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Joy Olmedo

Can my disabled child receive both Social Security survivor benefits and SSI at the same time?

My youngest son (14) currently receives Social Security survivor benefits after his father passed away two years ago. He also has several significant disabilities, and his neurologist recently suggested I should apply for SSI disability for him as well. Here's where I'm confused - we still have income from my late husband's life insurance policy (about $2100/month), and I receive around $1750 in VA DIC payments as his widow. We own our home (worth about $285,000) and have two vehicles (2018 Honda and 2021 Toyota). I know the SSI program has strict asset and income limits, so I'm pretty sure we wouldn't qualify right now. But the life insurance money will run out in about 18 months. Should I apply for SSI now even though we'll probably be denied? Or wait until our financial situation changes? Also, all three of my children have diagnosed disabilities, but my older two (17 and 19) likely wouldn't meet the SSA's disability criteria. Only my youngest has conditions severe enough to potentially qualify. I'm really confused about how survivor benefits and SSI interact. Can a child receive both? Do I need to choose one program over the other? Any advice from someone who's navigated this would be incredibly helpful.

Yes, your child can potentially receive both Social Security survivor benefits AND Supplemental Security Income (SSI) at the same time. These are two completely different programs: 1. Survivor benefits - This is based on your late husband's work record and isn't means-tested. 2. SSI - This is needs-based with strict income and resource limits ($2000 for an individual). However, the survivor benefits count as income for SSI purposes, which reduces the SSI payment dollar-for-dollar (after a small exclusion). So if your son's survivor benefit exceeds the maximum SSI payment (currently $943/month for 2025), he wouldn't receive any SSI payment even if he medically qualifies. I'd recommend applying now regardless, because: - It establishes a medical determination of disability - The application process can take many months - When your financial situation changes, you can update SSA rather than starting from scratch The home you live in and one vehicle are excluded from the resource limit. The second vehicle might count toward resources depending on its use and value.

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Thank you for explaining this so clearly! His survivor benefit is $1,275/month, so it sounds like he probably wouldn't get an SSI payment right now even if approved medically. I didn't realize I could apply now just to establish the disability determination. That makes a lot of sense since our financial situation will be changing in the near future.

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I went through something similar with my daughter. The SSA will count YOUR income and resources when determining your child's SSI eligibility - it's called "deeming." With the life insurance and VA benefits, plus two cars, you're absolutely going to be denied for SSI right now. But here's the thing - once your child turns 18, they're considered an independent household for SSI purposes. So even if you're denied now, DEFINITELY apply again when he turns 18 because then only HIS income and resources count (not yours). And yes, apply now anyway. The disability determination is separate from the financial determination, and having that established will help later. The system is RIDICULOUS and designed to make people give up!!! They denied my daughter THREE TIMES before we finally got approved with a lawyer's help.

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this is good advice about applying at 18! my nephew had to do that. but the survivor benefits will still count as his income even after 18 tho. just fyi

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One thing no one's mentioned yet - if your son is approved for SSI disability, he would automatically qualify for Medicaid in most states. This is actually the biggest benefit for many families, especially if your child has significant medical needs. The cash payment from SSI might be reduced or eliminated because of the survivor benefits, but the Medicaid eligibility could be extremely valuable. Also, I'd recommend keeping detailed records of all your son's medical appointments, treatments, medications, and how his disabilities affect daily activities. This documentation will be crucial for the disability determination part of the SSI application.

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That's a really important point about Medicaid! He does have significant medical expenses that our private insurance doesn't fully cover. I'll definitely start organizing all his medical records right away. Would records from the past year be enough, or should I go back further?

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Go back as far as you can - at least 2-3 years if possible. SSA will look at the entire history and progression of his disabilities. Also make sure you have documentation from all specialists who have treated him. The more comprehensive, the better your chances of approval.

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your definitely going to get denied for SSI with those assets/income but you should apply anyway because otherwise your just delaying the inevitable process. it usually takes like 3 applications and appeals before they approve anyone these days lol. my sister has a disabled daughter and it took FOREVER! start the process now so when your finances change you'll be further along in the system.

