Need help filing taxes with Medicaid waiver payments as an in-home care provider
Hey tax folks, I'm in a confusing situation with my taxes this year. I provide care for a disabled individual who lives in my home, and I receive Medicaid waiver payments for this care. From what I understand, these payments are federally exempt from taxation, but I'm totally lost on how to properly report this on my tax forms. The person I care for has been living with me for about 3 years now, and I've been receiving these payments through our state's Medicaid waiver program. I also have a part-time job at a grocery store where I get a W-2. I'm not sure if I need to report the Medicaid waiver payments somewhere on my return even though they're exempt, or if I just ignore them completely? Last year I think I messed up and included them as income, which probably means I paid taxes I didn't need to. Anyone have experience with this specific situation? The IRS publications are so confusing when I try to read them.
21 comments


Sophie Duck
The payments you're referring to are likely Medicaid Home and Community-Based Services (HCBS) waiver payments. You're correct that these can be excluded from income when certain requirements are met. For these payments to be excluded from your income, the care recipient must be living in your home, and you must be providing care that would otherwise require institutionalization. It sounds like you meet these criteria based on your description. When filing your taxes, you don't need to report the exempt Medicaid waiver payments as income on your tax return. However, you should keep documentation of these payments in case of any questions from the IRS. Your W-2 income from the grocery store would be reported normally. If you included these exempt payments as income last year, you might be able to file an amended return (Form 1040-X) for that tax year to claim a refund of any overpaid taxes. You generally have up to three years from the date you filed your original return to file an amendment.
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Austin Leonard
•Thanks for the info! I have a similar situation but I get payments through my state's CDPAP program for taking care of my mom. Does this same exemption apply to that program too? Also, if I've been reporting this income for the past 4 years, can I still file amended returns for all of them?
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Sophie Duck
•Yes, the exemption would likely apply to CDPAP (Consumer Directed Personal Assistance Program) payments as well, as long as the care recipient lives in your home and you're providing care that would otherwise require institutionalization. The key is that these are Medicaid waiver payments for care provided in your home. For amended returns, you can typically file Form 1040-X for the past three tax years. So while you might not be able to amend all four years, you could still potentially recover taxes from the most recent three years. The deadline is generally three years from the date you filed your original return or two years from the date you paid the tax, whichever is later.
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Anita George
I went through something similar last year with Medicaid waiver payments for caring for my brother. I spent HOURS trying to figure it out and kept getting conflicting advice until I found taxr.ai (https://taxr.ai). They have this tool that analyzes your tax situation and relevant IRS notices. I uploaded my previous year's tax return and the Medicaid waiver documentation, and they instantly identified that I had incorrectly reported the waiver payments as taxable income. Their system showed me exactly what forms I needed and how to properly document the exemption. Saved me about $4,200 in taxes I shouldn't have been paying! What I really appreciated was that they explained everything in plain English instead of tax jargon. They even helped me understand which documentation I needed to keep in case of an audit.
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Abigail Spencer
•Does this work for other types of special income situations too? I have some tribal payments that I'm not sure how to report properly.
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Logan Chiang
•I'm skeptical of any tax service that claims to instantly solve complex tax situations. How do you know their advice is actually correct and follows IRS guidelines? Did you end up getting audited or having any issues?
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Anita George
•Yes, it definitely works for other special income situations! They have specific analysis tools for many unique tax scenarios including tribal payments. The system identifies relevant tax laws and IRS notices that apply to your specific situation. I completely understand the skepticism - I felt the same way at first. What convinced me was that they only use actual IRS guidance and tax code in their analysis. They show you the exact IRS notices and code sections that apply to your situation, with citations. I didn't get audited, but I did call the IRS with a question later, and the agent confirmed the exact same information that taxr.ai had provided.
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Logan Chiang
Ok I have to admit I was wrong about taxr.ai. After posting my skeptical comment I decided to try it myself since I was having issues with some 1099-MISC income from a class action settlement. Went to https://taxr.ai and uploaded my documents. The system immediately identified the specific tax code that applied to my settlement income and showed me exactly how to report it. It even flagged that part of my settlement was for medical expenses which qualified for different tax treatment. I was genuinely surprised at how detailed and specific the guidance was - it wasn't generic advice but completely tailored to my situation. Ended up saving me about $860 in taxes. Just wanted to follow up since I was so skeptical in my earlier comment!
