Will cryptocurrency windfall end my SSI and Medicare/Medicaid at age 69 with lung disease?
I'm in a really strange situation and desperately need advice from anyone who's dealt with something similar. I just inherited a substantial amount of cryptocurrency from my nephew who passed away (he was big into tech). The crypto is worth enough to support me for my remaining years, but I'm terrified about losing my benefits. I've been on SSI for over 15 years due to a progressive lung disease. I'm now 69 and rely heavily on Medicare with my Medicaid supplement for all my medical treatments and oxygen. My doctors say I likely have 3-5 years left given my condition's progression. Does anyone know what happens to my Medicare coverage if I report this crypto and lose SSI? Will I automatically lose my Medicaid supplement? I couldn't possibly afford my treatments without it - we're talking thousands per month. Should I convert the crypto to cash immediately or would that make things worse? I have no experience with this stuff. Time isn't exactly on my side health-wise, and I'm panicking about making a mistake that leaves me without medical coverage when I need it most.
33 comments


Ravi Patel
This is definitely a complicated situation. First, you need to understand that cryptocurrency is considered a resource/asset by SSA, and the SSI resource limit is only $2,000 for individuals. Once you receive the crypto, you'll be over the resource limit and will lose SSI eligibility. Regarding Medicare - if you're 69, you should already be on Medicare due to age (not disability). Medicare should continue regardless of your SSI status. However, the Medicaid supplement that helps with Medicare premiums and copays (probably a Medicare Savings Program) will be affected by your new resources. You should speak with a benefits counselor or elder law attorney ASAP. There may be options like spending down assets or establishing a Special Needs Trust that could help preserve some of your benefits.
0 coins
Isabella Oliveira
•Thank you for the quick response. I didn't realize Medicare would continue - that's a small relief. But without the Medicaid supplement, I'd still be in serious trouble with all the copays and prescription costs. I had no idea about Special Needs Trusts. Is that something I could set up fairly quickly? I'm worried about the SSI reporting timeline - don't I have to report new resources within 10 days?
0 coins
Freya Andersen
this happened to my uncle!!!! he got a big insurance settlement and lost his medicaid right away, couldnt even keep his same doctors. took like 6 months to get it all sorted out and cost him like $20k in medical bills before he got on a medicare advantage plan. u should cash out some of that crypto ASAP and get a lawyer who specializes in this stuff. the ssa people wont help u with this, they'll just cut ur benefits
0 coins
Isabella Oliveira
•Oh no, that's exactly what I'm afraid of. I'm so sorry your uncle went through that. I can't go even a month without my treatments. Did he ever get Medicaid back? I'll start looking for a lawyer today.
0 coins
Omar Zaki
You're in a tricky situation but there are some options. Since you mention your condition gives you 3-5 years, you need to carefully plan how to handle this asset. 1. You MUST report the crypto within 10 days to SSA as it's a countable resource. Failure to report could result in penalties/paybacks. 2. For Medicare: At 69, you'll keep Medicare regardless of SSI status. But you'll likely lose your Medicaid if your assets exceed the limit. 3. Options to consider: - Spend down: Use funds for exempt purposes (home modifications, medical equipment, prepaid funeral, etc.) - Special Needs Trust: These take time to set up but can protect assets while maintaining benefits - ABLE account: If your disability began before age 26 (probably not applicable) 4. Most importantly: Get professional help immediately from an elder law attorney familiar with asset protection and benefits planning. The consultation fee will be worth avoiding mistakes.
0 coins
Isabella Oliveira
•Thank you for laying this out so clearly. I definitely don't want penalties on top of everything else. My disability began in my 50s, so I guess the ABLE account won't work. I'll look into the spend down options - I could certainly use some home modifications to make things easier with my oxygen equipment. Would converting some crypto to pay for an attorney be considered a proper spend down?