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I went through the EXACT same situation with my son when my husband died. He had muscular dystrophy and was getting survivor benefits. The trick is to apply for SSI now, get the medical approval, then when your finances change, you just update SSA. BTW - you mentioned multiple vehicles. If the second vehicle is used to transport your disabled child to medical appointments, you might be able to exclude it from the resource calculation! Not many people know about this exception. Ask specifically about this when you apply. SSA makes it so complicated on purpose. I spent HOURS on the phone trying to get straight answers. I finally used Claimyr (claimyr.com) to get through to a real person at SSA without waiting on hold forever. They have this service where they get you through the phone system and to an agent in minutes. Check out their demo video at https://youtu.be/Z-BRbJw3puU - saved me so much frustration!

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Thank you for this! I didn't know there might be an exception for a second vehicle used for medical transportation. We definitely use our newer car for his appointments since it's more reliable for the longer drives to specialists. I'll check out that Claimyr service - I've already wasted so much time trying to get through to SSA on the phone and either getting disconnected or waiting forever.

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my cousin gets both survivor benefits and SSI for her kid but the SSI is only like $95 a month because the survivor benefit reduces it. but she says even that small amount is worth it because it automatically qualified her daughter for medicaid and a bunch of other services in our state. definitely worth applying!

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Important to understand: SSI and Social Security survivor benefits are administered by the same agency (SSA) but are completely different programs with different eligibility rules. Considering your assets and income currently exceed SSI limits, here's what you should do: 1. Apply for SSI now - this creates a protective filing date 2. When denied for financial reasons, appeal and request just a medical determination 3. If approved medically but denied financially, you'll be in position to quickly activate benefits when your financial situation changes Also, be aware that when your child turns 18, survivor benefits typically end unless they're still in high school (then they continue until graduation or age 19, whichever comes first). However, if your child is determined disabled before age 22, they may qualify for Disabled Adult Child benefits on your husband's record, which can continue indefinitely. This is DIFFERENT from SSI. The complexity of coordinating these benefits is why consulting with a benefits specialist is often worth the time.

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YES about the Disabled Adult Child benefits!!! Wish someone had told me about this earlier. My daughter almost lost her benefits when she turned 18 until a helpful SSA rep explained this to me. You have to specifically ASK for this though because they don't volunteer the information! The system is DESIGNED to make things difficult!

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Thank you all so much for the helpful advice! I'm going to apply for SSI right away to get the disability determination process started, even though I know we'll be denied based on our current finances. I'll make sure to specifically ask about the vehicle exception and the Disabled Adult Child benefits too. I've started gathering all his medical records going back several years. His main conditions are autism (level 2), epilepsy, and a rare genetic disorder that affects his mobility. I'm hoping that with good documentation, the medical determination part will go smoothly. I really appreciate everyone sharing their experiences. It makes me feel less alone in navigating this complicated system.

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Just to add some information that may be helpful - make sure when you apply that you also ask about CHIP (Children's Health Insurance Program) or your state's equivalent if you don't already have this coverage. Even if you're denied SSI due to financial reasons, your child might still qualify for some health coverage programs based on his disabilities. Also, don't forget to look into state-specific disability programs. Many states have supplemental programs beyond what SSA offers. Your local Developmental Disabilities Administration or Community Services Board might have resources regardless of SSI eligibility. Lastly, document EVERYTHING about how his disabilities impact daily living - not just medical appointments, but things like: needs help with dressing, cannot be left unsupervised, requires assistance with meals, has difficulty following multi-step instructions, etc. These functional limitations are just as important as the medical diagnoses for SSA's disability determination.

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I'm new to this community but wanted to share what I learned when my disabled nephew went through a similar situation. One thing that really helped us was getting a letter from his school documenting his need for special education services and accommodations. SSA considers educational records as part of their disability determination, especially for children. Also, I'd suggest contacting your local PACT (Protection and Advocacy for People with Disabilities) office. They often provide free advocacy services for SSI applications and can help you navigate the appeals process if needed. They know all the ins and outs of how these programs work together. Good luck with your application! It sounds like you're already getting great advice here about applying now to establish the protective filing date. The process is frustrating but definitely worth pursuing given your son's conditions.