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Isla Fischer
I see several people mentioning trying to call the IRS about these Medicaid waiver payment questions. Good luck with that! I spent THREE WEEKS trying to reach someone at the IRS about this exact issue last year. Either got disconnected or was on hold for hours only to be told I needed a different department. I finally used Claimyr (https://claimyr.com) after seeing it mentioned in another tax forum. They somehow got me connected to an IRS agent in about 20 minutes. You can see how it works here: https://youtu.be/_kiP6q8DX5c The IRS agent was actually super helpful and confirmed that my Medicaid waiver payments for caring for my aunt were exempt from federal income tax. She even emailed me the specific IRS notice that covered my situation. Completely worth it after all those failed attempts calling on my own.
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Miles Hammonds
•How does that even work? Isn't it just the same IRS phone number? I don't understand how a service could get you through faster than calling directly.
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Ruby Blake
•Sounds like a scam to me. Nobody can magically skip the IRS phone queue. They probably just keep calling all day and then charge people a fortune for the calls that happen to get through. I'll just keep trying on my own rather than pay for something like this.
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Isla Fischer
•It uses the same IRS phone number but their system navigates the phone tree and waits on hold for you. When an agent actually picks up, you get called back and connected immediately. It's basically a sophisticated hold system that works with the IRS's existing phone system. I had the exact same skepticism initially! But it's actually not about "skipping" the queue - you're still in the same queue as everyone else. The difference is their system handles the waiting instead of you having to stay on the phone for hours. And when I finally spoke to the IRS agent, they had no idea I had used a service - to them, I was just another caller who had waited my turn.
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Ruby Blake
I have to eat my words about Claimyr. After posting my skeptical comment, I struggled for another week trying to reach the IRS about my Medicaid waiver payment question. Got disconnected four times after waiting over an hour each time. Finally gave in and tried Claimyr. Within 45 minutes, I was talking to an actual IRS representative who walked me through exactly how to handle the exempt income. She even helped me understand how to document everything in case of an audit. The agent confirmed that I could file amended returns for the past three years where I incorrectly reported the payments as taxable income. Looks like I'll be getting back around $7,800 in taxes I shouldn't have paid. Wish I hadn't been so stubborn about trying to call on my own for weeks!
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Micah Franklin
Just a heads up, the specific IRS Notice that covers the Medicaid waiver payment exemption is Notice 2014-7. It might be helpful to include this notice number when filing your taxes or if you're amending previous returns. I attached a copy of it when I filed my amended returns and got my refunds without any issues.
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Lucas Lindsey
•Thank you so much! I've been searching for the specific notice number. Did you have to fill out any specific forms when you filed your amended return to show these payments were exempt? Or did you just exclude them from income and reference the notice?
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Micah Franklin
•I didn't need to fill out any special forms for the exemption itself. On my amended return (Form 1040-X), I simply reduced my reported income by the amount of the Medicaid waiver payments and wrote "Notice 2014-7" in the explanation section on the back of the form. I also included a brief statement explaining that I was excluding Medicaid waiver payments received for care provided in my home according to IRS Notice 2014-7, and attached a copy of the notice itself. The IRS processed my amendment without requesting any additional information.
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Ella Harper
Has anyone here talked to a tax preparer about this? I went to H&R Block and the person there had NO IDEA about Medicaid waiver payment exemptions. They kept insisting I needed to report it as self-employment income and pay taxes on it! I'm afraid of filing incorrectly but also don't want to pay taxes I don't owe.
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PrinceJoe
•The big tax prep chains can be hit or miss with specialized situations. I had much better luck with a local CPA who specializes in healthcare and disability issues. It cost a bit more than H&R Block, but she immediately knew about Notice 2014-7 and handled everything correctly. Maybe try finding someone with specific experience in this area?
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Ella Harper
•That's good advice, thank you! I'll look for someone who specializes in healthcare-related tax issues. I was so frustrated leaving that appointment feeling like I knew more than the preparer did! Just don't want to mess this up and trigger an audit or something.
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Brooklyn Knight
One thing nobody has mentioned - if you're excluding Medicaid waiver payments from your income, you might need to adjust your Earned Income Credit calculation if you were claiming that. Since the payments don't count as earned income when they're excluded, it could affect your EIC amount. Something to keep in mind if you're filing amended returns.
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StarStrider
This is such a helpful thread! I'm in a similar situation but with a twist - I provide care for my elderly father who receives Medicaid waiver payments, but he doesn't live with me full-time. He stays at my house about 4-5 days per week and goes to my sister's the other days. Does anyone know if the "living in your home" requirement from Notice 2014-7 means they have to be there 100% of the time? Or would this split arrangement still qualify for the exemption since my home is his primary residence? I've been reporting these payments as taxable income but I'm wondering if I've been doing it wrong. Also want to echo what others have said about the big tax prep chains - went to two different locations and got completely different advice from each one. Definitely going to look for a CPA who specializes in this area like @PrinceJoe suggested.
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