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Isabella Ferreira

EDD SDI maximum 52 weeks ending but still disabled - what options do I have?

I've been on California SDI for almost a year now after a serious spinal injury at work. My doctor says I'll need ongoing treatment and won't be able to return to my construction job (possibly ever). My EDD account shows I have about 3 weeks left before I hit the 52-week maximum benefit period. What happens after my disability benefits run out? My doctor is saying I'm still disabled but I'm panicking about how I'll pay rent when the SDI checks stop. Does anyone know if there are extensions for permanent disabilities or what programs I should apply for next? Do I need to wait until my SDI is completely exhausted before applying for something else?

u should apply 4 SSDI right away!!! dont wait till ur edd runs out. the social security disability takes like FOREVER to get approved, my cousin waited 18 months!!! also check if ur job had long term disability insurance, some do

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Thanks for the tip about SSDI. I had no idea it takes that long to get approved! I'll check on the long-term disability insurance, but I doubt my small construction company offers that.

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The 52-week limit for SDI is absolute - there are no extensions regardless of your situation. You need to look into three possible paths: 1. Workers' Compensation - Since you mentioned this was a work injury, you should already have a workers' comp claim open. This should continue even after SDI ends. 2. Social Security Disability Insurance (SSDI) - Apply immediately as approval can take 6-24 months. You can apply while still on SDI. 3. Long-Term Disability Insurance - If your employer provided this benefit or if you purchased it privately. You should also contact the Department of Rehabilitation to see if they can help with vocational training for a different type of work given your limitations.

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My workers' comp claim is complicated - there's a dispute about whether it was work-related vs. a pre-existing condition. My lawyer is working on it. I'll definitely apply for SSDI right away. Is there anything that can help bridge the gap between when my SDI ends and when SSDI might start?

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I went thru this last year! It SUCKS. After my SDI ran out I had no income for 5 months until my SSDI was approved. Had to borrow from family. There's no magic solution unfortunately - the systems don't work together at all. Apply for CalFresh (food stamps) and see if your county has General Assistance/Relief programs.

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That's really tough, I'm sorry you went through that. I don't have family who can help me financially. I'll look into CalFresh and General Assistance. Did you have to sell your car or anything to qualify?

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When I exhausted my SDI benefits in 2025, I was able to apply for unemployment benefits while I continued looking for work within my restrictions. This only works if you're able to do SOME type of work (even if it's not your previous job) and are actively looking. You'll need a doctor's note specifying your work limitations. Worth looking into if your doctor says you can work with accommodations.

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This is important to clarify - you can only receive unemployment benefits if you're able and available to work in some capacity. Based on the original post about permanent disability, this might not be an option. You must be medically able to perform some type of work and actively searching for work within your restrictions to qualify for UI benefits.

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Do you have a disability insurance policy through work? Many employers offer short and long term disability coverage that kicks in once state benefits end. Check with your HR department ASAP!

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Unfortunately I work for a small construction company with only basic benefits. No long-term disability insurance that I'm aware of, but I'll double check with my boss.

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I can tell you from experience that trying to call Social Security to start your SSDI application is nearly impossible right now. I kept getting disconnected or waiting for hours. I finally used Claimyr (claimyr.com) to connect with an agent and it saved me so much stress. Check out their video to see how it works: https://youtu.be/1X-mEsLtbmQ?si=1hcSq3KFtCr4oAmd As for what to do after SDI ends - make sure your doctor has documented everything thoroughly for your SSDI application. Get copies of all medical records. You'll need to prove you can't work ANY job, not just your construction job.

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Is that service legit? Never heard of it but I nearly lost my mind trying to get through to SS last year. Kept getting disconnected after waiting 2+ hours.

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Yes, it's legitimate. They basically keep calling for you and then connect you when they get through. Would have saved me days of frustration if I'd known about it sooner. Worth it if you value your time.

