SSDI payment cut by 1/3 after SSA discovered my living arrangement - can I appeal?
I'm in a panic trying to help my sister. She's been on SSDI for 3 years due to her severe rheumatoid arthritis and just got her monthly payment cut from $1,850 to about $1,230 (almost 1/3 reduction!). When I called with her, the SSA rep said it's because they found out she moved in with our elderly mother 4 months ago to help care for her after mom's hip surgery. Apparently this changed her "living arrangement" status and they're saying something about "in-kind support and maintenance." Mom doesn't charge her rent, just asks for help with groceries sometimes. My sister literally cannot work and this cut is devastating her budget. She was barely making ends meet before. Is there ANY way to appeal this? Can they really slash her benefits just because she's helping care for our mom? The notification letter is full of jargon I don't understand.
20 comments
Zoe Alexopoulos
I think there's some confusion here. SSDI (Social Security Disability Insurance) payments don't typically get reduced based on living arrangements - that's an SSI (Supplemental Security Income) rule. SSI has the "in-kind support and maintenance" reduction when someone lives with family and doesn't pay market value rent. Are you sure your sister isn't receiving SSI instead of or in addition to SSDI?
0 coins
CyberSamurai
•Oh my gosh, you might be right. The letter has both "SSDI" and "SSI" on it. I think she might be getting both? I'm so confused. She qualifies for disability through her work history but her benefit wasn't very high because she had to stop working in her 30s. So maybe she gets both programs?
0 coins
Jamal Carter
Def sounds like SSI not SSDI. SSI has all those living arrangement rules, SSDI doesn't care who u live with. I went thru something similar with my brother last year. They cut his check when he moved in with me even tho he was paying me $400/month because they said market rent in our area was $850.
0 coins
CyberSamurai
•Thanks for sharing. That's probably what's happening then. So frustrating that they slash benefits when family helps family! Did your brother find any way to appeal or fix his situation?
0 coins
Mei Liu
This is definitely an SSI issue, not SSDI. When someone receives both benefits (which is common), it can be confusing. Here's what's happening: The SSI portion of her benefits is being reduced because she's receiving what SSA calls "in-kind support and maintenance" (ISM) - basically free or reduced-cost food and shelter from your mother. This triggers up to a 1/3 reduction in the SSI portion. Your options are: 1. Appeal within 60 days (Request for Reconsideration) 2. Have your sister pay her fair share of household expenses and document it 3. Establish a formal rental agreement with your mother at fair market value Option 2 is usually easiest. Calculate total household expenses (rent/mortgage, utilities, food) and divide by number of people in household. If she pays that amount, the ISM reduction should be removed.
0 coins
CyberSamurai
•Thank you so much for explaining this clearly! We'll work on option 2. Mom doesn't have a mortgage anymore but there are property taxes, utilities, etc. So we need to document that my sister is paying her portion of all household expenses to remove this reduction? Does she need to pay by check rather than cash for better documentation?
0 coins
Liam O'Donnell
My cousin had the exact same problem!! SSA are RIDICULOUS about this stuff. They actually asked for bank statements to prove she was paying her share. And they kept hanging up on us when we called to explain. So frustrating!!!!!
0 coins
Amara Nwosu
•If you're having trouble reaching SSA by phone, I'd recommend checking out Claimyr (claimyr.com). It helped me get through to them after weeks of trying. They have this system that waits on hold for you and calls when an agent is available. Got me through in about 30 minutes after I'd been trying for days. There's a video demo at https://youtu.be/Z-BRbJw3puU that shows how it works. It made a huge difference when I was dealing with my daughter's SSI redetermination issues last month.
0 coins
Mei Liu
To answer your follow-up question - yes, payments by check, bank transfer, or money order provide better documentation. Cash payments are harder to verify. Keep a written rental agreement (doesn't need to be fancy) and receipts for all payments. The SSA uses the "presumed maximum value" (PMV) rule for ISM, which in 2025 results in a maximum reduction of about $333 for individual SSI recipients when they receive both food and shelter for free. If your sister only receives partial support (just free shelter but pays for her own food, for example), the reduction might be less.
0 coins
AstroExplorer
•Wait I'm confused. So if the sister moves out and gets her own place would her benefits go back up? Or is she better off staying with mom and just setting up the payment arrangement you described? Seems like SSA punishes people for trying to save money by living with family... Is that right?
0 coins
Mei Liu
Yes, if she moved out and paid her own way completely, her SSI would return to the full amount. But that might cost more overall than staying with mom and accepting the reduction. And you're right about SSA's approach - the SSI program is designed with the assumption that people receiving benefits should be putting their benefits toward their basic needs (food and shelter). When someone else provides those needs for free or at a discount, SSA reduces the benefit because they view that as the recipient not needing that portion of the benefit. It's frustrating for families trying to help each other, but that's the program design.
0 coins
CyberSamurai
•Thanks again for all the information. I talked with my sister and mom and we're going to set up a formal agreement where my sister pays her portion of property taxes, utilities, and food using checks for documentation. Mom didn't want to take the money but now understands it's necessary for the benefits. We'll also file an appeal just in case. Should we request a copy of her SSI/SSDI file to better understand exactly what's happening?
0 coins
Giovanni Moretti
I went through this exact nightmare last year. The key is DOCUMENTATION. My son's SSI was cut when he moved back home after college (he has severe autism). What worked for us was: 1. Written rental agreement signed by both parties 2. Monthly checks with "rent payment" in memo line 3. Monthly utilities split equally and documented 4. Separate food purchases (we literally kept receipts) After 3 months of this documentation and an appeal meeting, they restored his full benefit AND gave back pay. Don't give up!
0 coins
Jamal Carter
•did u have to go to court for the appeal? or just a meeting at ssa office? im still fighting with them about my brothers case
0 coins
Giovanni Moretti
No court needed! We requested a reconsideration (form SSA-561) and then had an informal meeting at the local SSA office with our documentation. The caseworker could see we had everything in order and approved it right there. Just be super organized with all your paperwork!
0 coins
CyberSamurai
•This is so helpful! We're going to use your exact documentation method. Did you need to have the rental agreement notarized or was just signing it enough? And did you need to claim the rent payments as income on your taxes?
0 coins
Liam O'Donnell
I tried callin SSA for 2 weeks straight about my disability review and kept getting hung up on after waiting for HOURS. system is totally broken!!!
0 coins
Amara Nwosu
•I had the same problem! I finally used Claimyr to get through and it was worth it. The phone system is impossible otherwise. They got me connected to an agent in about 25 minutes when I'd been trying for days with no luck.
0 coins
Giovanni Moretti
We didn't need the agreement notarized - just signed by both parties with the date. As for taxes, my accountant had me report it as rental income, but there were offsetting expenses (utilities, home repairs, etc.) so it didn't affect our tax situation much. Your mom should probably consult with a tax professional about her specific situation, though.
0 coins
CyberSamurai
•Thank you! We have an appointment with SSA next week to discuss everything. I'll update here with how it goes in case it helps someone else in the future. Fingers crossed we can get this resolved without too much more stress on my sister.
0 coins