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Eli Butler

Hit maximum benefit amount but doctor extended SDI to March - will EDD increase my benefits?

I've been on disability since May 2024 (almost 9 months now) due to complications from spinal surgery. My SDI claim has been running smoothly until now, but I just logged into my account and saw the 'Maximum Benefit Amount' message. Problem is, my neurosurgeon just extended my estimated return-to-work date until mid-March 2025 because I'm still having severe nerve pain and mobility issues. Does anyone know if EDD automatically reviews and increases your benefit amount when your doctor extends your disability period? Or am I just out of luck once I hit that maximum? I've already received about $28,500 in benefits since May. My rent is $2,700/month and I'm single with no other income sources. Starting to panic about what happens if the benefits just suddenly stop while I'm still medically unable to work. Can I apply for an extension or is there another program I should look into? Getting desperate here.

they DONT increase it automatically!! i went thru this last year and u have to apply for an extension. BUT the amount is fixed based on your base period when u first applied so u wont get more $$ than whatever your max benefit amount says. once thats gone its GONE unless u qualify for some other program. its total BS how they leave ppl high and dry who are seriously disabled!

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Oh no, that's what I was afraid of. So even with the doctor's extension, once I hit that max amount, I'm just done? Did you find any other programs that helped when your SDI ran out?

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The maximum benefit amount for SDI is calculated based on your wages during your base period (typically the 12 months before your disability began). This amount represents the total you can receive on a single claim, regardless of how long your doctor extends your disability period. What you need to look into is: 1. SDI Extension - While rare, these exist for specific situations like hospitalization 2. State Supplemental Program (SSP) - Provides additional assistance if you qualify 3. SSDI (Social Security Disability Insurance) - For longer-term disabilities Importantly, you should submit any extension paperwork your doctor provides, even though it won't increase your maximum benefit amount. This documentation keeps your claim active and can help with transitions to other programs if needed. Your claim history shows you've been on SDI for almost 9 months, which is approaching the typical 52-week maximum duration, so you'd need to explore these other options regardless of the maximum benefit amount issue.

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Thank you for such detailed information! I had no idea about the State Supplemental Program. I'll definitely look into SSDI too since it's becoming clear I might be disabled longer than originally expected. Do you know if there's a waiting period for SSDI or can I apply while still receiving my remaining SDI benefits?

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apply for SSDI RIGHT NOW don't wait till ur benefits run out!!! theres like a 5 month waiting period and they deny almost everyone the first time so u gotta appeal. my cousin waited till her SDI was gone and ended up with no income for like 4 months while waiting for SSDI to process

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Thanks for the warning! I'll start the SSDI application this week. Definitely can't afford to have a gap in income.

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I faced the exact same situation last year with my SDI claim. Once you reach your maximum benefit amount, that's it - regardless of doctor extensions. However, what helped me was getting through to an actual EDD representative who walked me through my options. But getting through to EDD was IMPOSSIBLE until I discovered Claimyr (claimyr.com). They helped me connect with an EDD agent in about 20 minutes after I'd spent weeks trying on my own. They have a video demo at https://youtu.be/1X-mEsLtbmQ?si=1hcSq3KFtCr4oAmd showing how it works. The agent explained all my options and helped me understand what documentation I needed for SSDI. Definitely start your SSDI application now while you still have some SDI benefits left. Also ask about the State Supplemental Program as mentioned above - that helped bridge the gap for me.

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Does this Claimyr thing actually work? I've been trying to get through to EDD for two weeks about my certification issue.

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Yeah - I used it last month and got through to someone in about 25 minutes. Better than the 3 hours I spent on hold the week before only to get disconnected!

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I'm definitely going to try this Claimyr service. I've left 4 messages on the EDD disability line with no callbacks. I need to talk to someone about transitioning to other programs ASAP.

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Remember that once your SDI ends, you might also qualify for Unemployment Insurance IF your doctor releases you to do some type of work (even if it's not your previous job). I've seen many people overlook this option. You would need a doctor's note stating you're able to perform some type of work, even with restrictions. For example, if you can't return to your physically demanding job but could do desk work, you might qualify for UI while you search for suitable employment. Regarding SSDI, one important thing to understand is that their definition of disability is stricter than California SDI. They require that your disability prevents you from doing ANY substantial gainful activity, not just your previous job, and that the condition has lasted or is expected to last at least 12 months. Given you've been disabled for 9 months already and have more recovery ahead, you might meet the duration requirement.

