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Victoria Jones

Social Security claims my adult disabled son's benefits caused $6,090 overpayment since 2018 - can I get this waived?

I'm in serious panic mode right now. Just received notices saying my children's SSDI dependent benefits were overpaid by $6,090 going back to 2018! The notice is ONLY for my kids' payments - nothing about my own SSDI which I've been receiving since 2018. What's driving me crazy is how SSA could miss something for FOUR YEARS then suddenly hit us with this bill. How is that even fair? Does anyone know the process for getting an overpayment waived? There's more to this mess: A few months ago, SSA called about my autistic son who just moved back home. The rep said their system messed up when he turned 18 - something about not converting him correctly to an "adult disabled dependent." They sent paperwork for medical release forms which I submitted. From what I can piece together from these confusing notices, they're claiming the overpayment started in 2021 when he turned 18 and their system dropped him. Now they're withholding his payments based on what SSI he was getting at that time. They ARE giving him Medicare Parts A and B, but expecting him to pay for Part B out of either the $164/month they're now saying SSA will give him (or nothing?). The notices say they owe him back payments of $5,548 during this period. I'm hoping I can at least get them to offset what they claim we owe against what they owe him. This whole situation is a bureaucratic nightmare. Has anyone dealt with something similar?

Cameron Black

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You should absolutely apply for an overpayment waiver using Form SSA-632 (Request for Waiver of Overpayment Recovery). Based on what you've described, you have a good case for "not at fault" since SSA made the error in not properly transitioning your son's benefits when he turned 18. The weird thing is this sounds like a systems issue on their end with the adult disabled child benefit conversion. When a child on benefits turns 18 and is disabled, they should continue receiving benefits on your record if the disability began before age 22. Also, you mentioned back payments owed to him of $5,548 against the $6,090 overpayment. You're right to ask for an offset - that would leave only about $542 difference.

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Thank you so much for this guidance! I'll definitely fill out the SSA-632 form. Do you know how quickly they typically process these waiver requests? I'm worried they'll start taking money before the waiver is even reviewed.

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I had a similar situation with my daughter who has Down syndrome. When she turned 18, SSA's computer system automatically terminated her benefits, even though she qualified for continued benefits as an adult disabled child. It took me MONTHS of calls to get it fixed. The problem is their automated system treats turning 18 as a termination event, but doesn't automatically apply the adult disabled child rules even when they have all the disability information in their system. Request a waiver, but also request a detailed explanation of HOW the overpayment occurred. The fact that they're now acknowledging he qualifies for adult disabled child benefits means they're admitting their error.

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It's so frustrating that their system works this way! Did you end up having to pay back any overpayment in your situation? I'm definitely going to request that detailed explanation.

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When you go to appeal this, make sure you focus on the "not at fault" criteria. Based on what you've said, this was clearly their error, not yours. Also, keep in mind there are TWO parts to getting a waiver: 1) proving you weren't at fault AND 2) showing that repayment would cause financial hardship OR be against equity and good conscience. Document everything! Their error in not properly converting your son to adult disabled status when he turned 18 is THEIR mistake, not yours.

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That's really helpful - I didn't realize there were two separate things I need to prove. If they take this money back, it would definitely cause hardship for us, especially with my son's extra care needs.

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Ruby Garcia

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ughhhh the SSA computers are THE WORST!!! this exact thing happened to my brother's kid too. took like 9 months to fix. they want u to pay for THEIR mistake!!! ridiculous!!

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9 months?? That's terrifying. Did they withhold benefits during that whole time? I'm worried about how we'll manage if they start taking money back right away.

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Try calling SSA directly to discuss this situation and request an immediate review. I know from experience that reaching them can be nearly impossible, but I recently discovered a service called Claimyr that got me through to a live SSA agent in under 10 minutes instead of waiting on hold for hours or getting disconnected. You can see how it works at https://youtu.be/Z-BRbJw3puU and sign up at claimyr.com. It was a lifesaver when I had a complicated overpayment issue with my wife's survivor benefits that needed immediate attention. Once you get through to a live person, specifically ask to speak with someone in the Processing Center (not just the field office) who handles Adult Disabled Child benefit cases.

