< Back to Social Security Administration

Jamal Carter

Social Security earnings test exemption for parent caregiver of disabled adult - income confusion before FRA

I've been a paid Individual Provider caregiver for my adult son (28) who has severe disabilities for about 5 years now. I understand that because I'm his parent, my caregiver income is exempt from Social Security taxes (no FICA taken out). But here's what's confusing me - I'm planning to claim my SS retirement benefits next year at 63, which I know is before my Full Retirement Age (67). Will my caregiver income still count against me for the earnings test? Or since it's already exempt from SS taxes, is it also exempt from the earnings test? I'm trying to calculate how much I can actually earn without my SS check being reduced. The earnings limit seems to be around $22,000 for 2025 and I'm making about $31,500 as his caregiver. Thanks for any help figuring this out!

Unfortunately, no - the income being exempt from Social Security taxes is different from the earnings test for early retirement. If you're collecting SS retirement benefits before your FRA, ALL earned income counts toward the earnings limit regardless of whether it's subject to SS taxes. The exemption you have is just from the FICA taxes, not from the earnings test. Your $31,500 caregiver income will definitely count against the 2025 limit and you'll likely see a reduction in benefits.

0 coins

Jamal Carter

•

Oh no! That's not what I was hoping to hear. So even though they don't consider it 'covered' income for tax purposes, they'll still count it when reducing my benefits? That seems so unfair!

0 coins

Mei Liu

•

r u sure? my brothers wife does caregiver stuff for their kid and her social worker told her something different i think. not all income counts the same way

0 coins

Yes, I'm sure. The earnings test looks at wages and self-employment income regardless of whether it's covered for Social Security tax purposes. The only exemptions are for certain types of income like investments, pensions, or annuities - not wages for caregiving work. The social worker might have been referring to something else.

0 coins

As someone who had to navigate this exact situation last year, I can confirm that caregiver income for family members DOES count toward the earnings test even though it's exempt from SS taxes. It's confusing because you'd think they would be treated the same way! I learned this the hard way and had my benefits reduced significantly. One option you might consider: Have you looked into spousal benefits instead of your own if you're married? Sometimes that's a better strategy until FRA depending on your situation.

0 coins

Jamal Carter

•

Thanks for sharing your experience. I'm divorced and my ex passed away, so unfortunately spousal benefits aren't an option for me. Did you find any workarounds or just accept the reduction?

0 coins

Honestly, I just had to accept it. I considered reducing my work hours to stay under the limit, but that would have meant less income overall than working full-time even with the SS reduction. You basically need to do the math and see which approach gives you more total income. Remember that any benefits withheld aren't lost forever - they get added back once you reach FRA.

0 coins

Amara Chukwu

•

Just to be 100% clear because there's a lot of confusion on this topic: The Social Security earnings test applies to ALL earned income before your Full Retirement Age, regardless of whether that income is subject to Social Security taxes. The only exceptions are unearned income (investments, etc.) For 2025, the limit is approximately $22,320 if you're under FRA for the full year. For every $2 you earn above that, SSA will withhold $1 in benefits. With earnings of $31,500, you'd be $9,180 over the limit, which would result in approximately $4,590 in withheld benefits for the year, or about $382.50 per month. You may want to call SSA directly to confirm this for your specific situation, but be prepared for a very long wait time.

0 coins

Jamal Carter

•

Thank you for breaking down the math! That's really helpful. Losing $382.50 per month is significant... I might need to reconsider my timing. And yes, I've tried calling SSA three times - gave up after being on hold for over an hour each time.

0 coins

I just wanted to throw in here that SO MANY PEOPLE get confused about this exact issue. The Social Security Administration does a terrible job explaining the difference between income being exempt from SS taxes vs the earnings test. It's like they intentionally make it complicated!!! I've seen people get hit with unexpected benefit reductions and then they're scrambling to pay bills. The system is broken!!

0 coins

When I was trying to get through to SSA about something similar, I discovered this service called Claimyr that got me connected to a real person in under 20 minutes instead of waiting for hours or getting disconnected. It basically calls SSA for you and holds your place in line, then calls you back when an agent is available. Made a huge difference for me. Their website is claimyr.com and they have a video demo at https://youtu.be/Z-BRbJw3puU showing how it works. Saved me so much frustration when I needed to sort out an earnings test question.

0 coins

Jamal Carter

•

Thank you for the tip about Claimyr! I'm definitely going to check that out. At this point, I really need to speak with someone at SSA to get this clarified for my specific situation. Waiting on hold for hours with my work schedule just isn't possible.

0 coins

NeonNova

•

have u considered just waiting til your full retirement age? then u dont have to worry about the earnings test at all... thats what i did

0 coins

Jamal Carter

•

I've thought about that, but I've got some health issues that make me worried about getting the most out of my benefits. It's a tough call between taking reduced benefits now vs. waiting for full benefits later.

0 coins

One more thing to consider - if your adult child receives SSI or SSDI benefits, your decision to claim early could potentially impact household income calculations depending on your living arrangement and how his benefits are structured. Make sure to factor that into your planning.

0 coins

Jamal Carter

•

That's a good point. He receives SSDI based on his own work record from when he was able to work part-time years ago. We do live together, but since it's SSDI and not SSI, I don't think my income affects his benefits. I'll double-check that though.

0 coins

Amara Chukwu

•

You're correct - if he's on SSDI based on his own record, your income won't affect his benefits. That only matters for SSI, which is needs-based. Also, one clarification about the earnings test: any benefits withheld before FRA aren't permanently lost. Once you reach Full Retirement Age, your monthly benefit will be recalculated to credit you for the months when benefits were withheld. So you do eventually get that money back in the form of a higher monthly payment after FRA.

