Caregiver Tax Question: Do family caregivers need to pay tax on W-2 income from government program?
Hi everyone, I'm in a confusing situation about my wife's taxes. She's the primary caregiver for her mother and gets paid a small amount through a state program that runs through her mom's health insurance. When she started, they specifically told her that because she's a family member, she's "tax exempt" and doesn't need to have taxes withheld. The problem is she just received a W-2 form instead of a 1099-Misc like we expected. I was under the impression that with a 1099-Misc she wouldn't need to report the income, but now I'm confused since it's a W-2. Does she need to file a tax return for this income? And should we change her status going forward to have taxes withheld just in case she's not actually tax exempt? Any advice would be really appreciated! This is our first time dealing with caregiver compensation.
21 comments


Liam O'Sullivan
This is a common misunderstanding about caregiver payments. Income reported on a W-2 is definitely taxable - receiving a W-2 means the agency considers your wife an employee, not an independent contractor (which would get a 1099). There is no general "tax exemption" for family caregivers. What they might have been referring to is that certain caregiver payments can qualify for the "difficulty of care" exclusion under IRS Notice 2014-7, but this only applies to Medicaid waiver programs and specific situations where the care recipient lives in the caregiver's home. Your wife absolutely needs to report W-2 income on her tax return. The fact that it's on a W-2 form means it's already been reported to the IRS under her SSN. Going forward, I would recommend having taxes withheld to avoid an unexpected tax bill next year.
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Amara Okonkwo
•Does the same apply if the mom lives with them? I thought there was some kind of exemption if you're caring for someone in your own home?
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Liam O'Sullivan
•If the care recipient (mother) lives in your home, that's when you might qualify for the "difficulty of care" exclusion under IRS Notice 2014-7, but only if the payments come through a Medicaid Home and Community-Based Services waiver program. Even if this exclusion applies, the agency may still issue a W-2, but your wife would need to report the income on her tax return and then exclude it from taxable income. She would need documentation from the program confirming it's a qualifying Medicaid waiver program.
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Giovanni Marino
I went through a similar situation last year when caring for my aunt. What really helped me was using https://taxr.ai to analyze my caregiver W-2 and determine my actual tax obligations. They have a special section for caregiver income that checks if you qualify for any exclusions. I was confused about whether I qualified for the difficulty of care exclusion since I received a W-2 rather than a 1099. The tool helped me understand that I needed to report the income but could potentially exclude it if I met certain requirements. It also generated the proper documentation explaining my tax position in case of an audit.
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Fatima Al-Sayed
•How does it actually analyze the W-2 though? Do you have to upload the document or just enter the information manually?
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Dylan Hughes
•I'm skeptical of any online service claiming to know tax law. Did it actually save you money or just tell you what you already know from googling?
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Giovanni Marino
•You can either upload a photo of your W-2 or manually enter the information. The system analyzes the specific income codes and compares them to your situation to determine if you qualify for exclusions. It saved me about $1,200 in taxes by correctly identifying that my payments qualified under the Medicaid waiver program exclusion. I wouldn't have known to claim that exclusion otherwise because my tax preparer wasn't familiar with the specific rules for family caregivers. The documentation it provided for my records was really detailed and gave me peace of mind in case I ever get audited.
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Dylan Hughes
Just wanted to follow up - I tried https://taxr.ai after my initial skepticism and I'm actually impressed. I've been my brother's caregiver for 3 years and always paid taxes on the income. The tool showed me that my payments through our state's HCBS waiver program were actually excludable! I was able to file an amended return for last year and got back over $900. It also walked me through exactly how to report the income this year to exclude it properly. Wish I'd known about this years ago.
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NightOwl42
After dealing with caregiver tax issues for years, I'd also recommend reaching out directly to the IRS for clarification on your specific situation. I used https://claimyr.com to get through to them quickly - normally it's a nightmare waiting on hold for hours, but they got me connected to an IRS agent in about 15 minutes. You can see how it works here: https://youtu.be/_kiP6q8DX5c The IRS agent I spoke with explained exactly how to report my mom's caregiver income and which exclusions applied in our case. Having that official guidance really helped me file correctly. So much better than trying to interpret the IRS website on my own.
