Social Security Medicaid asset limit problem - can exceeding $2000 limit be fixed retroactively?
I'm in a panic right now. My mom just received a termination notice from Social Security saying her SSI-linked Medicaid coverage will end in 6 months because her bank account exceeded the $2000 resource limit. Her balance hit $3250 when her tax refund and a small inheritance from her aunt arrived in the same month. She has severe diabetes and COPD and absolutely cannot afford to lose her healthcare coverage. She didn't realize these deposits would push her over the limit and now she's terrified. Has anyone successfully appealed one of these Medicaid terminations? Is there a way to spend down the excess now and keep her benefits? The notice mentions something about a 'good cause' explanation but I'm not sure what would qualify. She's 59 and has been on SSI for almost 10 years after a workplace injury left her unable to work. Any advice would be really appreciated as I don't know where to start with this.
18 comments
Millie Long
This is a fixable situation! Your mom has received what's called a 'resource determination' and there are multiple ways to address it: 1. SPEND DOWN: The most immediate solution is to spend down below the $2000 limit as soon as possible. Have her use the excess funds on necessities like medical supplies, home repairs, or prepaying bills. Keep all receipts. 2. EXCLUSIONS: Some resources don't count toward the $2000 limit. For example, if part of that inheritance could be classified as a burial fund (up to $1,500), it's excluded. 3. APPEAL: She can file a Request for Reconsideration (Form SSA-561) within 60 days of receiving the notice. This buys time while continuing benefits. 4. SPECIAL NEEDS TRUST: Another option is setting up a Special Needs Trust or ABLE account, though these usually need to be established before exceeding the limit. When she meets with SSA, have her explain that she didn't understand the rules and that the funds are now below the limit. Good cause can include lack of understanding of reporting requirements.
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Santiago Diaz
•Thank you so much for the detailed response! I didn't know about the burial fund exclusion - that could really help since $1200 of the inheritance was specifically mentioned "for final expenses" in her aunt's will. Would that documentation help? I'll help her spend down the rest immediately. Does she need to notify SSA once she's under the $2000 limit or wait until they contact her again?
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KaiEsmeralda
OMG ive been through this EXACT nightmare!!! the $2000 limit is RIDICULOUS in 2025!!! how is anyone supposed to live on that???? what if your car breaks down or you need emergency dental work??? my advice: spend down IMMEDIATELY and keep EVERY SINGLE RECEIPT. buy needed things like 6 months of medications in advance, prepay rent, fix anything broken in her house. then go to SSA office with all receipts and bank statements showing she's under $2000 now. dont give up!!!! the system is designed to kick people off but if you fight back they usually reinstate you. my benefits got cut off 3 times in 2 years for going a little over and i got them back each time but it was a BATTLE.
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Debra Bai
•Same here! They canceled my medicaid last year when I was $87 over the limit because my disability backpay and monthly check hit my account on the same day. So frustrating! I agree the $2000 limit is completely unrealistic today.
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Gabriel Freeman
My brother had this problem. He went to the SSA office and explained it was a one-time thing and promised to spend it down quickly. They gave him some form to fill out and he kept his benefits. Don't worry too much, it happens all the time.
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Santiago Diaz
•That's reassuring to hear. Did your brother have to do the spend-down first or did they give him time to do it after he explained the situation? My mom is worried about spending the money on the wrong things.
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Laura Lopez
I work with SSI recipients regularly, and this is a common issue. Here's what your mom should do: 1. The 6-month notice means they're giving her time to fix this before termination actually occurs. 2. For the inheritance portion, if it was truly designated "for final expenses" in writing, she should gather that documentation. Up to $1,500 can be excluded as a burial fund. 3. For the tax refund, SSI has a 12-month exclusion period for tax refunds - they don't count toward the resource limit! She should specifically mention this exclusion when she contacts SSA. 4. File the Request for Reconsideration immediately to protect her appeal rights. 5. Contact the Medicaid office separately from SSA - sometimes they have different processes. Keep in mind that resource determinations are made on the first day of each month. So if she was over $2000 on the 1st of the month, that entire month counts as being over the limit, even if she spent it down later that same month.