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This is a reality many of us face with the broken disability system in California. When my SDI ran out after a serious heart condition, I was denied SSDI twice before finally getting approved. The gap between these programs can be devastating financially. Some suggestions beyond what others mentioned: 1. Contact your mortgage company/landlord immediately - some have hardship programs 2. File for SSDI immediately AND get a disability attorney (they only get paid if you win) 3. Check if your city or county has emergency housing assistance programs 4. Apply for CalFresh and CalWorks 5. Contact 211 (call 211) for referrals to additional resources The system is designed to be difficult. Document EVERYTHING and be persistent.

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Thank you for these suggestions. I hadn't thought about talking to my landlord, but that's a good idea. I'm definitely going to call 211 and see what other resources might be available. It's so overwhelming trying to navigate all these different systems when you're already dealing with health issues.

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wait i forgot 2 mention - if ur injury was at work did u file workmans comp????? thats different from SDI!!

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This is an important point. Workers' compensation and SDI are separate systems. If your injury occurred at work, workers' compensation should be your primary benefit system, though sometimes people receive SDI while waiting for workers' comp approval. If you haven't filed a workers' comp claim for a work injury, you should speak with a workers' compensation attorney immediately.

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I'm in a similar situation and wanted to share what I learned from meeting with a benefits counselor at my local disability resource center. They told me about something called "presumptive disability" for SSDI applications - if your condition is severe enough (like certain spinal injuries), you might be able to get expedited processing or even temporary benefits while waiting for full approval. Also, some counties have disability advocacy organizations that can help you navigate all these systems for free. In my county, they even helped me fill out the SSDI paperwork correctly the first time, which apparently makes a huge difference in approval chances. Might be worth googling "[your county] disability advocacy" or "independent living center" to see what's available near you.

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This is really helpful information about presumptive disability - I had no idea that was even a thing! My spinal injury is pretty severe so that might apply to my case. I'm definitely going to look up disability advocacy organizations in my area. Having someone help with the SSDI paperwork sounds like it could make a huge difference since I keep hearing how easy it is to get denied if you don't fill it out correctly. Thanks for sharing what you learned from your benefits counselor!

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I went through this exact situation two years ago after a workplace back injury. The gap between SDI ending and other benefits starting is brutal - I ended up homeless for a few months because I didn't plan ahead properly. Here's what I wish I had known: Start your SSDI application NOW, not when SDI ends. The 5-month waiting period for SSDI starts from when you became disabled, not when you apply, so there's no benefit to waiting. If your injury was work-related, workers' comp should be your primary focus, not SDI. Workers' comp can continue indefinitely if you're permanently disabled, while SDI has that hard 52-week limit. Even if there's a dispute, get a workers' comp attorney involved immediately. For the gap period, look into: - County General Relief/Assistance programs - Food banks and churches for emergency help - CalFresh (food stamps) - Utility assistance programs through LIHEAP - Housing assistance through your local housing authority Most importantly, don't be too proud to ask for help. I waited too long and it made everything worse. The system is designed to be confusing and make you give up. Document everything, keep copies of all medical records, and consider getting a disability attorney early in the process. You're not alone in this - the disability system in California is broken but there are people and organizations who can help you navigate it.

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Thank you so much for sharing your experience - it really helps to hear from someone who's been through this exact situation. I'm sorry you had to go through homelessness, that's one of my biggest fears right now. Your advice about starting SSDI immediately makes sense, I had no idea about the 5-month waiting period being from when you became disabled rather than when you apply. I'm definitely going to look into all those assistance programs you mentioned. Do you know if there are any income limits for County General Relief that might disqualify me while I'm still receiving the last few weeks of SDI? And did you end up getting approved for SSDI eventually, or did workers' comp come through first?

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I'm going through something similar right now - my SDI is ending in about 6 weeks and I'm terrified about the financial gap. Reading through all these responses has been incredibly helpful, especially learning about the 5-month SSDI waiting period starting from when you became disabled rather than when you apply. One thing I wanted to add that might help others - I found out that some utility companies have special programs for people with disabilities that can help reduce or eliminate bills during financial hardship. PG&E has the CARE program and others have similar assistance. Also, if you're a renter, look into your city's tenant protection laws - some places have protections against eviction for people with disabilities going through benefit transitions. The hardest part for me has been the emotional toll of navigating all these different systems when you're already dealing with pain and medical appointments. Don't underestimate how draining this process can be mentally. If you have any friends or family who can help make phone calls or research programs, don't hesitate to ask. Stay strong everyone - this community has shown me there are people who've made it through this nightmare and come out the other side.