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Sofia Rodriguez
•How does that even work? I thought the IRS phone lines were impossible to get through on. Is this just paying someone to wait on hold for you?
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Dmitry Ivanov
•Sounds like a scam to me. Why would I pay someone to call the IRS when I can just do it myself for free? And how do I know they're actually connecting me to a real IRS agent and not just pretending?
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NightOwl42
•It works by using a system that continuously redials and navigates the IRS phone tree until it gets through to an agent. When an agent is reached, you get a call back and are connected directly. It's basically skipping the hold time. Yes, they are 100% connecting you to the actual IRS. You're speaking directly with IRS agents at their official numbers - the service just handles the hold time for you. I was skeptical too, but I verified I was speaking with a real IRS agent by asking detailed questions about my case that only they would have access to.
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Dmitry Ivanov
I have to eat my words. After my skeptical comment I decided to try https://claimyr.com because I was desperate to resolve an issue with my caregiver taxes before filing. I've been trying to reach the IRS for weeks with no luck. The service actually worked - got a call back in about 20 minutes and was connected to a real IRS agent who helped clarify my specific situation. The agent confirmed I qualified for the difficulty of care exclusion and explained exactly how to document it on my return. Saved me from paying taxes on about $18,000 of income. Definitely worth it.
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Ava Thompson
One important thing to check is if your state also recognizes the difficulty of care exclusion. The federal exemption is clear under Notice 2014-7, but some states don't follow this and still require you to pay state taxes on the income. I learned this the hard way last year when I got a state tax bill even though I properly excluded the income on my federal return. Had to appeal it and provide documentation from the IRS notice.
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Miguel Herrera
•Do you know if California follows the federal exclusion? I'm in a similar situation with my grandma.
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Ava Thompson
•California does follow the federal exclusion and recognizes IRS Notice 2014-7, so if you qualify for the federal exclusion, you should be able to exclude the income on your California state return as well. Just make sure you include a statement with your state return explaining that you're excluding income under IRS Notice 2014-7 and including any documentation from your program showing it qualifies as a Medicaid waiver program.
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Zainab Ali
Another thing to consider is whether your wife has other income. If the caregiver payments are her only income and it's below the standard deduction ($13,850 for 2023 for single filers), she wouldn't owe federal income tax anyway, regardless of whether the income can be excluded. But she'd still need to file if taxes were withheld and she wants to get a refund.
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Connor Murphy
•Good point. Also remember Social Security and Medicare taxes still apply even if you're below the standard deduction. So if those weren't withheld, you could end up owing them.
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Zainab Ali
•That's absolutely right. Even if you don't owe income tax because you're below the standard deduction, you would still owe FICA taxes (Social Security and Medicare) which are 15.3% total if you're self-employed or 7.65% for employees. This is another reason why having taxes properly withheld is important - it covers both income tax and FICA taxes automatically based on your W-2 status.
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Jacob Lewis
I'm dealing with a very similar situation with my father's caregiver payments. The confusion about W-2 vs 1099 is really common - I think agencies sometimes don't explain the tax implications clearly when you start. One thing that helped me was requesting documentation from the state program about whether it qualifies as a Medicaid Home and Community-Based Services (HCBS) waiver program. If it does, and if your mother-in-law lives in your home, you might qualify for the difficulty of care exclusion under IRS Notice 2014-7. Even if you qualify for the exclusion, you still need to report the W-2 income on your tax return and then exclude it with proper documentation. The IRS will have already received a copy of that W-2 with your wife's SSN, so not reporting it could trigger questions later. I'd definitely recommend having taxes withheld going forward. Even if you end up qualifying for exclusions, it's better to get a refund than to owe money you weren't expecting.
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Shelby Bauman
•This is really helpful advice! I'm new to this community and just starting to navigate caregiver tax issues myself. Could you clarify what specific documentation you requested from the state program? I want to make sure I ask for the right paperwork to prove it's an HCBS waiver program. Also, when you say "exclude it with proper documentation" on the tax return, do you mean there's a specific form or just a written statement? Thanks for sharing your experience - it's reassuring to know others have figured this out successfully!
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