Social Security earnings test exemption for parent caregiver of disabled adult - income confusion before FRA
I've been a paid Individual Provider caregiver for my adult son (28) who has severe disabilities for about 5 years now. I understand that because I'm his parent, my caregiver income is exempt from Social Security taxes (no FICA taken out). But here's what's confusing me - I'm planning to claim my SS retirement benefits next year at 63, which I know is before my Full Retirement Age (67). Will my caregiver income still count against me for the earnings test? Or since it's already exempt from SS taxes, is it also exempt from the earnings test? I'm trying to calculate how much I can actually earn without my SS check being reduced. The earnings limit seems to be around $22,000 for 2025 and I'm making about $31,500 as his caregiver. Thanks for any help figuring this out!
21 comments
AstroAdventurer
Unfortunately, no - the income being exempt from Social Security taxes is different from the earnings test for early retirement. If you're collecting SS retirement benefits before your FRA, ALL earned income counts toward the earnings limit regardless of whether it's subject to SS taxes. The exemption you have is just from the FICA taxes, not from the earnings test. Your $31,500 caregiver income will definitely count against the 2025 limit and you'll likely see a reduction in benefits.
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Jamal Carter
•Oh no! That's not what I was hoping to hear. So even though they don't consider it 'covered' income for tax purposes, they'll still count it when reducing my benefits? That seems so unfair!
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Mei Liu
r u sure? my brothers wife does caregiver stuff for their kid and her social worker told her something different i think. not all income counts the same way
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AstroAdventurer
•Yes, I'm sure. The earnings test looks at wages and self-employment income regardless of whether it's covered for Social Security tax purposes. The only exemptions are for certain types of income like investments, pensions, or annuities - not wages for caregiving work. The social worker might have been referring to something else.
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Liam O'Sullivan
As someone who had to navigate this exact situation last year, I can confirm that caregiver income for family members DOES count toward the earnings test even though it's exempt from SS taxes. It's confusing because you'd think they would be treated the same way! I learned this the hard way and had my benefits reduced significantly. One option you might consider: Have you looked into spousal benefits instead of your own if you're married? Sometimes that's a better strategy until FRA depending on your situation.
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Jamal Carter
•Thanks for sharing your experience. I'm divorced and my ex passed away, so unfortunately spousal benefits aren't an option for me. Did you find any workarounds or just accept the reduction?
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Liam O'Sullivan
•Honestly, I just had to accept it. I considered reducing my work hours to stay under the limit, but that would have meant less income overall than working full-time even with the SS reduction. You basically need to do the math and see which approach gives you more total income. Remember that any benefits withheld aren't lost forever - they get added back once you reach FRA.
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Amara Chukwu
Just to be 100% clear because there's a lot of confusion on this topic: The Social Security earnings test applies to ALL earned income before your Full Retirement Age, regardless of whether that income is subject to Social Security taxes. The only exceptions are unearned income (investments, etc.) For 2025, the limit is approximately $22,320 if you're under FRA for the full year. For every $2 you earn above that, SSA will withhold $1 in benefits. With earnings of $31,500, you'd be $9,180 over the limit, which would result in approximately $4,590 in withheld benefits for the year, or about $382.50 per month. You may want to call SSA directly to confirm this for your specific situation, but be prepared for a very long wait time.
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Jamal Carter
•Thank you for breaking down the math! That's really helpful. Losing $382.50 per month is significant... I might need to reconsider my timing. And yes, I've tried calling SSA three times - gave up after being on hold for over an hour each time.
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Giovanni Conti
I just wanted to throw in here that SO MANY PEOPLE get confused about this exact issue. The Social Security Administration does a terrible job explaining the difference between income being exempt from SS taxes vs the earnings test. It's like they intentionally make it complicated!!! I've seen people get hit with unexpected benefit reductions and then they're scrambling to pay bills. The system is broken!!
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Fatima Al-Hashimi
•When I was trying to get through to SSA about something similar, I discovered this service called Claimyr that got me connected to a real person in under 20 minutes instead of waiting for hours or getting disconnected. It basically calls SSA for you and holds your place in line, then calls you back when an agent is available. Made a huge difference for me. Their website is claimyr.com and they have a video demo at https://youtu.be/Z-BRbJw3puU showing how it works. Saved me so much frustration when I needed to sort out an earnings test question.
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Jamal Carter
•Thank you for the tip about Claimyr! I'm definitely going to check that out. At this point, I really need to speak with someone at SSA to get this clarified for my specific situation. Waiting on hold for hours with my work schedule just isn't possible.
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NeonNova
have u considered just waiting til your full retirement age? then u dont have to worry about the earnings test at all... thats what i did
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Jamal Carter
•I've thought about that, but I've got some health issues that make me worried about getting the most out of my benefits. It's a tough call between taking reduced benefits now vs. waiting for full benefits later.
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Liam O'Sullivan
One more thing to consider - if your adult child receives SSI or SSDI benefits, your decision to claim early could potentially impact household income calculations depending on your living arrangement and how his benefits are structured. Make sure to factor that into your planning.
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Jamal Carter
•That's a good point. He receives SSDI based on his own work record from when he was able to work part-time years ago. We do live together, but since it's SSDI and not SSI, I don't think my income affects his benefits. I'll double-check that though.
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Amara Chukwu
You're correct - if he's on SSDI based on his own record, your income won't affect his benefits. That only matters for SSI, which is needs-based. Also, one clarification about the earnings test: any benefits withheld before FRA aren't permanently lost. Once you reach Full Retirement Age, your monthly benefit will be recalculated to credit you for the months when benefits were withheld. So you do eventually get that money back in the form of a higher monthly payment after FRA.
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Jamal Carter
•Oh that's really good to know! I thought those reductions were permanent. That makes the decision a bit less stressful. So basically I'd get smaller checks now while working, but then after 67 my check would increase to account for what was withheld. That's much better than losing it forever!
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Mei Liu
my mom had something like this happen... she got a letter afterwards saying they took too much from her checks and she got back pay but it took like 2 years i think
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AstroAdventurer
Based on everything in this discussion, here are your main options: 1. Claim at 63 as planned, accept the reduction while working, and know your benefit will be adjusted upward at FRA 2. Reduce your caregiving hours to keep income under the threshold (though this may not be practical for your son's needs) 3. Wait until FRA to claim, avoiding the earnings test entirely 4. Look into whether your state's Medicaid waiver program might allow another family member to be the paid caregiver temporarily until you reach FRA Option 4 might be worth exploring if you have another relative who could step in temporarily.
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Jamal Carter
•Thank you for laying out all the options so clearly! I hadn't thought about option 4 - my sister might actually be able to help with that. I'll check with our case manager about whether that's possible under our state's program. Really appreciate everyone's help with this complicated situation!
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