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That's a really interesting point about UI that I hadn't considered. My doctor has mentioned that I might be able to do part-time seated work eventually, just not my regular construction job. I'll definitely ask about this as we get closer to March. And thank you for explaining the SSDI requirements - sounds like I might qualify based on the duration.

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just warning u that SSDI pays WAY LESS than SDI!!! i was getting like $3200/month on SDI but only like $1800 on SSDI. its a HUGE drop and they calculate it totally different!!

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Oh wow, that's a massive drop! I'm getting about $3,150/month right now on SDI. Losing nearly half my income would be devastating. I really need to figure out if I can go back to at least part-time work sooner rather than later.

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This might be unrelated but have you looked into whether your employer offers any long term disability insurance? Many people don't realize they have this benefit. Worth checking your benefits package if you haven't already.

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I actually might have this through my union! I completely forgot to check on that. Going to call my union rep tomorrow. Thank you for the reminder!

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To address your follow-up question: Yes, you can and should apply for SSDI while still receiving SDI benefits. There's no rule against concurrent applications, though you generally can't receive full benefits from both programs simultaneously. The 5-month waiting period for SSDI begins from the onset date of your disability, not from the application date. Since you've already been disabled for 9 months, you may have already satisfied the waiting period. Regarding the benefit amount difference between SDI and SSDI that someone mentioned: this is accurate. SSDI is typically lower than SDI in California. However, you might qualify for concurrent SSI (Supplemental Security Income) if your SSDI benefit is low and you meet the resource limitations. Definitely follow up on that long-term disability insurance through your union - that could be very helpful in bridging any gaps.

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Thank you again for such helpful information! I'm going to start putting together my SSDI application today. It's a relief to know the 5-month waiting period might already be satisfied. I'll also look into the SSI option if my SSDI benefit ends up being too low to cover my basic expenses.

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I'm in a similar situation - been on SDI since July for a back injury and just saw that dreaded "maximum benefit amount" message too. Reading through everyone's advice here has been incredibly helpful, especially about applying for SSDI immediately rather than waiting. One thing I wanted to add that might help - if you're union, definitely check on that long-term disability benefit. My brother-in-law had coverage through his union that he didn't even know about until he got hurt. It ended up covering the gap between his SDI ending and SSDI starting. Also, for anyone else reading this who's in construction like us - I learned that some of the larger contractors carry supplemental disability insurance that goes beyond the basic workers comp. Might be worth checking if your injury was work-related at all. The income drop from SDI to SSDI is scary though. Going from over $3k to potentially under $2k is going to require some serious budget adjustments. Have you looked into any rental assistance programs in your area? With your rent being $2,700, you might qualify for some help during the transition.

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Thanks for sharing your experience and the additional tips! I hadn't thought about rental assistance programs - that's definitely something I need to look into given my high rent. The construction industry advice is really valuable too, though unfortunately my spinal surgery wasn't work-related so I don't think I'd qualify for any supplemental workers comp benefits. But I'm definitely going to check with my union about long-term disability coverage tomorrow. It's crazy how many benefits we might have that we don't even know about until we desperately need them. The budget adjustment from $3k+ to potentially under $2k is keeping me up at night, honestly. Every bit of advice helps right now!

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I'm going through something very similar right now - hit my maximum benefit amount on SDI last month after being out since June with a herniated disc. The stress of potentially losing income while still being unable to work is overwhelming. What I've learned from my own research and talking to others is that you really need to start multiple applications NOW rather than waiting to see what happens with each one. I applied for SSDI three weeks ago and I'm so glad I didn't wait until my SDI ran out completely. A few things that might help based on what I've discovered: 1. Contact your local Social Services office about emergency assistance programs - they often have one-time help for people transitioning between benefit programs 2. If you have any credit cards or loans, call them NOW to explain your situation. Many have hardship programs that can temporarily reduce payments 3. Look into food banks and utility assistance programs in your area - this can free up money for rent during the transition The waiting and uncertainty is the worst part. But from what I'm seeing in this thread, it sounds like you're taking all the right steps by checking on union benefits and starting your SSDI application early. Hang in there - there are safety nets available even if they're not obvious at first.

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Thank you so much for this practical advice! I'm definitely feeling that overwhelming stress you mentioned. The idea of contacting creditors proactively is really smart - I have a couple credit cards and a car payment that I should probably get ahead of before things get tight. I hadn't thought about emergency assistance through Social Services either, but that could be a lifesaver during the transition period. It's reassuring to hear from someone going through the exact same situation right now. The uncertainty is definitely the hardest part - not knowing exactly when benefits will end or how much SSDI might be. I'm going to start making those calls tomorrow along with following up on my union benefits. Thanks for the encouragement and practical tips!