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I've been trying to call for days with no luck, so I'll definitely look into this. I didn't know there was a specific Processing Center for these cases - that's really helpful information!

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WAIT! Before you do anything else, request a WRITTEN explanation of the overpayment calculation! I've dealt with overpayment notices before and sometimes they're just flat-out WRONG. Don't assume the amount they're claiming is correct. Make them explain EXACTLY how they calculated both the $6,090 overpayment AND the $5,548 they supposedly owe him. There could be calculation errors in BOTH numbers!

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Cameron Black

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This is excellent advice. Always request a detailed, itemized explanation of how the overpayment was calculated. You'd be surprised how often these calculations contain errors, especially in complex cases involving multiple beneficiaries and status changes.

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When my son turned 18 (he has autism too), we went through something similar. What helped us was bringing a printout of POMS section DI 10115.001 (that's the SSA's internal manual) about Childhood Disability Benefits to our appointment. It specifically covers the continuation of benefits when a child turns 18 and is disabled. The rep was actually impressed we knew about this and it helped resolve our issue much faster. Also, be sure to find out if they'll stop collection actions while your waiver request is pending - they should, but sometimes you need to specifically ask.

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Thank you for this specific reference! I'll definitely look up that POMS section. I had no idea they had internal manuals we could reference. Did you have an in-person appointment? I wasn't sure if that was better than trying to resolve by phone.

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Ruby Garcia

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my cousin works for ssa and says they're TOTALLY BACKED UP with these kinds of cases. the computer system automatically cuts off kids at 18 and then humans have to manually fix it for disabled kids. they're like 2 years behind on fixing these!! its not right but thats how it is

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This is EXACTLY the problem! Their ancient computer system from the 1980s auto-terminates at age 18 and then some overworked employee has to manually override it. But then they blame US for THEIR failures! The whole system needs to be rebuilt from scratch.

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One more thing to consider - if your son qualifies for both SSI and disabled adult child benefits (CDB/DAC) on your record, there are complicated rules about which pays first. If the SSA retroactively determined he was eligible for the higher DAC benefits on your record after initially putting him on SSI, this could explain part of the confusion with the overpayment and underpayment notices. When he gets DAC benefits on your record, this can reduce or eliminate his SSI, but might result in a higher total payment. It's extremely complex and SSA reps often get confused themselves about how these programs interact.

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That makes sense - he was getting some SSI but now they're saying he should have been getting the disabled adult child benefits on my record instead. The notices are so confusing that I couldn't tell if that's what happened. Is there a specific type of SSA rep who specializes in these complicated dual-eligibility situations?

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I'm so sorry you're dealing with this nightmare! As someone who has navigated similar SSA bureaucratic messes, I wanted to share a few things that might help: First, DEFINITELY file that SSA-632 waiver form that others mentioned - you have a strong case since this was clearly their system error, not anything you did wrong. Second, I'd suggest keeping a detailed log of every interaction you have with SSA going forward. Write down dates, times, who you spoke with, and exactly what was said. This documentation becomes crucial if you need to escalate or appeal. Also, consider reaching out to your local congressperson's office. They often have staff who specialize in helping constituents with federal agency issues like this. Sometimes a call from a congressional office can get things moving faster than months of individual effort. The fact that they're acknowledging he qualifies for adult disabled child benefits AND that they owe him back payments suggests they know they messed up. Don't let them intimidate you into just accepting this overpayment - you have rights and options here. Stay strong - this kind of bureaucratic mess is frustrating beyond words, but it IS fixable with persistence!

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Chloe Delgado

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Thank you so much for this comprehensive advice! I hadn't thought about contacting my congressperson's office - that's brilliant. I've been feeling so overwhelmed and like I'm fighting this huge bureaucracy alone, but you're right that there are people whose job it is to help with exactly these situations. I'm definitely going to start keeping that detailed log you mentioned. I've already had several phone calls about this and wish I had written everything down from the beginning. The part about them acknowledging they owe him back payments while claiming we owe them money really does seem like they're admitting their mistake. I'm going to push hard on that angle when I file the waiver form. Thanks for the encouragement - I really needed to hear that this is fixable!

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