0 coins
CosmicCrusader
I was in a similar situation two years ago when I got an inheritance. Lost my SSI immediately. The worst part was dealing with Social Security's phone system - I tried for WEEKS to reach someone to discuss my options and kept getting disconnected or waiting for hours. I finally tried a service called Claimyr (claimyr.com) that got me through to an actual SSA agent in under 20 minutes. They have a video showing how it works: https://youtu.be/Z-BRbJw3puU Once I got through, they connected me with their local office's benefits counselor who explained my options. Definitely worth it because I needed answers fast before making irreversible decisions about my benefits. Good luck with your situation!
0 coins
Freya Andersen
•omg thank u for sharing this!!! my mom has been trying to call ssa for 2 weeks about her retirement application
0 coins
Chloe Robinson
CONVERT THE CRYPTO TO CASH IMMEDIATELY!!! The SSA has NO IDEA about crypto unless you tell them. My cousin had this EXACT situation and he just kept quiet about it and nothing happened. These government agencies don't know anything about blockchain or wallets. Just saying... sometimes the "right" thing isn't the smart thing. They've probably underpaid you for years anyway!!!!
0 coins
Ravi Patel
•This is extremely dangerous advice that could result in severe penalties, including criminal charges for benefit fraud. SSA conducts periodic reviews and can discover unreported assets, especially large ones. They're increasingly sophisticated about tracking crypto. The penalties could include having to repay all benefits received while ineligible, plus additional penalty fees.
0 coins
Isabella Oliveira
•I appreciate the suggestion, but I really don't want to risk fraud charges at my age and condition. I wouldn't survive incarceration with my oxygen needs, and the stress alone would probably finish me off. I think I need to find a legal way to handle this, even if it's more complicated.
0 coins
Diego Flores
Just wanted to mention - make sure you understand the tax implications of your crypto as well! When you convert crypto to cash it's a taxable event and depending on how long your nephew held it and what he paid, you could owe significant capital gains tax on top of everything else. The IRS and SSA don't directly share all information but both will eventually know about large financial changes.
0 coins
Isabella Oliveira
•Oh no, I hadn't even thought about the tax angle. This is getting more complicated by the minute. Do you know if there's any kind of inheritance exemption for crypto like there is for other assets?
0 coins
Anastasia Kozlov
My aunt with COPD had to transition from Medicaid to just Medicare last year and she found a really good Medicare Advantage plan that covers most of her respiratory treatments and oxygen supplies. Not saying it's ideal but there are options if you do lose Medicaid. Also her social worker at the hospital helped a lot with finding patient assistance programs for her medications - have you talked to your hospital's social work department?
0 coins
Isabella Oliveira
•That's a great suggestion about the hospital social worker. I have a pulmonary appointment next week and I'll ask if I can speak with someone in social work while I'm there. It's reassuring to hear your aunt found coverage that works for her respiratory needs - that's my biggest concern.
0 coins
Omar Zaki
Here's what I recommend based on your follow-up comments: 1. Yes, paying for legal consultation is a legitimate expense and wouldn't count against you for spend-down purposes. 2. Look into Qualified Income Trusts (QITs) or Miller Trusts as well - they can help with income limit issues. 3. For your immediate needs, don't convert all the crypto at once. Work with an attorney first to establish the proper structures. 4. Since you mentioned a 3-5 year timeline, you might want to explore how to balance maintaining some benefits while using the crypto to supplement your care and improve quality of life. 5. Medicare Part D Extra Help program might be an option to help with prescription costs even if you lose full Medicaid. Remember that timing and sequence of actions is critical with asset transfers and benefit eligibility.
0 coins
Isabella Oliveira
•Thank you SO much for this detailed follow-up. I hadn't heard of the Extra Help program before - I'll look into that right away. I think I need to find an attorney this week and hold off on doing anything with the crypto until I have proper guidance. I really appreciate everyone taking the time to help me understand my options.
