Can Social Security consider me my aunt's caregiver? $375/week pay and POA complications
I've been taking care of my elderly aunt (78) with advancing dementia for about 3 years now. Her condition has deteriorated significantly in the last 8 months. I'm at her house almost daily handling everything - medications, meals 5-6 times weekly, doctor appointments, bill payments, home maintenance, and countless small things like adjusting thermostats, fixing her TV when she gets confused, etc. I've been drawing $375 per week from her account as compensation since I had to cut back my work hours. She agreed to this before her condition worsened. I'm worried about two things with Social Security and Medicare/Medicaid: 1) Will this regular payment to myself cause problems when she eventually needs nursing home care? She currently receives Social Security retirement but will likely need Medicaid when her savings run out. Will they see these payments as improper transfers? 2) Her doctors are now saying she needs memory care facility placement, but she absolutely refuses. I have financial and healthcare POA that she signed when she was still competent. Can I legally arrange for placement against her wishes? What's the right process here with Social Security involved? This is getting really overwhelming and I'm concerned about making mistakes that could affect her benefits.
20 comments
Natalie Adams
The $375/week ($1,500+ monthly) could absolutely be flagged during Medicaid lookback period (usually 5 years). They scrutinize all transfers from the applicant's accounts. You need to properly document this as legitimate caregiver compensation - create a simple caregiver agreement showing hours worked and reasonable rate for your area. Even with documentation, that amount might raise questions. Regarding placement - having POA doesn't automatically give you authority to force placement. You'll need to pursue guardianship/conservatorship through court if she's truly incapable of making decisions but refusing necessary care. This is separate from Social Security issues though - SS benefits will continue whether she's home or in facility, just with different representative payee arrangements possibly.
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Jordan Walker
•Thank you for the info. I hadn't even thought about a caregiver agreement! I've just been keeping records of what I do each day in a notebook. Would a simple agreement I write up work, or does it need to be something formal from a lawyer? And regarding the amount - what's typically considered reasonable? I'm basically on-call 24/7 and it's affecting my ability to work my regular job.
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Elijah O'Reilly
My mom went thru similar!!!!! We had to get a FORMAL caregivers agreement with a lawyer (cost like $600) after the fact and it was a NIGHTMARE with medicaid. They questioned EVERYTHING even tho i was doing way more than what I got paid for!!!!! Definitley get something in writing ASAP!!!!
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Jordan Walker
•That sounds stressful! Did Medicaid eventually accept the agreement even though it was created after you started getting paid? I'm worried they'll think I'm just trying to cover my tracks if I create one now.
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Amara Torres
For your second question about placement - I work with seniors and can tell you that even with POA, you can't force placement without going through proper legal channels. You need to petition the court for guardianship, which requires medical documentation of her incapacity. This is separate from Social Security issues. You mentioned she gets Social Security retirement benefits - when she moves to a facility, those will continue, but if you're currently helping manage those funds, you might want to become her official representative payee through SSA. That's different from having POA. You'd need to contact SSA directly about that process.
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Jordan Walker
•I didn't realize being a rep payee was different from POA. Her SS checks are direct deposited to an account I manage with the POA. Should I be doing something different? And how long does the guardianship process usually take? Her doctor said she really shouldn't be living alone anymore.
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Olivia Van-Cleve
Regarding your payment concerns - Medicaid has a 5-year lookback period where they examine all financial transactions. The key is whether your compensation is considered reasonable for services provided. $375/week ($19,500/year) isn't excessive for extensive caregiving, but you absolutely need: 1. A formal caregiver agreement (retroactive agreements are problematic) 2. Documentation of hours worked and services provided 3. Payments that reflect market rates in your area Without these, Medicaid may consider these transfers to be gifts intended to spend down assets, which can create eligibility penalties. For placement against her wishes - you need guardianship. POA doesn't override her right to make decisions if she's still legally making them (even poor ones). This requires court intervention and medical documentation of incapacity.
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Mason Kaczka
•This is right but i want to add that the caregiving payments might still be ok even without a formal agreement if you can show you were actually providing the services. My family went through this in 2022 and we were able to avoid penalties by showing detailed logs of care and getting statements from doctors about how much care was needed. Still, better to get that agreement now!!!
