Social Security Administration

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Amina Sy

I'm currently working as a benefits counselor at our local disability services center and see families navigate this transition regularly. A few additional points that might help: 1. Consider requesting a "protective filing date" if you can't get all documentation together immediately - this essentially holds your place in line while you gather required paperwork. 2. If your son has any history of mental health treatment (anxiety, depression often co-occur with autism), make sure those records are included. SSA evaluates the combined impact of all conditions. 3. Keep track of his daily routine and what assistance he needs - things like meal preparation, medication management, money handling, transportation. This functional information is often more important than the diagnosis itself. 4. Don't be discouraged if the initial decision is a denial - the appeals process has higher approval rates, especially with proper documentation and representation. The transition is stressful, but with early preparation and the right support, most young adults with autism who need ongoing support do qualify for adult SSI benefits. You're being proactive by asking these questions now!

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This is incredibly helpful advice from someone who works directly with these cases! The protective filing date tip is something I hadn't heard before - that could be a real lifesaver if we run into delays getting all the documentation together. You're absolutely right about including mental health records too. My son does struggle with anxiety, especially around changes in routine, and I hadn't thought to include those treatment records as part of the application. The point about documenting his daily routine and assistance needs really resonates with me. He needs help with so many everyday tasks that I sometimes take for granted because they've just become part of our normal routine. I'm going to start keeping a detailed log of what he needs help with throughout a typical day - things like managing his medications, preparing meals, handling money, and getting around in the community. Thank you for the encouragement about the appeals process too. It's reassuring to know that even if there's an initial denial, there are still good chances for approval on appeal with the right documentation. Having insights from someone who sees these cases regularly gives me a lot more confidence about moving forward!

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As someone who went through this exact transition with my autistic daughter two years ago, I want to emphasize something that really helped us - start keeping a detailed "Activities of Daily Living" journal RIGHT NOW. Document every single thing your son needs help with over the course of a week: Does he need reminders to shower? Help managing his schedule? Assistance with grocery shopping or meal planning? Problems with social interactions at work or school? The SSA disability examiners really focus on functional capacity, and having concrete examples of daily limitations is incredibly powerful. We kept a simple notebook for about a month before the application, writing down things like "needed help understanding bus schedule," "required step-by-step guidance to prepare a sandwich," "became overwhelmed and had meltdown when routine changed." This documentation was crucial during the interview process because it showed the real-world impact of his autism beyond just the medical diagnosis. The examiner specifically asked for examples of daily challenges, and we had pages of specific incidents to reference. Also, if your son has any repetitive behaviors, sensory issues, or communication difficulties that would interfere with work, make sure those are thoroughly documented by his doctors. Good luck - you're already ahead of the game by starting this process early!

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Mei Wong

I'm so glad I found this thread! I just started receiving Social Security benefits this month and was completely lost about the payment schedule. I kept checking my account wondering where my "current month" payment was and starting to panic that something went wrong with my application. The "payment in arrears" explanation everyone shared here finally made it all click - it's like getting paid AFTER you work a month, not before! I can't believe this isn't explained more clearly in all the paperwork they send you. The stress of not understanding when money would actually hit my account was really affecting my ability to plan basic expenses. I'm definitely going to use that calendar trick of writing "Nov benefits → Dec payment" and adjust my budget spreadsheet to treat payments as arriving a month late. Thank you all for being so patient and helpful with us newcomers - this community is exactly what I needed to feel less overwhelmed by navigating the Social Security system!

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Welcome to the community, Mei! I just joined this discussion as a newcomer to Social Security myself, and I'm so relieved to see I'm not alone in finding the payment timing confusing. Your experience of checking your account and panicking that something went wrong really resonates with me - I think most of us new recipients go through that same stress! The "payment in arrears" explanation has been a revelation for me too. It's honestly mind-boggling that something this fundamental to budgeting isn't front and center in their welcome materials. I'm going to implement all these great tips everyone shared, especially that calendar system. Thanks for sharing your story - it really helps to know we're all figuring this out together!

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I'm also brand new to Social Security - just started receiving benefits a couple weeks ago - and this thread has been absolutely incredible for clearing up my confusion! I was doing the exact same thing as everyone else, constantly checking my bank account wondering where my "current month" payment was and starting to worry that my application had issues. The whole "payment in arrears" concept makes so much sense now that everyone has explained it - it's like getting your paycheck AFTER you've worked the full month, not at the beginning. I'm honestly a bit frustrated that this isn't explained clearly right upfront in their materials since it's such a crucial piece of information for budgeting. I love all the practical tips shared here, especially the calendar reminder system and treating payments as arriving a month late when setting up budgets. It's so reassuring to find this welcoming community where newcomers can get real answers from people who've been through the same learning curve. Thank you everyone for making this so much less stressful to figure out!