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One thing I haven't seen mentioned yet is that you should also document EVERYTHING related to your disability and medical treatment. Keep copies of all doctor visits, treatment records, and any correspondence with EDD. This documentation becomes crucial for SSDI applications and any potential appeals. Also, if you're having severe nerve pain and mobility issues 9+ months post-surgery, make sure your neurosurgeon is documenting the specific functional limitations in detail. For SSDI, they need to see exactly what you can't do (like how long you can sit/stand, weight restrictions, etc.) not just that you have pain. Another tip - many Social Security offices have disability advocates who can help with your SSDI application for free. They're usually more knowledgeable about the process than trying to navigate it alone. You can find them through your local Social Security office or disability rights organizations in your area. The financial stress is real, but you're being proactive by researching all your options now rather than waiting until you're completely out of benefits. That's going to make a huge difference.

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This is excellent advice about documentation! I've been pretty good about keeping my medical records, but I need to make sure my neurosurgeon is being more specific about my functional limitations in his notes. Right now his reports mostly just say "continued pain and restricted mobility" but you're right that SSDI needs the specific details about sitting/standing limits, weight restrictions, etc. I have my next appointment with him in two weeks so I'll make sure to discuss this. I had no idea about the free disability advocates through Social Security - that sounds incredibly helpful since the SSDI application process seems so complex. I'll contact my local SS office tomorrow to ask about finding one. Thank you for the practical tips and the encouragement. It really helps to know I'm taking the right steps by being proactive now rather than waiting until I'm completely out of options.

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I went through almost the exact same situation last year with my SDI claim after a back injury. The maximum benefit amount is unfortunately a hard cap - once you hit it, that's it regardless of medical extensions. But there are definitely options to explore! First, absolutely apply for SSDI immediately if you haven't already. Don't wait until your SDI runs out completely. The process takes months and you want to avoid any gap in income. Also, since you've been disabled for 9 months already, you may have satisfied the 5-month waiting period. Second, definitely follow up on that union long-term disability coverage someone mentioned. I had coverage through my employer that I didn't even know about until I needed it. It ended up being a lifesaver during my transition period. A few other things that helped me: - Applied for emergency rental assistance through my county (with your $2,700 rent, you might qualify) - Got connected with a local disability advocate who helped with my SSDI paperwork for free - Contacted my credit card companies proactively to set up hardship payment plans The financial stress is overwhelming, but you're doing the right thing by researching all your options now rather than waiting until the last minute. There are more safety nets available than you might think - you just have to know where to look. Hang in there!

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This is such reassuring advice, thank you! It's really helpful to hear from someone who went through the exact same situation and came out okay on the other side. I'm definitely going to apply for SSDI this week - everyone here has convinced me not to wait any longer. The emergency rental assistance idea is brilliant too, especially with my high rent. I had no idea counties offered that kind of help. Can I ask what kind of documentation you needed for the rental assistance application? Also, how did you find your disability advocate? Was it through the Social Security office or somewhere else? The hardship payment plan idea for credit cards is smart too - I'd rather be proactive about that than wait until I'm behind on payments. Thank you for the encouragement and for sharing what actually worked for you. It gives me hope that there really are ways to get through this transition period!

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I'm really sorry to hear you're going through this stressful situation with your SDI benefits. The uncertainty about income while dealing with ongoing medical issues is incredibly overwhelming. Based on what I've read here and my own experience with disability benefits, I wanted to add a few things that might help: 1. **Get a detailed RFC (Residual Functional Capacity) assessment from your neurosurgeon** - This is crucial for SSDI and should specify exactly what you can/cannot do (sitting tolerance, lifting limits, walking distance, etc.). Generic "pain and mobility issues" isn't enough for SSDI approval. 2. **Look into California's In-Home Supportive Services (IHSS)** if your mobility issues are severe enough that you need help with daily activities. It's income-based and could provide some additional support. 3. **Contact 211 (dial 2-1-1)** - They maintain a database of local assistance programs including emergency rent help, utility assistance, and food resources. Much easier than trying to research each county program individually. 4. **Consider reaching out to spinal injury support organizations** - Groups like the Paralyzed Veterans of America or United Spinal Association often have resources and advocates who understand the specific challenges of spinal injuries, even if you're not a veteran. The combination of hitting your SDI maximum AND having your disability extended is unfortunately common with serious spinal issues. You're being smart by planning ahead rather than waiting until benefits stop. Wishing you the best with your recovery and navigating these systems!