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Sophia Russo
I went through hell trying to reach SS about my mom's rep payee status when she went into memory care. Would call for HOURS and either get disconnected or told to call back. After 6 weeks of trying, I used a service called Claimyr (claimyr.com) that actually got me through to a real person at SS! They have a video showing how it works: https://youtu.be/Z-BRbJw3puU You need to be her official rep payee with SSA - having POA doesn't count for Social Security purposes. Totally separate process and important to start early.
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Jordan Walker
•Thanks for the Claimyr tip - I'll check it out. I've been dreading dealing with Social Security phone lines. Did becoming a rep payee affect how her benefits were calculated or paid? Or is it just about who has authority to manage the money?
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Evelyn Xu
Everyone's talking about the Medicaid lookback but not answering your ACTUAL question about Social Security. SS retirement benefits don't have the same asset restrictions as Medicaid!!! As long as you're not committing fraud with her SS checks, the payments to yourself won't impact her SS retirement benefits at all. It's Medicaid that will care about those payments when she applies.
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Olivia Van-Cleve
•This is correct - Social Security retirement benefits aren't affected by these payments. The concern is strictly with future Medicaid eligibility, which has strict asset transfer rules. Social Security Disability (SSDI) and retirement benefits continue regardless of assets or these payments. I should have been clearer about separating the SS and Medicaid issues.
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Elijah O'Reilly
u need to know that even with POA u cant force her into care!!!!! my grandpa had dementia and kept saying no to facility even tho he was leaving stove on etc. we HAD to get guardianship thru court!!! took like 3 months and cost $$$$ but then we could make the decision for him. its hard but sometimes u hav to do it
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Jordan Walker
•3 months is a long time when the situation is getting dangerous. Were you able to get any emergency orders or temporary arrangements while waiting for the full guardianship? I'm worried because she's starting to leave doors unlocked and wander sometimes.
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Natalie Adams
Regarding your caregiver payments: creating a proper agreement now is better than nothing, but backdating it would be problematic. You need to document market rates for similar services in your area to justify the amount. Keep all documentation of care provided - calendars, mileage logs, receipts, etc. For the guardianship process, contact your local Area Agency on Aging for guidance. Some jurisdictions have emergency guardianship provisions for unsafe situations, but requirements vary by state. Your aunt's doctor should provide a statement about her capacity that will be essential for this process.
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Amara Torres
•Exactly right about the Area Agency on Aging - they often have elder law specialists who can guide you through this process at little or no cost. And if there's a safety concern, Adult Protective Services might also be a resource to help expedite placement when necessary. The guardianship process timeline varies dramatically by locality.
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Mason Kaczka
My sister went thru this with my mom. The caregiver payments were a problem during Medicaid application cuz they didn't have a formal agreement. They ended up having to pay back some money to qualify mom for Medicaid. Make sure you're charging a fair market rate. In our area agencies charge like $25-30/hr for similar care, so document your hours to show you're not overcharging.
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Jordan Walker
•That's helpful context - thank you. I'm probably providing 20-25 hours of active care weekly, plus being on-call constantly. So $375 is probably around $15-18/hour which seems reasonable. Did your sister have to repay everything or just the amount that exceeded market rates?
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Amara Torres
Since everyone's focused on Medicaid, I want to address your Social Security question specifically: When someone needs a nursing home, their Social Security benefits typically continue but may be used differently: 1. If she goes on Medicaid, most of her Social Security check will go to the facility as her "patient responsibility" contribution, with a small personal needs allowance (usually $30-60/month depending on state). 2. You should become her representative payee with SSA before facility placement to ensure proper handling of benefits. 3. The caregiver payments won't affect her Social Security benefits directly, but will be scrutinized during Medicaid application. Call SSA directly about the rep payee process - it requires specific forms and sometimes an in-person interview.
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Sophia Russo
•Good luck reaching an actual person at SSA! I tried for weeks before using Claimyr. The rep payee process also requires form SSA-11 and they usually want medical documentation about why the beneficiary can't manage their own benefits. Get a letter from her doctor about the dementia diagnosis to speed things up.
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