0 coins
Emma Wilson
I'm so sorry you're dealing with this stressful situation on top of your health challenges. As someone who works with seniors navigating benefit transitions, I wanted to add a few important points that might help: First, consider reaching out to your state's SHIP (State Health Insurance Assistance Program) counselor - they provide free, unbiased Medicare counseling and can help you understand exactly what coverage options you'll have if you lose Medicaid. They're experts at navigating these complex situations. Second, when you do speak with an attorney, ask specifically about "asset protection planning" for individuals with chronic conditions. Some attorneys specialize in this and can help structure things to maximize your quality of life while preserving as many benefits as possible. Third, document everything about your current treatments and medications now, including costs. This will help you and your attorney understand exactly what you need to maintain and plan accordingly. Finally, if you do need to transition off some benefits, don't wait until the last minute. Start the process of researching Medicare Advantage plans or Medigap policies while you still have time to make informed decisions rather than rushed ones. You're being smart by seeking advice before making any moves. Hang in there - there are people who can help you navigate this.
0 coins
Zoe Papanikolaou
•Thank you so much for this incredibly helpful and compassionate response. The SHIP counselor suggestion is perfect - I had no idea that resource existed and free guidance is exactly what I need right now. I'm going to call them first thing tomorrow morning. Your point about documenting everything is really smart. I've been so focused on the asset side that I hadn't thought about creating a detailed record of my current care needs and costs. That will definitely help when I meet with an attorney. I really appreciate you taking the time to lay out such a clear action plan. It's reassuring to know there are people like you who understand how overwhelming this can be when you're already dealing with serious health issues. Thank you for the encouragement - I was starting to feel pretty hopeless about the whole situation.
0 coins
Aisha Khan
I'm sorry you're facing such a difficult situation with your health and this unexpected inheritance. From what I understand, you have a few key issues to address quickly: **Immediate Steps:** 1. Don't convert the crypto to cash yet - wait for professional guidance first 2. Contact your state's SHIP program (as Emma mentioned) for free Medicare counseling 3. Find an elder law attorney who specializes in asset protection for people with disabilities **Important Timing Considerations:** - You have 10 days to report the crypto to SSA once you officially receive it - If the crypto is still in your nephew's wallet/account, you may have some time before it's legally considered "received" - The exact timing of when inheritance is considered "received" can be complex with crypto **Potential Strategies to Explore with an Attorney:** - Special Needs Trust (though these take time to establish) - Spend-down options for medical equipment, home modifications, prepaid funeral - Converting part of the crypto to pay for legal counsel (this is legitimate) **Benefits You Should Keep:** - Medicare will continue regardless of SSI status since you're 69 - Look into Medicare Part D Extra Help for prescription costs - Research Medicare Advantage plans as backup options Don't panic - while this is complicated, there are legal ways to handle it. The key is getting professional help before making any irreversible decisions. Your health and peace of mind are the priority here.
0 coins
Laura Lopez
•This is such a comprehensive and well-organized response - thank you! The point about the crypto not being "officially received" until it's transferred to my control is really important. My nephew's executor hasn't actually transferred it to me yet, so I might have a little breathing room to get proper legal advice first. I'm feeling much more hopeful after reading everyone's responses. It sounds like while this is definitely complicated, it's not hopeless. I'm going to start with calling SHIP tomorrow, then finding an elder law attorney who specializes in this area. The spend-down options you mentioned make sense too - I've been putting off some important home modifications for my oxygen equipment that would really improve my quality of life. It's good to know those could be legitimate expenses. Thank you for breaking this down so clearly and reminding me that my health and peace of mind should be the priority. I was getting so caught up in the panic that I forgot the whole point is to use these resources to take better care of myself in whatever time I have left.
0 coins
Finnegan Gunn
I'm really glad to see you're getting such helpful advice here! As someone who went through a similar benefits transition when my disability status changed, I wanted to add one more resource that might be helpful. Your state likely has a Disability Benefits 101 website (just search "[your state] DB101") that has calculators and tools to help you understand exactly how different asset levels will affect your specific benefits. It's run by the University of New Hampshire and has state-specific information. Also, when you do speak with the SHIP counselor, ask them about "Medicare Savings Programs" - even if you lose full Medicaid, you might still qualify for programs that help with Medicare premiums and deductibles if your income stays low enough (the asset limits are higher for these programs than for SSI). One last thought - since you mentioned your nephew was "big into tech," there might be tax advantages to how the crypto is structured that could help minimize the taxable event when you do convert it. Definitely mention this to whatever attorney you consult with. You're handling this exactly right by gathering information first. Wishing you the best outcome for both your health and your financial security.
