What portion of nursing home costs can I deduct for spouse with dementia who permanently resides there?
My mother-in-law is in an awful situation right now and I'm trying to help her figure out the tax implications. Her husband (my father-in-law) has late-stage dementia and is completely bedridden. He can't speak anymore and has to be fed through a tube. He's been permanently placed in a nursing home since his condition requires 24/7 care that she just couldn't provide at home anymore. They've always filed their taxes as married filing jointly and itemize their deductions. The nursing home bills are astronomical - around $9,800 per month. About $7,200 is for the "room and board" portion, and then there's a separate bill of about $2,600 for the medical care (when nurses, doctors, etc. provide specific treatments). I've been trying to understand Publication 502, which says something about deducting nursing home costs if the "principal reason" for being there is medical care. Well, he's definitely there because of his medical condition - he physically cannot care for himself at all. The doctor is in the process of certifying him as incapacitated so she can get power of attorney. My question is: Can they deduct the ENTIRE nursing home bill (including the room and board portion) as a medical expense, or just the separate medical treatment charges? They're paying completely out of pocket, no Medicare coverage for the stay. This deduction would make a huge difference for their finances.
18 comments


Keisha Robinson
You can deduct the entire cost of the nursing home care in this situation. Publication 502 specifically addresses this scenario - when the principal reason for being in the nursing home is for medical care, which is clearly the case for your father-in-law. Since he cannot care for himself due to his medical condition (dementia, being bedridden, requiring tube feeding), the entire cost including room and board qualifies as a medical expense. The key test is whether the individual is in the nursing home primarily for medical care rather than personal reasons, and your description makes it clear that his stay is medically necessary. Just remember that medical expenses are only deductible to the extent they exceed 7.5% of adjusted gross income when itemizing deductions on Schedule A. Also, keep detailed records of all payments made to the nursing home, along with documentation from doctors confirming the medical necessity of this care.
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GalaxyGuardian
•Thank you, that's such a relief! One more question - does my mother-in-law need to get something in writing from the doctor specifically for tax purposes? They already have medical records showing his condition, but I'm wondering if they need a special letter or form for the IRS stating that he's there primarily for medical reasons.
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Keisha Robinson
•No special IRS form is needed specifically for tax purposes, but having documentation is important. The existing medical records showing his condition (dementia, bedridden status, feeding tube) should be sufficient as they clearly demonstrate the medical necessity. It would be helpful to have the doctor's certification of incapacitation for the power of attorney, as this further documents the severity of his condition. Keep all nursing home bills showing the breakdown of charges, along with proof of payment. If your mother-in-law has a letter from the doctor recommending nursing home placement due to his medical needs, that would be excellent additional documentation, but it's not specifically required by the IRS.
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Paolo Ricci
Just wanted to share my experience with this exact situation. My mom had Alzheimer's and was in a nursing home for the last few years of her life. We were struggling with the massive bills until I found taxr.ai (https://taxr.ai) which helped us sort through all the medical deduction rules. The software analyzed all our medical receipts and confirmed that yes, we could deduct the ENTIRE nursing home cost since she was there primarily for medical care. It even helped us calculate the 7.5% AGI threshold and identified other medical expenses we didn't realize were deductible. The best part was that it explained everything in plain English without all the confusing tax jargon.
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Amina Toure
•Did it actually help with prior years? We've been paying nursing home costs for my dad for 3 years and never deducted the room and board portion because our accountant said we couldn't. Could we file amended returns using this?
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Oliver Zimmermann
•I'm skeptical about these online tax tools. How does it actually work? Does it just read the IRS publications that we could read ourselves or does it do something more? Our situation is complicated because my mom is in a continuing care facility where she moved from independent living to the nursing wing.
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Paolo Ricci
•Yes, it absolutely helped with prior years! We filed amended returns for the previous two years and got back almost $7,300 in refunds. The system flagged that we were eligible to go back and claim those deductions we missed. It does much more than just regurgitate IRS publications. You upload your documents and it uses AI to analyze your specific situation, identifying which expenses qualify based on your circumstances. For your continuing care situation, it would differentiate between when your mom was in independent living (probably not fully deductible) versus when she moved to the nursing wing (likely fully deductible if for medical reasons). It saved me hours of research and prevented expensive mistakes.