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I'm new to this community but have been through a similar situation with my daughter who has cerebral palsy. One thing I wanted to mention that I haven't seen addressed yet - when you apply for SSI, make sure to ask about the Plan to Achieve Self-Support (PASS) program. Even though your son is only 14, this program can sometimes help with resource limits by allowing you to set aside money for disability-related expenses or future goals. Also, regarding the life insurance income - you mentioned it will run out in 18 months. Make sure you document the expected end date of this income source when you apply. SSA can sometimes consider temporary income differently than permanent income sources, and having a clear timeline might help your case when you appeal or reapply. One more tip from my experience - keep a detailed log of your son's daily care needs. Things like how many hours per day he requires supervision, assistance with basic activities, medication management, etc. This functional information is just as important as the medical diagnoses for proving disability. The SSA looks at how his conditions affect his ability to function in daily life, not just the diagnoses themselves. The process is definitely overwhelming, but you're asking all the right questions and getting good advice here. Having that survivor benefit as a foundation while you work through the SSI process is actually a blessing compared to families who have no income at all during the application process.

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This is really helpful advice about the PASS program and documenting the temporary nature of the life insurance income! I hadn't heard of PASS before - that sounds like something worth looking into even if we can't use it right now. The idea of keeping a daily care log is excellent too. I think sometimes I take for granted how much extra supervision and assistance he needs compared to other kids his age. Writing it all down will probably help me see the full picture of his care needs, which will be important for the SSI application. Thank you for taking the time to share your experience as a newcomer to the community. It's reassuring to hear from someone who's successfully navigated this process!

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I'm new to this community but wanted to share something that helped us tremendously when we were in a similar situation with my son who has autism and intellectual disabilities. One thing I learned is that you can actually request what's called a "technical denial" for SSI - where they approve the medical disability determination but deny benefits due to income/resources. This creates an official record that your child is medically disabled, which can be incredibly valuable for other programs and services, even if you're not getting the SSI payment right now. Also, I'd strongly recommend contacting your state's Developmental Disabilities Administration or similar agency. Many states have waiting lists for services that you can get on regardless of your current income situation. Getting on these lists early is crucial because some have years-long waits, and your financial situation changing won't affect your place in line. Another resource that was invaluable to us was our local Parent Information Center (PIC). They often have staff who specialize in benefits counseling and can help you understand how all these different programs interact. They usually provide free services and really know the ins and outs of the system. The fact that you're thinking ahead and planning for when your financial situation changes shows you're already doing the right things. The system is complex, but with the right preparation, you'll be in a much better position when that life insurance income ends.

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This is such valuable information about requesting a "technical denial" - I had no idea that was even possible! That sounds like exactly what we need to establish the disability determination while we wait for our financial situation to change. I'm definitely going to ask about that specifically when I apply. I'll also look into our state's Developmental Disabilities Administration and see about getting on waiting lists now. You're absolutely right that it makes sense to get in line early since these things can take years. Thank you for mentioning the Parent Information Center too - I wasn't familiar with that resource. It sounds like having someone who really understands how all these programs work together would be incredibly helpful. I feel like I'm learning a new language trying to navigate all of this! I really appreciate you sharing your experience as someone new to the community. It's so helpful to hear from parents who have successfully worked through similar situations.

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I'm new to this community but wanted to add something that helped us when we went through this process with my daughter who has multiple disabilities. One thing I wish I had known earlier is that you can actually call SSA and request a pre-application interview before you officially apply. During this call, they'll go over your specific situation and help you understand exactly what documentation you'll need and what to expect. This can save you time and help ensure your application is as complete as possible from the start. Also, regarding the vehicle exception that someone mentioned - make sure you get a letter from your son's doctor stating that the second vehicle is medically necessary for his transportation to appointments. We had to provide this documentation, and it made all the difference in getting that vehicle excluded from our resource calculation. One more tip: when you're gathering those medical records, don't forget about any therapists he's worked with - speech, occupational, physical therapy, etc. SSA considers input from all treating sources, not just doctors. These therapy notes often contain really detailed information about functional limitations that can be crucial for the disability determination. The advice you're getting here about applying now to establish that protective filing date is spot on. Even though the financial denial is almost certain given your current situation, having that medical determination in place will put you way ahead of the game when your circumstances change.