0 coins
Emma Johnson
•Thank you so much for mentioning the DB101 website - I had never heard of that resource and it sounds like exactly what I need to run some scenarios before meeting with an attorney. Having actual numbers will help me make more informed decisions. The Medicare Savings Programs tip is really encouraging too. I was assuming it would be all or nothing with Medicaid, but if there are programs with higher asset limits that could still help with premiums and deductibles, that would make a huge difference for my budget. Your point about potential tax advantages related to how my nephew structured his crypto holdings is fascinating. He was always talking about things like "cost basis" and "long-term vs short-term" but I never really understood what he meant. I'll definitely bring this up with the attorney - it could save me thousands if there are legitimate ways to minimize the tax impact. I'm starting to feel like I have a real action plan now thanks to everyone's input. It's amazing how much clearer this all seems when you have knowledgeable people pointing you toward the right resources. Thank you for taking the time to share your experience and these additional tools!
0 coins
Niko Ramsey
I've been following this thread and wanted to add something that might be relevant to your situation. Since you mentioned having a progressive lung disease and limited time, you should also look into whether your state has any "medically needy" Medicaid programs. These allow people with higher assets to still qualify for Medicaid by "spending down" their excess resources on medical expenses each month. Given your condition and high medical costs, this could potentially allow you to keep some of the crypto while still maintaining Medicaid coverage. The spend-down amount would be based on your income and medical expenses, and since you have significant ongoing treatment costs, this might work in your favor. Also, don't forget that if you do lose SSI, you'll need to notify Medicare about the change since it affects your Part B premium (you might lose the automatic Part B premium payment that comes with SSI). But as others mentioned, your Medicare coverage itself will continue. One more thing - if you haven't already, consider getting a detailed written treatment plan from your pulmonologist that outlines your expected care needs and costs over the next few years. This documentation could be valuable when working with your attorney to structure the best approach for your situation. You're clearly approaching this thoughtfully and I hope you find a solution that provides both financial security and peace of mind during this difficult time.
0 coins
Fatima Al-Qasimi
•This is incredibly helpful information about the "medically needy" Medicaid programs - I had no idea these existed! Given that my monthly medical costs are already quite high with my oxygen therapy, medications, and frequent specialist visits, this could potentially be a game-changer if my state offers this option. The point about notifying Medicare regarding Part B premium changes is something I definitely wouldn't have thought of on my own. I'll make sure to add that to my list of things to discuss with both SHIP and my attorney. Getting that detailed treatment plan from my pulmonologist is a brilliant suggestion. I have an appointment next week anyway, so I'll ask for a comprehensive overview of my expected care trajectory and associated costs. Having that documentation will definitely strengthen my case when exploring all these different options. Thank you for continuing to share such practical and specific advice. Between the medically needy programs, the Medicare notification requirements, and the documentation strategy, you've given me several more tools to work with. It's reassuring to know there are still potential pathways to maintain coverage even in complex situations like mine. I'm feeling much more prepared now to have productive conversations with the professionals I'll be consulting. This community has been absolutely invaluable in helping me understand the landscape before I start making official decisions.
0 coins
Javier Mendoza
I wanted to share something that might help with your immediate anxiety about this situation. When I was helping my father navigate a similar benefits crisis a few years ago, one thing that really helped was creating what we called a "transition timeline" with his attorney. Basically, they mapped out the optimal sequence of actions over several weeks/months rather than trying to figure everything out at once. For example: Week 1 - consult with SHIP and gather documentation, Week 2 - meet with elder law attorney, Week 3 - begin setting up any trusts or legal structures, etc. This approach helped because benefits changes don't all happen instantly - there are usually grace periods, appeal rights, and transition processes that can buy you time if you know how to use them properly. Your attorney can help you understand exactly what deadlines are hard vs. which ones have some flexibility. Also, given your health situation, make sure to ask about "expedited processing" for any applications or appeals. Many programs have provisions for people with serious medical conditions that can speed things up considerably. The fact that you're being so proactive about this puts you in a much better position than people who wait until after they've already lost benefits to figure out their options. You've got this - just take it one step at a time.