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Madison, thanks for mentioning the utility assistance programs - I hadn't thought about that at all! The CARE program sounds really helpful. You're absolutely right about the emotional toll too. I've been so focused on trying to figure out all the paperwork and deadlines that I haven't really acknowledged how exhausting this whole process is when you're already dealing with chronic pain and medical issues. It's good to know I'm not the only one feeling overwhelmed by having to navigate multiple systems at once. We shouldn't have to become experts in bureaucracy just to survive when we're disabled. Hang in there - sounds like you're being really proactive about preparing for when your SDI ends.

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I'm a newcomer here but wanted to share something that might help bridge the gap while waiting for SSDI approval. If you're having trouble affording medications or medical equipment during the transition period, look into pharmaceutical patient assistance programs - most major drug companies offer free or reduced-cost medications for people with financial hardship. Also, medical equipment companies sometimes have loaner programs for things like mobility aids or pain management devices. Another resource worth checking is your state's 211 system (just dial 211) - they maintain databases of local assistance programs that even social workers sometimes don't know about. When I was helping my neighbor navigate a similar situation, we found emergency rent assistance through a local nonprofit that wasn't advertised anywhere online. The waiting and uncertainty is incredibly stressful, but it sounds like you're being proactive by reaching out here and planning ahead. That's going to serve you well in getting through this difficult transition period.

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Thank you for mentioning the pharmaceutical assistance programs - that's something I definitely need to look into since my pain medications are really expensive. I had no idea that medical equipment companies might have loaner programs either, that could be a huge help since I'm using a back brace and TENS unit that were pretty costly. I've seen people mention calling 211 a few times in this thread, so I'm definitely going to try that. It's encouraging to hear that there might be local assistance programs that aren't well-publicized. Sometimes it feels like you have to know exactly the right keywords to search for to find help, which is frustrating when you're already dealing with brain fog from chronic pain. Thanks for taking the time to share these resources as a newcomer - it really helps to get fresh perspectives on what assistance might be available.

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I'm new to this community but went through a very similar situation last year with a workplace injury. One thing I haven't seen mentioned yet is that you might want to contact your local Area Agency on Aging (even if you're under 60) - many of them have disability services divisions that can help with emergency assistance and navigating benefit transitions. They often have caseworkers who specialize in helping people bridge these gaps between programs. Also, if you're still working with physical therapy or occupational therapy providers, ask them about equipment lending libraries or patient hardship funds. Many rehabilitation centers have resources they don't advertise but can access for patients in financial distress. The most important thing I learned is to apply for everything you might qualify for, even if you're not sure - the worst they can say is no, but you might discover assistance programs you didn't know existed. Document every application and keep copies of everything. The bureaucracy is overwhelming but you're already doing the right thing by reaching out and gathering information early.

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Julia, thank you for mentioning the Area Agency on Aging - I never would have thought to contact them since I'm only in my 30s, but it makes sense that they might have disability services too. That's really helpful to know! I'm definitely going to ask my physical therapist about equipment lending libraries when I see them next week. You're absolutely right about applying for everything even if I'm not sure I qualify - I think I've been hesitating because I don't want to waste people's time, but you're right that the worst they can say is no. I've been keeping copies of everything so far, which seems like it was good instinct based on what everyone here is saying. It's really reassuring to hear from people who have made it through this process successfully. Thank you for sharing your experience and taking the time to offer advice as someone new to the community!

