSA contributions. It's frustrating that the system forces this either/or choice when many people could benefit from both programs simultaneously.
I'm so glad this post helped you avoid the same mistake! It's really frustrating how poorly communicated this rule is. When I was going through the Social Security application process, there was no clear warning about the HSA implications - just a checkbox to decline Medicare enrollment that apparently doesn't actually work for Part A when you're claiming benefits after 65. You're absolutely making the smart choice by delaying your husband's Social Security filing. We're learning the hard way that the math really doesn't work out - losing those HSA tax advantages for multiple years isn't worth starting Social Security a few months earlier. The government really needs to fix this disconnect between programs that were created decades apart but now interact in ways that hurt retirement planning. Good luck with your revised timeline! At least you found out before filing rather than getting that surprise Medicare card in the mail like we did.
I'm so sorry you're going through this - it's one of the most frustrating "gotcha" rules in the entire Social Security/Medicare system. What happened to you is unfortunately very common and perfectly legal, even though it feels completely unfair. The SSA agent was correct that you cannot decline Medicare Part A while receiving Social Security retirement benefits after age 65. This is mandated by federal law and there are no exceptions. The decline option you saw during your SS application only applies to Medicare Parts B and D, not Part A. For your HSA situation, you'll want to act quickly to avoid penalties. Contact your HSA administrator and request an "excess contribution correction" for any contributions made after your Medicare Part A effective date (October 2024). They'll calculate any earnings on those excess contributions that also need to be withdrawn. As long as you complete this before your tax filing deadline (including extensions), you can avoid the 6% penalty entirely. The silver lining is that your wife can still contribute to the HSA at the individual rate since she doesn't have Medicare coverage yet. And all your existing HSA funds remain available for tax-free medical expenses throughout retirement. This rule really needs better disclosure - too many people get blindsided by it when they're just trying to optimize their retirement planning.
Anastasia Ivanova
That's a good point. She did work for about 25 years as a teacher in a private school, but I think her own benefit calculation was quite a bit lower than even the 50% she gets from Uncle Frank's record. Still worth checking though!
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Issac Nightingale
I'm so sorry for your family's loss. This is definitely a stressful time to be dealing with benefit questions, but you're being such a good advocate for your aunt. Just wanted to add that when she calls SSA, she should also ask about any potential lump-sum death benefit ($255) that she might be eligible for as the divorced spouse. It's not a huge amount, but every bit helps during this transition period. Also, if she's feeling overwhelmed by the phone process, many local SSA offices allow walk-ins for urgent matters like survivor benefit applications - sometimes that can be faster than trying to get through on the phone, especially given the current wait times people are experiencing.
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