0 coins
Keisha Williams
•The "transition timeline" approach you mentioned sounds incredibly valuable and much less overwhelming than trying to tackle everything at once. I've been feeling paralyzed by all the moving pieces, but breaking it down into a structured week-by-week plan makes it feel much more manageable. I hadn't thought about expedited processing options, but that could be crucial given my health timeline. I'll make sure to ask about that when I start making calls tomorrow - it could make a real difference in how quickly I can get proper structures in place. You're absolutely right that being proactive is key here. Reading everyone's responses has really shifted my mindset from panic to having an actual strategy. I'm going to start documenting all these suggestions so I can present them systematically to the professionals I consult with. Thank you for the encouragement about taking it one step at a time. Between the anxiety about my health and now this financial complexity, it's easy to feel overwhelmed. But this community has given me so many concrete next steps that I'm starting to feel like I can actually navigate this successfully. I really appreciate everyone who has shared their knowledge and experience here. It's made such a difference in helping me understand that while this is complicated, it's not impossible to handle properly with the right guidance.
0 coins
Sean Fitzgerald
I just wanted to say how heartwarming it is to see this community come together to help Isabella with such a complex situation. As someone who has worked with seniors facing similar benefits challenges, I can tell you that the advice shared here has been absolutely spot-on. A few additional thoughts that might help as you move forward: 1. **Documentation is everything** - Keep detailed records of every conversation you have with SSA, SHIP counselors, attorneys, etc. Include dates, names, and what was discussed. This creates a paper trail that can be invaluable if you need to appeal any decisions later. 2. **Consider the emotional aspect** - Managing a chronic illness while navigating complex bureaucracy is exhausting. Don't hesitate to ask a trusted friend or family member to help you with calls and appointments, or even just to take notes during important meetings. 3. **Timeline flexibility** - While the 10-day reporting requirement is real, remember that "receipt" of inherited crypto can be complicated legally. The fact that it hasn't been transferred to your wallet yet gives you some breathing room to get proper advice first. 4. **Quality of life focus** - Whatever path you choose, make sure it allows you to maintain dignity and comfort during your remaining years. Sometimes the "optimal" financial strategy isn't worth it if it creates too much stress or compromises your care. You're handling this with remarkable grace under very difficult circumstances. The fact that you're seeking advice before acting shows real wisdom. Wishing you the best possible outcome in both your health journey and financial planning.
0 coins
Sara Hellquiem
•Thank you so much for this incredibly thoughtful and comprehensive response. Your point about documentation is something I definitely need to prioritize - I tend to rely on my memory, but you're absolutely right that having a detailed paper trail could be crucial if anything goes wrong later. The emotional aspect you mentioned really resonates with me. I've been trying to handle all of this alone because I don't want to burden anyone, but you're right that managing a serious illness while navigating bureaucracy is overwhelming. I think I'll ask my neighbor (who's helped me with other things) if she could accompany me to some of these important meetings - just having someone there to take notes and ask questions I might forget would be such a relief. Your reminder about timeline flexibility around the crypto "receipt" is reassuring. It gives me permission to take the time I need to make informed decisions rather than rushing into something that could make the situation worse. Most importantly, thank you for emphasizing the quality of life focus. In all my worry about doing things "right" financially, I was losing sight of the fact that the whole point is to ensure I can live out my remaining time with dignity and proper medical care. That perspective really helps me prioritize what matters most. This community has been such a blessing during one of the most stressful times in my life. Everyone's wisdom and compassion have transformed what felt like an impossible situation into something I can actually manage with the right help.