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Welcome to the Social Security community, Ruby! I'm also completely new to this system - just received my first benefit payment last month - and I went through the exact same panic and confusion you described. I was literally calling my bank thinking there was an error because I couldn't understand why I wasn't getting paid for what I thought was the "current" month! This thread has been such a lifesaver for all of us newcomers. The "payment in arrears" explanation finally made everything click for me too - thinking of it like getting paid after you've already "worked" through the benefit month is such a helpful way to understand it. I completely agree that this should be front and center in their welcome materials rather than leaving us all to figure it out through trial and error! I'm definitely implementing all the great budgeting tips shared here. It's so comforting to know we're all in this learning process together and that this confusion is totally normal for new recipients. Thanks for sharing your experience - it really helps to know we're not alone in trying to navigate this system!

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I'm also dealing with IRMAA issues right now - lost my job in June 2024 and just received my notice that Part B premiums are increasing from $174.70 to $279.90 for 2025. This thread has been incredibly valuable! Based on everyone's advice, I'm planning to file the SSA-44 form this week. One thing I'm wondering about - has anyone dealt with this while receiving survivor benefits like the original poster? I'm curious if that adds any complications to the process or if it's handled the same way as regular Social Security benefits. Also, for those who successfully got their IRMAA reduced, did the adjustment affect future years automatically, or do you have to refile each year? Since my 2024 income will obviously be much lower due to the job loss, I'm hoping 2026 premiums won't require another SSA-44 filing. Thanks to everyone who has shared their experiences - it's making this whole confusing process much clearer!

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Hi Amelia! I'm actually dealing with a very similar situation - I'm the original poster who lost my job in March 2024 and I'm also on survivor benefits. From what I've learned through this process, the type of Social Security benefits you're receiving (survivor vs retirement vs disability) doesn't seem to affect the IRMAA adjustment process at all. The SSA-44 form and supporting documentation requirements are the same regardless. As for your question about future years - this is something I asked about when I spoke with an SSA rep. Each year's IRMAA is calculated separately based on your tax return from two years prior. So your 2026 premiums will be based on your 2024 tax return, which should show your reduced income from the job loss. You likely won't need to file another SSA-44 for 2026 unless you have another qualifying life-changing event. The tricky part is that 2025 premiums are based on 2023 income (when we were both still working), which is why we need the SSA-44 now. But 2026 should automatically reflect our lower 2024 income without needing additional paperwork. Hope this helps, and good luck with your SSA-44 filing! It sounds like we're all in this frustrating boat together.

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This whole thread has been incredibly helpful! I'm dealing with a similar situation - lost my job in September 2024 and just got my IRMAA notice for 2025. My Part B premium is jumping from $174.70 to $244.60. Based on everyone's advice here, I'm definitely going with the SSA-44 form and will hand-deliver it to my local office first thing in the morning to get that stamped receipt. It's really reassuring to see so many people who have successfully navigated this process, even though it's frustrating we all have to deal with it. One quick question for the group - did anyone face any issues if their job loss happened relatively late in the year? I'm wondering if September 2024 termination might be viewed differently than earlier job losses, or if the process is exactly the same regardless of when during the year it occurred. Thanks to everyone who shared their experiences - this community support is making what seemed like an overwhelming bureaucratic nightmare much more manageable!

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Just wanted to add another resource that might help - the SSA's Publication 05-10069 "How Work Affects Your Benefits" has a really clear breakdown of the earnings test rules. You can download it from their website or request a paper copy. What's particularly helpful is that it has specific examples of different scenarios, including people who retire mid-year like you're doing. Since you'll be past FRA when you start benefits, you're in the "no earnings test applies" category, but the publication explains exactly why and how SSA makes that determination. Also, once you do start receiving benefits, you'll get an annual statement showing exactly how much you received and any tax withholding. This makes tax time much easier when dealing with those vacation/sick payouts from earlier in the year that others mentioned.

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Thanks for mentioning that SSA publication - I'll definitely download it and read through those examples. It would be really helpful to see scenarios similar to mine laid out clearly. I appreciate everyone taking the time to share their knowledge and experiences. This community has been way more helpful than my 45 minutes on hold with SSA!