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I'm new to this community but wanted to share something that helped me during a similar transition period. If you haven't already, consider reaching out to your local Independent Living Center - they often have emergency financial assistance funds specifically for people with disabilities facing benefit gaps. Many centers also offer free advocacy services to help navigate the SSDI application process and can sometimes expedite certain steps. Another resource worth exploring is the Supplemental Security Income (SSI) program alongside SSDI. While SSDI is based on your work history, SSI is need-based and might provide some income during the waiting period if your resources are low enough. The application process is similar, so you can often apply for both simultaneously. Also, don't overlook state disability insurance continuation options - while California's SDI has the 52-week limit, some people qualify for extended benefits through other state programs if their condition meets specific criteria. It's worth calling EDD directly to ask if any extensions or alternative programs might apply to your situation. The gap between programs is genuinely terrifying, but you're being smart by planning ahead. Keep pushing through the bureaucracy - your persistence will pay off.

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Harmony, this is really valuable information about Independent Living Centers - I had no idea they might have emergency financial assistance funds specifically for disability benefit gaps. That sounds like exactly what I need right now. I also didn't know about SSI being different from SSDI and potentially available during the waiting period. I'm definitely going to look into applying for both simultaneously like you suggested. The idea of calling EDD directly about possible extensions is interesting too - I assumed the 52-week limit was absolutely final based on what others said, but it's worth a phone call to double-check if there are any exceptions or alternative programs I might not know about. Thank you for sharing these specific resources and for the encouragement. It helps so much to hear from people who understand how scary this transition period is but have found ways through it.

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I'm new to this community but wanted to share something that might help during your transition period. Have you looked into applying for CalWORKs (California's welfare program)? While the benefits are modest, it can provide some temporary income assistance while you're waiting for SSDI approval. The application process can take a few weeks, so it's worth starting now before your SDI ends. Also, many hospitals and medical centers have financial hardship programs that can help with ongoing medical expenses during benefit gaps. If you're receiving treatment, ask the billing department about charity care applications or payment plans. One more thing - if you're a veteran, there are additional disability benefits through the VA that run parallel to civilian programs. Even if you haven't used VA benefits before, it might be worth exploring if you served. The bureaucracy is overwhelming when you're already dealing with pain and medical issues, but you're doing the right thing by researching options early. This community seems really knowledgeable about navigating these systems.

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Benjamin, thank you for mentioning CalWORKs - I honestly didn't even think about traditional welfare programs since I've been focused on disability-specific benefits. You're right that even modest assistance could help bridge the gap. I'm definitely going to look into applying for that before my SDI ends. The hospital financial hardship programs are another great suggestion - I have ongoing medical expenses that are going to be really difficult to manage without income. I'm not a veteran, but it's good to know that's another avenue for people who served. It's really helpful to get advice from someone who understands how overwhelming this all feels when you're already dealing with health issues. This community has been incredible - I had no idea there were so many different programs and resources available. Thank you for taking the time to share these suggestions!

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I'm new here but went through this exact situation two years ago with a workplace back injury. The transition from SDI to other benefits is absolutely terrifying, but you're smart to start planning now. A few things that really helped me that I haven't seen mentioned yet: 1. Contact your county's Adult Protective Services - they often have emergency assistance funds for disabled adults facing homelessness or utility shutoffs that aren't well-publicized. 2. Look into applying for a disabled person's bus pass or transportation vouchers through your local transit authority - this can save significant money during tight months. 3. If you have any credit cards, call them NOW to explain your situation and ask about hardship programs before you miss payments. Many will temporarily reduce or suspend payments. 4. Check if your county has a "disability navigator" program - these are specialists who help people transition between benefit systems and know about local resources. The most important thing is to start your SSDI application immediately if you haven't already. Don't wait for SDI to end. I made that mistake and it cost me dearly. You're going to get through this. The system is broken but there are people and programs designed to help bridge these gaps if you know where to look. This community has been incredibly helpful in sharing resources - lean on the knowledge here.