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This is incredibly comprehensive advice, thank you! The RFC assessment point is really important - I need to make sure my neurosurgeon understands that I need specific functional limitations documented, not just general statements about pain. I had no idea about IHSS either, and given that I do struggle with some daily activities due to the mobility issues, that could be another option to explore. The 211 service sounds like exactly what I need - one place to find all the local assistance programs instead of trying to research everything individually. And I never thought about reaching out to spinal injury organizations, but that makes so much sense since they'd understand the specific challenges I'm facing. Your point about this being common with serious spinal issues is both concerning and reassuring - concerning that it happens to so many people, but reassuring that there are established resources and pathways to help. I'm going to start making calls tomorrow using all these suggestions. Thank you for taking the time to share such detailed and practical advice!

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I'm new to this community but wanted to share what I learned when I hit my SDI maximum benefit amount earlier this year. The stress and panic you're feeling is completely understandable - I was in the same boat. A few things that really helped me during the transition: **CalFresh (food stamps)** - Apply immediately if you haven't already. With your income dropping, you'll likely qualify and this frees up money for rent and other essentials. **Utility assistance programs** - Most utility companies have low-income discount programs and emergency assistance for people on disability. LIHEAP (Low Income Home Energy Assistance Program) can help with electric/gas bills. **Connect with a benefits counselor** - Many counties have free benefits counselors who can help you apply for multiple programs at once instead of trying to navigate everything yourself. They know about programs you might not even be aware of. **Document your daily struggles** - Start keeping a pain/function diary now. Write down what you can't do each day, how long you can sit/stand, what activities cause increased pain. This becomes invaluable evidence for SSDI. The waiting period between programs is terrifying, but there are more safety nets than it initially appears. You're already ahead of the game by researching options now instead of waiting until your last SDI payment. Hang in there - it does get better once you get connected with the right resources!

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Thank you so much for sharing your experience and these practical tips! The idea of applying for CalFresh hadn't even crossed my mind, but you're absolutely right that it would free up money for rent and other necessities. I'm definitely going to look into that along with the utility assistance programs - every bit of savings will help during this transition. The benefits counselor suggestion is really valuable too - I've been feeling overwhelmed trying to research and apply for everything on my own, so having someone who knows all the available programs sounds like exactly what I need. And the pain/function diary is such a smart idea! I wish I had started keeping one months ago, but I'll start documenting everything now for my SSDI application. It's really encouraging to hear from someone who went through this same situation and came out okay. The waiting and uncertainty is definitely the scariest part, but knowing there are people who've successfully navigated this transition gives me hope. Thank you for the encouragement and for taking the time to share what actually worked for you!

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I'm so sorry you're dealing with this stressful situation! I went through something very similar last year when my SDI benefits hit the maximum while I was still recovering from a serious injury. The panic and uncertainty about income is overwhelming, especially when you're already dealing with pain and mobility issues. From my experience and what I've learned, here are the most important things to do RIGHT NOW: 1. **Apply for SSDI immediately** - Don't wait another day. The process takes months and you want to avoid any income gap. Since you've been disabled for 9 months, you may have already satisfied the waiting period. 2. **Get very specific documentation from your neurosurgeon** - Make sure they document exact functional limitations (how long you can sit/stand, weight restrictions, walking distances) not just "pain and mobility issues." SSDI needs these specifics. 3. **Check your union benefits TODAY** - Many people have long-term disability coverage they don't know about. This could be a lifesaver during your transition. 4. **Contact your county's benefits office** - With your rent being $2,700 and potentially losing income, you likely qualify for emergency rental assistance, CalFresh, and utility help. The maximum benefit amount is unfortunately a hard cap regardless of medical extensions, but there ARE safety nets available. You're being smart by researching now instead of waiting until your last payment. I know it's scary, but with proper planning, you can get through this transition. Feel free to message me if you need help finding specific resources in your area!