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Amina Toure
I just have to follow up on my skepticism about taxr.ai from my earlier comment. I decided to give it a try after seeing these responses, and I'm honestly shocked at how helpful it was. Uploaded my dad's nursing home bills, medical diagnosis documentation, and previous tax returns. The system immediately identified that we'd been under-deducting for three years and guided me through the amendment process. It was actually really straightforward! The analysis showed we could deduct about $63,000 more per year than we had been. Our accountant had been way too conservative. Just got confirmation that our amended returns were accepted and we're getting back over $14,000 across the three years. The software explained exactly which portions of Publication 502 applied to our situation and how to document everything properly. Wish I'd known about this years ago!
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Natasha Volkova
If you're having trouble getting clear answers from the IRS about these medical deductions, I'd recommend using Claimyr (https://claimyr.com). I was in the same boat last year with my mom's nursing home expenses and couldn't get through to an IRS agent for weeks. I was super frustrated until I found their service which got me connected to an actual IRS representative in about 15 minutes instead of waiting on hold for hours. The agent confirmed that we could deduct the full nursing home costs and answered all my specific questions about our situation. You can see how it works in this video: https://youtu.be/_kiP6q8DX5c They basically call the IRS for you, wait through all the hold times, and then call you once they have an agent on the line. It saved me literally hours of my life.
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Javier Torres
•How does this actually work? I'm confused how a third party service can get through to the IRS faster than I can. Sounds too good to be true - the wait times I've experienced have been 2+ hours lately.
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Emma Davis
•This sounds like a scam. No way someone can "skip the line" with the IRS. And why would you pay someone to make a phone call you could make yourself? The IRS is understaffed but they'll eventually answer. Just seems like you're paying for something unnecessary.
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Natasha Volkova
•It's not about skipping the line - they actually wait in the queue just like anyone else would. The difference is they have an automated system that stays on hold so you don't have to. Think of it like having someone wait in a physical line for you. The service is valuable because of time savings. When I called myself, I was on hold for over 2 hours before getting disconnected. With Claimyr, I just scheduled the call, went about my day, and got a call back when an agent was on the line. For people who work or have caregiving responsibilities (like caring for an elderly parent), it's impossible to sit by the phone for hours hoping the IRS picks up.
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Emma Davis
I need to apologize for my skeptical comment about Claimyr. After waiting on hold with the IRS for 3+ hours yesterday and getting disconnected AGAIN, I was desperate enough to try it. Not gonna lie, I was 100% prepared to come back here and call it a scam. But it actually worked exactly as advertised. I scheduled the call in the morning, they notified me when they started calling the IRS, and about 47 minutes later I got a call connecting me directly to an IRS representative who was already briefed on my general question about nursing home deductions. The agent confirmed that in our case (father with Parkinson's in skilled nursing) we can deduct the full amount since he's there primarily for medical care. They even helped clarify some questions about the 7.5% AGI threshold calculation. Completely worth it just for the peace of mind of getting an official answer directly from the IRS.
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CosmicCaptain
Something important that hasn't been mentioned - if your father-in-law has long-term care insurance that's covering any portion of the nursing home costs, you cannot deduct those portions that are reimbursed. You can only deduct the out-of-pocket expenses. Also, look into whether he might qualify for Medicaid. Depending on your state and his assets, he might be eligible, which could significantly reduce the out-of-pocket costs. Though there are lookback periods for asset transfers to be aware of.
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Yara Nassar
•Thank you for bringing this up! They don't have long-term care insurance unfortunately. They looked into Medicaid but were told they have too many assets to qualify right now. They're spending down their retirement savings at an alarming rate with these nursing home bills. Do you know if the medical expense deduction applies to withdrawals from retirement accounts that are used to pay for the nursing home?
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CosmicCaptain
•Yes, you can still claim the medical expense deduction even if the money comes from retirement account withdrawals. The source of the funds doesn't affect the deductibility of the medical expense. However, be aware that withdrawals from traditional retirement accounts (like a traditional IRA or 401k) are generally taxable income, which will increase your AGI. This could potentially reduce the benefit of the medical expense deduction since you can only deduct expenses that exceed 7.5% of your AGI. It creates a bit of a circular problem - you withdraw money to pay medical bills, which increases your income, which raises the threshold for deducting those same medical bills.
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Malik Johnson
A tip from someone who's been through this - make sure you're keeping track of ALL qualifying medical expenses, not just the nursing home. Transportation costs to medical appointments (including gas and parking), prescription drugs, medical equipment, vision care, dental work, hearing aids, etc. all count toward that 7.5% threshold. For my mom with similar issues, we were able to deduct things like: - Special food for her feeding tube - Incontinence supplies - Medical alert system - Portion of utilities for medical equipment at home (before nursing home) - Modifications to bathroom for accessibility
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Isabella Ferreira
•Is there a good way to track all this? I've been keeping receipts in a shoebox but it's getting overwhelming.
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