0 coins

Jamal Carter

•

Oh that's really good to know! I thought those reductions were permanent. That makes the decision a bit less stressful. So basically I'd get smaller checks now while working, but then after 67 my check would increase to account for what was withheld. That's much better than losing it forever!

0 coins

Mei Liu

•

my mom had something like this happen... she got a letter afterwards saying they took too much from her checks and she got back pay but it took like 2 years i think

0 coins

Based on everything in this discussion, here are your main options: 1. Claim at 63 as planned, accept the reduction while working, and know your benefit will be adjusted upward at FRA 2. Reduce your caregiving hours to keep income under the threshold (though this may not be practical for your son's needs) 3. Wait until FRA to claim, avoiding the earnings test entirely 4. Look into whether your state's Medicaid waiver program might allow another family member to be the paid caregiver temporarily until you reach FRA Option 4 might be worth exploring if you have another relative who could step in temporarily.

0 coins

Jamal Carter

•

Thank you for laying out all the options so clearly! I hadn't thought about option 4 - my sister might actually be able to help with that. I'll check with our case manager about whether that's possible under our state's program. Really appreciate everyone's help with this complicated situation!

0 coins

I went through something very similar with my disabled daughter a few years ago. The confusion between SS tax exemption and earnings test rules is SO common - even some SSA representatives get it wrong initially! One thing that really helped me was getting everything in writing from SSA. When you do connect with them (definitely try that Claimyr service someone mentioned), ask them to send you a written explanation of how your specific caregiver income will be treated. That way you have documentation if there are any disputes later. Also, since you're caring for your son, make sure you're taking advantage of any tax credits you might qualify for - like the Child and Dependent Care Credit if he qualifies, or potentially claiming him as a dependent for other tax benefits. Every bit helps when you're dealing with reduced SS benefits! The temporary reduction really isn't as scary once you understand you get that money back later through higher monthly payments. Good luck with whatever you decide!

0 coins

I'm in a similar situation caring for my elderly mother and was completely confused about this same issue until I spoke with SSA last year. What really helped me was creating a spreadsheet to compare the different scenarios - claiming early with reduced benefits vs waiting until FRA. Don't forget to factor in cost of living adjustments (COLA) when you're doing your calculations. The withheld benefits that get added back to your monthly payment after FRA also get adjusted for inflation, so you're not losing purchasing power on that money. Also, if you do decide to claim early, make sure to report your earnings accurately to SSA throughout the year. They can adjust your monthly withholding to spread it out rather than taking a big chunk at the end of the year when they reconcile everything. It makes budgeting much easier! The whole system is needlessly complicated, but at least you're asking the right questions before making the decision. That puts you way ahead of most people who just stumble into these situations.

0 coins

Thank you so much for the spreadsheet idea! That's exactly what I need to do to visualize all the scenarios. I hadn't thought about the COLA adjustments on the withheld benefits - that's actually reassuring to know I won't lose purchasing power on that money over time. And the tip about reporting earnings accurately throughout the year to spread out the withholding is really smart. I was worried about getting hit with a big surprise at year-end. You're right that this system is way too complicated, but this community has been incredibly helpful in breaking it down!

0 coins

Yuki Tanaka

•

I want to add something important that hasn't been mentioned yet - make sure you understand how the earnings test works if you turn 67 (reach FRA) partway through 2025. In the year you reach FRA, there's actually a higher earnings limit that only applies to the months BEFORE you reach FRA, and after that month there's no limit at all. Since you mentioned planning to claim at 63 next year, this wouldn't apply to you immediately, but it's worth knowing for your planning. Also, I'd strongly recommend keeping detailed records of all your caregiver payments and any documentation about the FICA exemption. If there are ever any disputes with SSA about how your income should be classified, having thorough documentation will save you a lot of headaches. The caregiving work you're doing for your son is so important, and it's frustrating that the system makes it so complicated to understand how it affects your benefits. Definitely use that Claimyr service or try calling SSA early in the morning (right when they open) for the shortest wait times.

0 coins

Ravi Kapoor

•

This is such valuable information, thank you! I didn't know about the different earnings limit in the year you reach FRA - that's definitely something to keep in mind for future planning. You're absolutely right about keeping detailed records. I've been pretty good about saving all my paystubs and the documentation from when I first got set up as his Individual Provider, but I should probably organize it all better in case I need it later. The early morning calling tip is great too - I'll definitely try that along with checking out Claimyr. It really means a lot to have this supportive community helping navigate such a confusing system. Caring for my son is the most important thing, but understanding how it affects my financial future shouldn't be this complicated!

0 coins

I work as a benefits coordinator and see this exact confusion ALL the time. You've gotten great advice here, but I want to emphasize one more point - when you do speak with SSA, ask specifically about Form SSA-131 (Employer Report of Special Wage Payments). Sometimes there are nuances in how different types of caregiver payments are classified that could affect your situation. Also, since you're an Individual Provider, make sure you understand whether you're classified as an employee or independent contractor for your caregiver work. This can sometimes impact how the earnings are reported and counted for the earnings test. The documentation suggestions from others are spot-on. I've seen cases where people had to fight incorrect earnings calculations because they didn't have proper paperwork showing the nature of their caregiver income. Better to over-document than under-document with SSA! One last thought - have you looked into whether your son might qualify for any additional services that could supplement your caregiver income? Sometimes there are respite care programs or other benefits available that could help bridge the gap if you decide to reduce your caregiving hours to stay under the earnings limit.

0 coins

Social Security Administration AI

Expert Assistant
Secure

Powered by Claimyr AI

T
I
+
20,087 users helped today