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This is really excellent advice about the pre-application interview! I had no idea that was an option, and it sounds like it could save a lot of headaches down the road. I'm definitely going to call and request one before I submit the actual application. The tip about getting a doctor's letter for the vehicle exception is also really helpful - I want to make sure I have all the proper documentation ready. And you're absolutely right about including therapy records. My son has worked with occupational therapy, speech therapy, and behavioral therapy over the years, and those therapists probably have some of the most detailed observations about his daily functioning challenges. Thank you for sharing your experience as a newcomer! It's so valuable to hear practical tips from someone who has actually been through this process successfully. I'm feeling much more prepared and confident about moving forward with the application now.

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I'm new to this community but wanted to share something that might help based on my experience with my son who has severe autism and seizure disorder. One thing I learned that hasn't been mentioned yet is to make sure you apply online if possible rather than by phone or in-person. The online SSI application allows you to save your progress and come back to it, which is really helpful when you're gathering all that documentation. Plus, you get an immediate confirmation with a receipt number that you can reference. Also, when documenting your son's daily care needs, include specific examples of safety concerns. SSA pays close attention to supervision requirements - things like "cannot be left alone due to seizure risk" or "requires constant monitoring to prevent elopement" carry a lot of weight in their determinations. Another tip: if your son receives any special education services through an IEP (Individualized Education Program), make sure to include that documentation. The school district's assessment of his functional limitations and need for accommodations provides another professional perspective that SSA considers. The medical determination process typically takes 3-6 months, so starting now even with the expected financial denial makes perfect sense. You'll have that crucial piece in place when your situation changes. Best of luck navigating this - the community here has given you excellent guidance!

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This is really great advice about applying online - I didn't realize that was an option and it sounds much more convenient than trying to do everything over the phone. Being able to save progress and come back to it will definitely help since I'm still gathering all the documentation. Your point about documenting safety concerns is really important too. My son does require constant supervision because of his seizures and autism-related behaviors, but I hadn't thought about framing it that way for SSA. I'll make sure to be very specific about the safety risks and supervision needs in the application. He does have an IEP through school, so I'll definitely include all of that documentation. It's helpful to know that SSA considers the school's professional assessment as well - his IEP has detailed information about his accommodations and functional limitations in an educational setting. Thank you for sharing your experience as a newcomer to the community! It's reassuring to hear from another parent who has successfully navigated this process with a child who has similar conditions. I feel much better prepared now thanks to all the advice everyone has shared here.

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I'm new to this community but wanted to share some advice based on my experience helping my sister navigate this exact situation with her disabled son. One thing that really helped us was creating what I call a "disability portfolio" - a comprehensive binder with tabs for medical records, therapy notes, school documentation (IEP), daily care logs, and medication lists. Having everything organized this way made it much easier when SSA requested additional documentation during the review process. Also, I'd suggest asking your son's doctors to be very specific in their reports about functional limitations rather than just listing diagnoses. For example, instead of just "autism spectrum disorder," ask them to document things like "requires verbal prompting for all self-care activities" or "unable to safely cross streets independently." SSA focuses heavily on how conditions impact daily functioning. One last tip - consider reaching out to your local disability advocacy organization. Many have benefits counselors who can walk through your entire situation and help you understand not just SSI, but all the programs your son might be eligible for now or in the future. They often know about state and local programs that individual families might miss. You're being really smart to start this process now even knowing you'll likely be denied initially. Having that medical determination established will save you months when your financial situation changes. Good luck with the application!

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This is such fantastic advice about creating a "disability portfolio"! I love the idea of organizing everything in a binder with tabs - that sounds so much more manageable than having papers scattered everywhere. I'm definitely going to set this up before I start the application process. Your point about asking doctors to be specific about functional limitations is really important too. I think sometimes doctors assume SSA will understand the implications of the diagnoses, but it makes total sense that they need explicit details about how the conditions affect daily life. I'll make sure to have conversations with his doctors about documenting specific functional impacts. I hadn't thought about reaching out to local disability advocacy organizations, but that sounds like it could be incredibly valuable. Having someone who knows all the different programs and can look at our whole situation holistically would be amazing. I feel like I'm only seeing pieces of the puzzle right now. Thank you for sharing your experience helping your sister through this process! It's so helpful to hear from someone who has successfully navigated this system and can offer practical organizational tips. I'm feeling much more confident about tackling this application now.

