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The advice here is mostly good but I want to clarify something important: with ALS, there is NO 5-month waiting period for SSDI benefits like there is with other disabilities. Also, Medicare eligibility begins immediately after SSDI approval rather than the normal 24-month waiting period. Make sure your brother knows this as it's extremely important for covering medical costs. Also, has your brother checked if he has any private disability insurance through previous employers? Many people don't realize they might have coverage. With ALS, it's critical to secure all possible financial resources.
I had no idea about the waived waiting periods for SSDI and Medicare with ALS! That's incredibly valuable information. He was just approved for SSDI but hasn't received information about Medicare yet, so I'll make sure he follows up on that immediately. And good point about private disability insurance - he did have coverage through his employer before he had to stop working, and we need to check on the status of that claim. Thank you so much for this information.
One more thing no one has mentioned - if his ex-wife has never worked, she should look at SSI (Supplemental Security Income) too, not just waiting for benefits based on your brother's record. She might qualify NOW based on need, age, and disability if she has any health issues herself. The rules are complicated but worth checking into.
This is partially correct but needs clarification. SSI is need-based and has strict asset limits ($2,000 for individuals). If the ex-wife has savings, investments, or other resources above that threshold, she wouldn't qualify regardless of her lack of work history. Also, at age 60 without a qualifying disability, she wouldn't meet the age requirement for SSI (which is 65). Her best option is still likely waiting until she's eligible for benefits based on the ex-husband's record.
Based on what you've shared, here's a summary that might help you plan: 1. Your SSDI benefits will NOT change after marriage 2. His SSDI benefits will NOT change after marriage 3. His SSI ($110/month) will likely be reduced or eliminated after marriage 4. Any income-based benefits like SNAP, housing assistance, Medicaid, Extra Help for Medicare, etc. will need to be reassessed based on your combined income If losing the $110 in SSI and potentially some adjustments to other benefits is manageable for your budget, you should be in an okay position financially after marriage. I would recommend scheduling an appointment with SSA to get a precise calculation of how your specific benefits would be affected.
One more tip - after you get married (if you decide to), make sure you both contact Social Security right away to report the change. For the SSDI recipient, it's mostly just updating your name if you change it. For the SSI recipient, they need to report the marriage immediately to avoid overpayments. Those overpayment notices are a nightmare to deal with!
This is critical advice. SSI recipients must report any change in living arrangement, marital status, or household income within 10 days. SSDI recipients should report name changes, but their benefits aren't affected by marital status (except in certain cases involving disabled adult children benefits, which doesn't seem to apply here).
I think they're changing their policy again. My nephew works at Social Security and he says they're getting new guidance every week about this. Some offices have the updated system and others don't yet. Maybe try a different office?
Quick update for everyone following this thread - the official policy change is outlined in SSA Emergency Message EM-23056, which officially limits recovery of most overpayments to 10% of monthly benefits. However, there are exceptions for fraud cases. The implementation date was March 15, 2025, but as others have noted, the actual rollout has been inconsistent across field offices. If you're getting resistance, specifically mention EM-23056 and request to speak with a Technical Expert or the Office Manager who should be familiar with this directive.
Thanks! Yes, I did ok on the sale. It was getting to be too much to maintain by myself after my husband passed.
Just a note - if you had significant capital gains from selling your house last year, that could potentially affect your tax situation for that year specifically. For a single person, up to $250,000 in capital gains from selling a primary residence can be excluded if you lived there at least 2 of the last 5 years.
my friend has same situation and the apartment manager told her she needed some tax form for her rent but it was for low income housing tax credit thing not for normal taxes!!! maybe thats what ur landlord was talking about???
Honorah King
To answer your question about applying right away: Yes, you should definitely apply for survivor benefits as soon as possible. Benefits can be paid retroactively for up to six months, but no further back than that, so delays in applying could result in lost benefits. While the GPO will reduce the amount, receiving even a reduced benefit is better than nothing. Also, the application process will give you a definitive calculation of exactly how the GPO affects your specific situation. When you apply, bring documentation of both your husband's death and your marriage, as well as information about your pension. They'll need to know the exact amount of your government pension to calculate the offset correctly.
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Jake Sinclair
•Thank you so much for this advice. I'll gather all my documentation and apply right away. Even a reduced benefit will help with expenses.
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Lorenzo McCormick
sorry about your husband passing. my neighbor had almost the same situation with her county job and she said she still got the $255 death benefit at least. not much but better than nothing i guess
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Jake Sinclair
•Yes, I did receive the $255 death benefit already. It seems so small compared to what my husband paid into the system over his lifetime.
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