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Gabriel Freeman
•wait tax refunds don't count?? nobody ever told me that! I've been spending down my refunds right away for years thinking they counted toward the limit
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Victoria Brown
Have you tried reaching the SSA to discuss this situation? I spent THREE DAYS trying to get through to someone at my local office when my mother had a similar issue with her SSI resource limit. Kept getting disconnected or waiting for hours. So frustrating! I finally used Claimyr (claimyr.com) to get through to a live agent at SSA. They have this service that calls SSA for you, waits on hold, then calls you when an agent picks up. Saved me hours of frustration. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU When we finally talked to the SSA rep, they were actually quite helpful and walked us through the spend-down process and documentation we needed. Made all the difference in getting her benefits reinstated quickly.
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Santiago Diaz
•I hadn't heard of that service before. I tried calling SSA twice yesterday and got disconnected both times after waiting nearly an hour. It's impossible to get through! I'll definitely check out that video - anything that helps us talk to a real person would be worth it at this point.
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Samuel Robinson
This might be controversial, but I've known several people who simply withdrew the excess cash, spent it on necessities without receipts, then went back under the limit. SSA generally just wants to see the bank balance back under $2000. They rarely ask for detailed accounting of how you spent it down unless they suspect fraud. Just sharing what I've observed over 15+ years on benefits. The system is broken with that $2000 limit that hasn't changed since the 1980s. What was reasonable then is impossible now. My caseworker privately told me they understand people have to do what they need to survive.
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KaiEsmeralda
•THIS!!!! The caseworkers know the limit is ridiculous! My worker basically told me the same thing - just get under the limit and they won't ask too many questions unless it's happening constantly or they suspect you're hiding assets.
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Debra Bai
sorry to piggyback on your post but does anyone know if the medicaid look-back period applies to SSI medicaid too? my grandma gave me $5000 last year (before i applied) and im worried they might count that against me
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Laura Lopez
•The 5-year lookback period applies to institutional/nursing home Medicaid, not regular SSI-linked Medicaid. However, if you received a gift while already on SSI, it could count as income in the month received and a resource after that if not spent. Since you received it before applying, it shouldn't be an issue unless you still have the money.
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Millie Long
Just to update on the tax refund exclusion that was mentioned - yes, tax refunds are excluded from counting toward the $2000 SSI resource limit for 12 months after receiving them. This is thanks to the Tax Relief, Unemployment Insurance Reauthorization, and Job Creation Act of 2010. So if part of that $3250 was a tax refund, your mom should specifically mention this exclusion when she contacts SSA. They may need to adjust their determination if they weren't aware that portion was a tax refund. This combined with the potential burial fund exclusion could potentially resolve the entire issue without even needing to spend down, depending on how much of the $3250 falls into these categories.
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Santiago Diaz
•That's incredibly helpful information! The tax refund was about $1420, and if we can get the $1200 inheritance classified as burial funds, that would put her well under the limit without having to spend anything down. I'll make sure she mentions both exclusions when we talk to SSA. Thank you!
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Laura Lopez
One final tip: when your mom communicates with SSA, she should emphasize that these were one-time deposits and not recurring income. Have her bring bank statements from before and after to show her account is typically well below the limit. If the tax refund was $1420 and $1200 of the inheritance can be excluded as burial funds, that would resolve the issue. The remaining portion of the inheritance would still count, but you've already identified enough exclusions to potentially bring her below the $2000 limit. Make sure to submit the Request for Reconsideration right away regardless, as this preserves her appeal rights while you sort everything out. Good luck!
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Santiago Diaz
•We're going to try getting an appointment at the local SSA office tomorrow to sort this out. Thank you all so much for the advice - I feel much more confident now that we can get this resolved. I'll update once we have news!
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