0 coins
Carmen Ortiz
Reading through this entire thread has been both educational and inspiring. Isabella, I'm so impressed by how you've handled everyone's advice and transformed what started as a panic into a clear action plan. I wanted to add one more resource that might be helpful: many hospitals and medical centers have financial counselors who specialize in helping patients navigate insurance transitions. Since you mentioned having frequent treatments and specialist visits, your medical team might have someone on staff who has dealt with similar situations before. They often know about local programs and resources that even attorneys might not be aware of. Also, when you do meet with an elder law attorney, consider asking if they offer payment plans or if they'd accept payment from the crypto conversion as part of your legal spend-down strategy. Some attorneys who specialize in benefits law understand that their clients are often in tight financial situations and can be flexible about payment arrangements. One last thought - you mentioned your nephew was "big into tech." If he kept detailed records of his crypto purchases and transactions, that documentation could be incredibly valuable for tax purposes when you do convert any of it. It might be worth asking the executor if those records are available. You've got such a solid plan now with SHIP counseling, elder law consultation, medical documentation, and all the various programs people have mentioned. Your thoughtful approach to this challenging situation is really admirable. Best of luck with everything!
0 coins
Isabella Costa
•This is such wonderful additional advice, Carmen! The hospital financial counselor suggestion is particularly valuable - I never would have thought to ask about that, but you're absolutely right that they probably see situations like mine fairly regularly and would know about local resources that might not be widely publicized. The point about asking attorneys regarding payment plans or accepting payment from crypto conversion as part of the legal spend-down is brilliant. I was worried about the upfront costs of getting proper legal help, but framing it as part of the legitimate spend-down strategy makes perfect sense. Regarding my nephew's records - that's an excellent point. He was incredibly meticulous about everything tech-related, so I wouldn't be surprised if he kept detailed transaction records. I'll definitely ask the executor about this when we next speak. Having that documentation could save me significant money on taxes, which would mean more resources available for my actual care needs. It's amazing how this thread has evolved from my initial panic into what feels like a comprehensive roadmap. Between the SHIP counseling, elder law consultation, hospital financial counselors, medical documentation, various benefit programs, and now these additional strategies, I feel like I have multiple pathways to explore. Thank you for adding these final pieces to the puzzle. The collective wisdom of this community has been absolutely invaluable - I couldn't have asked for better guidance during such a challenging time. I'm feeling genuinely hopeful now that I can navigate this properly and maintain the care I need.
0 coins
Carmen Vega
Isabella, I've been following your journey through this thread and I'm so glad to see how you've transformed what started as overwhelming panic into a structured action plan. Your methodical approach to gathering information before making decisions is exactly the right way to handle something this complex. I wanted to add one practical tip that might help during your upcoming consultations: prepare a one-page summary of your situation including your current benefits, medical conditions, treatment costs, and the inheritance details. Having this written summary will help you communicate efficiently with SHIP counselors, attorneys, and other professionals, and ensures you don't forget important details when you're feeling anxious during appointments. Also, since you mentioned your neighbor might help with appointments, consider giving her a copy of this summary too. Sometimes having an advocate who can ask follow-up questions or clarify things you might miss can be incredibly valuable. Your proactive approach and willingness to seek proper guidance gives me confidence that you'll find a path that preserves your health coverage while allowing you to benefit from your nephew's generous legacy. The fact that you're prioritizing doing things legally and ethically, despite the complexity, speaks volumes about your character. Keep us updated on how things progress - this community clearly cares about your wellbeing and your experience could help others facing similar challenges in the future.
0 coins
NebulaNinja
•This is such excellent practical advice about preparing a written summary! I've been jotting down notes throughout this conversation, but you're absolutely right that having everything organized on one page will make my consultations much more efficient and ensure I don't forget crucial details when I'm nervous. I'm definitely going to create that summary this weekend and give a copy to my neighbor when I ask her to help with appointments. She's always been great at asking questions I don't think of, so having her prepared with the background information will be really valuable. You're so kind to say that about my approach - honestly, this community has been what transformed my panic into a plan. When I first posted, I was terrified and had no idea where to even start. Everyone's guidance has given me the confidence that there really are legitimate ways to handle this properly. I will absolutely keep everyone updated on how things progress. This thread has been such a lifeline for me, and if my experience can help someone else in a similar situation down the road, that would make all of this stress worthwhile. Thank you again for all the encouragement and practical suggestions - it means more than you know during such a difficult time.
0 coins