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Thank you so much for this comprehensive action plan! Having someone lay out the exact steps to take RIGHT NOW is exactly what I needed. I was feeling paralyzed by all the different options and not knowing where to start first. Your point about not waiting another day on the SSDI application really hit home - I've been putting it off because the process seemed so daunting, but I can't afford to wait any longer. I'm going to call my neurosurgeon's office first thing Monday morning to schedule an appointment specifically to get those detailed functional limitations documented properly. And you're absolutely right about checking my union benefits TODAY - I keep saying I'll do it "tomorrow" but this can't wait. I'm also going to call my county benefits office Monday to ask about emergency rental assistance and other programs. It's so reassuring to hear from someone who successfully navigated this exact situation. The fear of that income gap has been keeping me up at night, but knowing there are concrete steps I can take makes me feel like I have some control over this situation again. Thank you for offering to help with finding resources - I might take you up on that if I get stuck navigating the local programs!

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I'm really sorry to hear about your situation - the combination of hitting your maximum benefit amount while still needing medical care is incredibly stressful. I went through something similar with my own disability claim a couple years ago. One thing I wanted to mention that I haven't seen discussed much here is **California's State Disability Insurance Appeals Board**. While it's true that the maximum benefit amount is typically a hard cap, there are rare circumstances where they'll consider exceptions, especially if there are unusual medical complications or if your original claim had processing issues that affected your benefit calculation. It's probably a long shot, but given that you're dealing with ongoing complications from spinal surgery that your neurosurgeon is still treating, it might be worth having a disability attorney take a quick look at your case. Many will do a free consultation to see if there are any grounds for an appeal or exception. Also, since you mentioned you're in construction - if this spinal issue has ANY connection to your work (even if it wasn't the primary cause), you should also look into workers' compensation benefits. Sometimes there are cumulative injury claims that people don't realize they qualify for, especially in physically demanding jobs like construction. The advice everyone's given about SSDI and other safety net programs is spot on. Just wanted to add these additional angles that might be worth exploring. Every option counts when you're facing this kind of financial uncertainty while dealing with a serious medical condition.

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Thank you for bringing up these additional options that I hadn't considered! The State Disability Insurance Appeals Board is something I definitely want to look into - even if it's a long shot, it's worth exploring given the ongoing complications from my surgery. I had no idea there might be exceptions to the maximum benefit cap in certain medical situations. The idea of getting a free consultation with a disability attorney is really appealing too, especially since I'm feeling overwhelmed trying to navigate all of this on my own. Regarding the workers' comp angle - while my spinal surgery itself wasn't work-related, you make a good point about cumulative injury. I've been doing construction for 15 years and definitely put my back through a lot of stress over the years. It might be worth having someone look at whether there's any connection, even if it's not obvious. I really appreciate you thinking outside the box and suggesting angles that others haven't mentioned. At this point, I need to explore every possible option since my financial situation is going to get really tight once these SDI benefits run out. Thank you for taking the time to share these additional resources!

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I'm so sorry you're going through this - hitting the maximum benefit amount while still being medically unable to work is one of the most stressful situations you can face. I went through something very similar last year with my own SDI claim. The advice everyone has given here is excellent, especially about applying for SSDI immediately and checking your union benefits. I wanted to add a couple of things that really helped me during my transition: **Contact your local Area Agency on Aging** - Even if you're not a senior, they often have disability resource coordinators who know about programs that other agencies might miss. They helped me find emergency assistance programs I never would have discovered on my own. **Look into your county's General Relief program** - It's usually a small amount (maybe $200-400/month) but it's designed specifically for people who are between benefit programs. With your high rent, every dollar will count. **Consider a disability attorney NOW, not just for SSDI** - Some specialize in SDI appeals and might be able to review if there were any calculation errors in your original claim that could affect your maximum benefit amount. The financial fear is real and valid, but you're being incredibly proactive by researching all these options while you still have some benefits left. That planning is going to make all the difference in getting through this transition period. Hang in there - there are more safety nets available than it initially seems!

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This is such helpful additional advice, thank you! I had no idea that Area Agencies on Aging might help people with disabilities who aren't seniors - that's definitely not something I would have thought to explore on my own. And the General Relief program sounds like exactly the kind of gap coverage I might need during the transition between programs. Even a few hundred dollars a month could make a huge difference when I'm trying to cover $2,700 in rent on a reduced income. The point about getting a disability attorney to review my original SDI claim calculation is really interesting too. I've been so focused on moving forward to SSDI that I hadn't considered whether there might have been issues with how my maximum benefit amount was calculated in the first place. Given all the complications I've had with this spinal injury, it's definitely worth having someone with expertise take a look at everything. I'm going to start making calls Monday to the Area Agency on Aging and my county's General Relief office. Thank you for thinking of resources that others haven't mentioned and for the encouragement. It really helps to know there are people who've successfully navigated this exact situation!

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