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I'm new to this community but wanted to share something that helped us when we went through a similar situation with my daughter who has intellectual disabilities and seizure disorder. One thing I learned that might be helpful is to document not just your son's medical appointments, but also any emergency room visits, hospitalizations, or urgent care visits related to his disabilities. SSA considers these as evidence of the severity and ongoing nature of his conditions. Even if they seem minor to you, they paint a picture of the unpredictable nature of his care needs. Also, if your son takes any medications for his disabilities, keep a detailed list including dosages, side effects he experiences, and how they impact his daily functioning. Sometimes the side effects of necessary medications can be just as limiting as the underlying conditions themselves. Another resource that was invaluable to us was connecting with other families through local support groups or online communities specific to your son's conditions (autism, epilepsy, etc.). These families often have insights about the SSI process that are specific to those diagnoses and can share what documentation was most important for their successful applications. The advice you're getting here about applying now is absolutely correct. Even if the financial denial is certain, establishing that medical determination and protective filing date will be crucial when your circumstances change. The system is frustrating, but you're asking all the right questions and clearly advocating well for your son.

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I'm new to this community but this is such excellent advice about documenting emergency visits and hospitalizations! I hadn't really thought about how those would demonstrate the severity of his conditions to SSA, but you're absolutely right that they show the unpredictable and ongoing nature of his care needs. The medication documentation tip is really valuable too. My son is on several medications for his seizures and behavioral issues, and some of them definitely have side effects that impact his daily functioning - drowsiness, coordination issues, mood changes. I'll make sure to document all of that since it's another layer of functional limitation. Connecting with condition-specific support groups is a great idea. I'm part of a couple of online autism groups but hadn't thought about looking for ones that specifically discuss the SSI process. Having insights from families who have been through this with similar diagnoses would be incredibly helpful. Thank you for sharing your experience as a newcomer! This whole thread has been so informative and reassuring. I'm feeling much more prepared to tackle this application process knowing I'm not alone in navigating this complicated system.

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I'm new to this community, but I wanted to share some insights from my experience helping my brother navigate this exact situation when his disabled son was receiving survivor benefits. One thing that really made a difference for us was understanding the concept of "conditional payments" that SSA sometimes offers. Even when you're initially denied SSI due to income/resources, if your child is approved medically and SSA determines that your financial situation will likely change in the near future (like your life insurance running out), they may sometimes approve conditional SSI payments that begin when the disqualifying income stops. It's worth asking about this specifically when you apply. Also, I'd recommend documenting your son's need for assistive technology or adaptive equipment. Things like communication devices, mobility aids, sensory tools, etc. These expenses can sometimes be factored into resource calculations or used to demonstrate the extent of his disabilities. Even if insurance covers some of these items, the ongoing need for specialized equipment helps paint a fuller picture of his functional limitations. Another tip - make sure to ask about your state's "buy-in" programs for Medicaid. Some states allow families with slightly higher incomes to "buy into" Medicaid coverage for disabled children by paying a premium. This could potentially provide health coverage even if SSI cash benefits aren't available right now. You're definitely on the right track applying now to establish that protective filing date. The process is complicated, but this community has given you excellent guidance. Having that survivor benefit as a foundation while working through SSI is actually a blessing compared to starting with no income at all.