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I went through a very similar situation when I retired in 2022. Like you, I was worried about how my final salary payments and vacation payout would affect my Social Security benefits. The key thing that gave me peace of mind was getting everything in writing from SSA. When I applied online (which I highly recommend), I made sure to clearly document in the remarks section that I would be past my FRA when benefits began. I also kept copies of all my final pay stubs and vacation payout documentation, even though it turned out I didn't need them since the earnings test doesn't apply once you're at FRA. One small tip - if you're planning to have taxes withheld from your Social Security benefits to help with the tax situation others mentioned, you can set that up when you apply using Form W-4V. It might be worth considering given your vacation and sick leave payouts will likely bump up your income for 2025. Congratulations on reaching this milestone! The transition to retirement is exciting even if the paperwork feels overwhelming.

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That's great advice about documenting everything in the remarks section and keeping copies of pay stubs! I hadn't thought about setting up tax withholding from Social Security benefits when I apply, but given that my vacation and sick leave payouts will be substantial, that's probably a smart move to avoid any surprises at tax time. Form W-4V - I'll make sure to look into that. Thanks for sharing your experience and the encouragement!

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Just wanted to add one more thing that might help with your decision - you mentioned being 62 and planning to take benefits early. Have you considered whether you'll still be working? If you're planning to work while collecting Social Security before your full retirement age, you could hit the earnings test limit ($22,320 for 2024). If you earn more than that, they'll reduce your benefits by $1 for every $2 you earn over the limit. This applies to both your own retirement benefits AND any divorced spousal benefits you might receive. The earnings test goes away once you reach full retirement age, but it's something to factor into your timing decision. Also, when you do call SSA, ask them to run scenarios showing your benefit amounts at different claiming ages (62, full retirement age, and 70) so you can see the long-term impact of claiming early versus waiting. Sometimes seeing the actual dollar differences over your lifetime can help with the decision.

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Thanks for bringing up the earnings test! I hadn't fully considered that aspect. I was planning to work part-time for a few more years, probably earning around $15,000-18,000 annually, so it sounds like I'd be under the limit. But it's good to know this applies to both my retirement benefit AND any spousal top-up I might get. The idea of asking SSA to run scenarios at different claiming ages is really smart. I've been so focused on just getting something at 62 that I haven't actually calculated what waiting until my full retirement age (66 and 4 months) would mean in total dollars over my lifetime. Given that my ex's benefit is so much higher, maybe the survivor benefit calculation changes things enough that waiting could be worth it. Do you know if the earnings test also applies to survivor benefits when that time comes?

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Great question about survivor benefits and the earnings test! Yes, the earnings test does apply to survivor benefits if you're under full retirement age when you start collecting them. The same limits apply - for 2024 it's $22,320, and they reduce benefits by $1 for every $2 over that limit. However, here's something important to consider: survivor benefits have more flexible timing rules than retirement benefits. You can claim survivor benefits as early as age 60 (or 50 if disabled), but you might want to coordinate the timing strategically. Some people take their own reduced retirement benefit early, then switch to survivor benefits later, or vice versa depending on which strategy maximizes their lifetime benefits. Since your ex's benefit is significantly higher than yours, it might make sense to delay your own retirement benefit (letting it grow with delayed retirement credits) and potentially claim survivor benefits first when the time comes, if that occurs before you reach age 70. But this gets pretty complex and really depends on the specific timing and amounts involved. Definitely ask SSA to model different scenarios including survivor benefit timing when you call!

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I'm in a somewhat similar situation and found this thread really helpful! One thing I wanted to add is that you might want to double-check whether your ex-husband has already filed for benefits. If he has, you can apply for divorced spousal benefits immediately. But if he hasn't filed yet, you'll need to have been divorced for at least 2 years (which you definitely have been since 2001). Also, I learned the hard way that SSA doesn't always volunteer information about all the benefits you might be eligible for. When you call, specifically ask about "divorced spousal benefits" and "divorced survivor benefits" - don't just ask about "ex-spouse benefits" generally. The terminology matters and can help ensure you get complete information. One more tip: if you do decide to take your benefits at 62, make sure to ask SSA to put a note in your file about your interest in future divorced spousal and survivor benefits. This can help streamline the process when you're ready to apply for those additional benefits later.

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This is such valuable advice! I never would have thought about the specific terminology mattering when talking to SSA, but that makes total sense. I'll definitely ask specifically about "divorced spousal benefits" and "divorced survivor benefits" when I call. The tip about putting a note in my file is brilliant too - I can imagine how much easier it would be to apply later if there's already documentation of my interest and eligibility. Since you mentioned you're in a similar situation, did you end up finding out whether your ex had already filed? I'm curious how that process works - do they tell you right away when you apply, or is there some way to find out beforehand? Also, did you decide to take your benefits early or wait? I keep going back and forth on this decision, especially after reading about all the complexities with the RIB-LIM rule and how early claiming affects survivor benefits down the road.

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