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Kelsey, thank you so much for sharing these specific resources - several of these are completely new to me! I had no idea that Adult Protective Services might have emergency funds for situations like this, and the disabled person's bus pass is something I definitely need to look into since transportation costs add up quickly when you're going to frequent medical appointments. Your advice about calling credit card companies proactively is really smart - I've been worried about my bills but hadn't thought about reaching out before missing payments rather than after. The "disability navigator" program sounds incredibly helpful if my county has one - having a specialist who knows how to transition between systems could save me so much stress and confusion. I really appreciate you taking the time as a newcomer to share what you learned from going through this exact situation. It gives me hope that there are more resources available than I initially thought, and that people do make it through this scary transition period successfully.

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I'm new to this community but wanted to share something that helped me when I was facing a similar SDI-to-SSDI transition gap. Have you considered applying for emergency assistance through your local Community Action Agency? They often have one-time emergency funds for rent, utilities, and other basic needs specifically for people going through benefit transitions. Many people don't know these agencies exist, but they're federally funded and operate in most counties. Also, if you're receiving any ongoing medical treatment, ask your healthcare providers about patient hardship funds or sliding-scale payment options. Many medical practices have funds set aside specifically for patients experiencing financial difficulties due to disability transitions, but they don't always advertise these programs. One more thing - document everything related to your disability and work limitations now while you still have some SDI income. Get letters from all your doctors detailing your functional limitations, keep records of all medical appointments, and take photos/videos if your condition affects your mobility or daily activities. This documentation will be crucial for your SSDI application and any appeals if needed. The gap between programs is genuinely scary, but you're being proactive by reaching out here and planning ahead. That preparation is going to make a real difference in getting through this transition period successfully.

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Luca, thank you for mentioning Community Action Agencies - I've never heard of them before but emergency assistance specifically for benefit transitions sounds like exactly what I might need. I'm definitely going to look up if there's one in my county. Your advice about documenting everything now is really important too. I've been keeping medical records but hadn't thought about getting specific letters from doctors detailing my functional limitations or taking photos/videos of how my condition affects daily activities. That's really smart preparation for the SSDI application. I appreciate you emphasizing the importance of doing this documentation while I still have some income - it's much easier to be proactive about these things now than trying to scramble when the benefits run out. Thank you for taking the time as someone new to the community to share these specific resources and practical advice. It really helps to hear from people who have successfully navigated this scary transition period.

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I'm new to this community but wanted to share something that might help during your transition. Have you looked into applying for In-Home Supportive Services (IHSS) if your spinal injury affects your ability to do daily activities like cleaning, cooking, or personal care? It's a California program that provides paid assistance for people with disabilities and can continue regardless of your other benefit status. Even if you live alone, you might qualify for hours that could provide some income to a family member or friend who helps you. Also, many counties have emergency rental assistance programs specifically for people with disabilities facing benefit gaps - these are separate from general rental assistance and often have shorter waiting lists. Try searching "[your county] disability emergency rental assistance" or contact your local Center for Independent Living. One thing I wish I had known earlier is that some food banks have special programs for people with disabilities that include things like prepared meals, medical nutrition supplements, or even pet food if you have service/emotional support animals. The regular food bank lines can be physically difficult when you're dealing with spinal issues. The transition period is terrifying, but you're asking all the right questions and getting great advice here. Document everything, apply for multiple programs simultaneously, and don't be afraid to ask for help - that's what these safety net programs are designed for.

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Jessica, thank you for mentioning IHSS - I hadn't heard of that program at all! My spinal injury definitely affects my ability to do household tasks like cleaning and some cooking, so that might be something I could qualify for. The idea that it could provide some income to a family member or friend who helps me is really interesting too. I'm definitely going to look into emergency rental assistance programs specifically for people with disabilities - I've been so focused on the general programs that I didn't realize there might be disability-specific ones with shorter waiting lists. Your point about food banks having special programs for people with disabilities is really helpful too, especially since standing in long lines is really difficult with my back issues. I appreciate you mentioning prepared meals and medical nutrition supplements since cooking has become much harder for me. Thank you for taking the time as a newcomer to share these specific California programs and practical tips. It's encouraging to know there are programs designed specifically for situations like mine that I wasn't even aware of.

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