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I'm new here too, but this information about "conditional payments" is fascinating! I had no idea that was even a possibility. It makes so much sense that SSA would have some mechanism to handle situations where they know the financial circumstances are going to change in the near future. I'll definitely ask about this specifically when I apply - having those payments ready to start automatically when the life insurance ends would be incredible. The point about documenting assistive technology needs is really smart too. My son uses several communication apps on his tablet, has sensory tools for managing his autism, and we've had to modify our home in various ways for his safety. I hadn't thought about how all of these accommodations and equipment needs would help demonstrate the extent of his disabilities. I'll also look into my state's Medicaid buy-in programs. Even if we can't get SSI cash benefits right now, having additional health coverage options could be really valuable given his ongoing medical needs. Thank you for sharing your experience helping your brother through this process! It's so helpful to hear about these lesser-known aspects of the system. I'm really grateful for all the knowledge this community has shared - I feel like I'm getting a masterclass in navigating these benefits programs.

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I'm new to this community, but I wanted to share something that helped us when we were in a very similar situation with my nephew who has autism and epilepsy. One thing I learned that hasn't been mentioned yet is the importance of requesting a "protective filing" statement when you apply. This creates an official record of when you first contacted SSA about benefits, which can be crucial for backdating payments if you're eventually approved. Make sure you get this in writing or save any confirmation numbers from online applications. Also, since your son has epilepsy, make sure his neurologist documents not just the frequency of seizures, but also any "aura" periods, postictal confusion, or activity restrictions due to seizure risk. SSA has specific criteria for evaluating epilepsy, and detailed documentation of how seizures impact his ability to engage in age-appropriate activities is crucial. Another resource that was incredibly helpful was contacting our state's PASS (Protection and Advocacy System) office. They provide free legal advocacy for disability benefits and can even represent you at hearings if needed. They know exactly what SSA looks for in applications for children with multiple disabilities like your son has. The fact that you have survivor benefits providing some financial stability while navigating this process is actually advantageous - many families are doing this with no income at all. You're being really smart to start the process now even knowing about the likely financial denial. Having that medical determination established will save you significant time when your life insurance income ends.

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I'm new to this community too, but this information about requesting a "protective filing" statement is really valuable! I had no idea how important it was to have that official documentation of when you first contacted SSA. I'll definitely make sure to get that in writing when I apply. Your point about the detailed epilepsy documentation is especially helpful since that's one of my son's primary conditions. His neurologist has mentioned the postictal confusion and activity restrictions, but I'll make sure we get all of that properly documented in his medical records. It's good to know that SSA has specific criteria for evaluating epilepsy - that gives me a better sense of what they'll be looking for. I'll also look into contacting our state's PASS office. Having free legal advocacy available sounds like it could be incredibly valuable, especially if we end up needing to go through appeals or hearings. It's reassuring to know there are experts who understand exactly what SSA looks for in these complex cases. Thank you for sharing your experience helping your nephew through this process! The advice about leveraging the stability of the survivor benefits while working through this is a good perspective too. I'm feeling much more prepared and confident about moving forward with the application now thanks to all the guidance from this community.

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I'm new to this community but wanted to share something that might be helpful based on my experience with my daughter who has cerebral palsy and seizure disorder. One thing I learned that could be valuable for your situation is to ask about "presumptive disability" when you apply. For certain conditions, SSA can sometimes start SSI payments immediately while they complete the full medical review, even if there are financial issues to sort out later. Given your son's combination of autism, epilepsy, and genetic disorder, he might qualify for this expedited process. Also, I'd strongly recommend getting a letter from your son's school documenting any behavioral interventions or crisis management protocols they have in place for him. This type of documentation really helps SSA understand the level of supervision and specialized care he requires throughout the day, not just at home. One more tip that saved us a lot of headaches - when you're organizing all those medical records, create a simple timeline document that lists major medical events, hospitalizations, medication changes, and therapy starts/stops. SSA reviewers often have to piece together information from dozens of different sources, and having a clear timeline helps them see the full picture of his condition progression. You're definitely making the right choice to apply now. Even with the expected financial denial, having that medical determination and protective filing date established will put you in a much stronger position when your circumstances change. The process is frustrating, but you clearly have a good support system here to help guide you through it!

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Mei Lin

I'm new to this community as well, but this information about "presumptive disability" is really intriguing! I hadn't heard of that before, and it sounds like it could potentially help bridge the gap while waiting for the full review process. Given the severity of my son's conditions, it's definitely worth asking about when I apply. The suggestion about getting documentation from his school regarding behavioral interventions is excellent too. His school does have specific protocols for managing his seizures and autism-related behaviors, including a detailed crisis management plan. I hadn't thought about how that would demonstrate his need for specialized supervision to SSA, but it makes perfect sense. I love the idea of creating a timeline document! That sounds like it would be incredibly helpful for organizing all the information and helping reviewers understand the progression of his conditions. With multiple disabilities and years of medical history, having everything laid out chronologically will definitely make the whole picture clearer. Thank you for sharing your experience as another newcomer to this community! It's so reassuring to connect with other parents who have successfully navigated this process with children who have similar complex medical needs. I'm feeling much more prepared and hopeful about moving forward with the application now.

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Yuki Ito

I'm new to this community, but I wanted to share some advice based on my experience helping my cousin navigate a very similar situation with her son who has multiple disabilities. One thing that really helped us was understanding that you can actually request what's called a "disability-only determination" when you apply for SSI. This allows SSA to make the medical disability decision separate from the financial eligibility decision. So even if you're denied SSI payments due to income/resources, you can still get an official determination that your son meets SSA's definition of disability. This can be incredibly valuable for other programs and services, and it means you won't have to go through the entire medical review process again when your financial situation changes. Also, I'd recommend keeping detailed records of any accommodations or modifications you've had to make at home for your son's safety and care. Things like door alarms, cabinet locks, bathroom modifications, etc. These demonstrate the extent of his supervision needs and can be important evidence of functional limitations. Another tip - if your son receives any services through your state's developmental disabilities waiver program or similar services, make sure to include documentation of those services and assessments in your SSI application. These agencies often have comprehensive functional assessments that align well with what SSA is looking for. You're absolutely making the right choice to start this process now. Having that protective filing date and medical determination in place will save you months when your life insurance income ends. The system is complex, but you're clearly being a great advocate for your son!

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I'm new to this community too, but this information about requesting a "disability-only determination" is incredibly helpful! I had no idea that was even an option, but it makes perfect sense to separate the medical and financial decisions. Having that official disability determination in place would indeed be valuable for other programs and could save so much time later when our financial situation changes. Your point about documenting home modifications is really smart too. We've had to install so many safety features - door alarms because of his tendency to wander, special locks, grab bars in the bathroom, and we even had to fence our yard differently because of his seizure risk. I hadn't thought about how all of these modifications demonstrate his supervision and safety needs, but they really do paint a picture of the level of care required. I'll also look into whether he's eligible for any state developmental disabilities waiver services. We haven't explored that yet, but if there are programs that could provide additional assessments or support services, that would be valuable both for him and for strengthening the SSI application. Thank you for sharing your experience helping your cousin through this process! As another newcomer, it's so reassuring to hear from someone who has successfully navigated this complex system. I'm feeling much more confident about tackling this application with all the excellent guidance this community has provided.

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I'm new to this community, but I wanted to share something that helped us when we went through this exact situation with my son who has autism and seizure disorder. One thing I learned that might be really valuable for you is to make sure you understand the difference between "concurrent benefits" and how they're calculated. When someone receives both survivor benefits and SSI, SSA uses what's called the "windfall offset" - basically, they subtract most of the survivor benefit amount from the maximum SSI payment. So if the maximum SSI is $943 and your son gets $1,275 in survivor benefits, he wouldn't get any SSI payment. BUT - and this is important - he would still be considered an SSI recipient for purposes of automatic Medicaid eligibility and other program qualifications. Also, I'd suggest asking specifically about "continued disability reviews" when you apply. Since your son will likely need lifelong support, understanding how often SSA will review his case and what triggers those reviews can help you stay prepared. For children with conditions like autism and genetic disorders, the reviews are often less frequent, but it's good to know what to expect. Another resource that was incredibly helpful for us was connecting with your state's Parent Training and Information Center (PTI). These centers specialize in helping families navigate both educational and disability benefit systems, and they often have staff who really understand how SSI interacts with special education services. You're definitely taking the right approach by applying now. Even though the financial denial is almost certain, establishing that medical determination and protective filing date will be crucial when your life insurance income ends. The process is overwhelming, but you're clearly being a strong advocate for your son and asking all the right questions!

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