EDD SDI reaching 52-week limit with ongoing medical issues - options after benefits end?
My SDI benefits are scheduled to end in late June (hitting the 52-week maximum) but my medical condition isn't improving. My doctor originally estimated recovery by September 2023 but had to extend it for a full year. Unfortunately, my condition has gotten worse, not better, and returning to work isn't looking possible. Does anyone know if I can file a NEW disability claim after the 52-week period ends? Or am I just completely out of options with SDI? Also, I'm looking into Long Term Disability through my employer as a backup, but I'm already receiving regular Social Security retirement (not SSDI). Will starting LTD affect my regular Social Security payments? Has anyone navigated this complicated situation before? Trying not to panic but June is coming up quick and I need to figure out my next steps.
34 comments


Aisha Rahman
Unfortunately once you hit the 52-week maximum for SDI, that's it for that condition. You can only start a new SDI claim if you have a completely different medical condition that prevents you from working. If your current condition continues, you won't be eligible for a new claim. As for your LTD question - your employer's Long Term Disability insurance will likely offset (reduce) your benefit by the amount you receive from Social Security retirement. Check your LTD policy carefully, but most policies have a Social Security offset clause that applies to both SSDI and regular Social Security retirement benefits.
0 coins
QuantumQueen
•Thank you for clarifying. That's what I was afraid of with SDI. Do you know if I could qualify for a new claim if my condition developed additional complications that weren't part of the original diagnosis? Or would EDD still consider that the same condition?
0 coins
Ethan Wilson
my cousins husband had something similar happen last yr!!! he got to the end of benefits but still was sick and his dr tried to file a new claim but EDD denied it saying it was related to same medical issue. they ended up having to sell their second car to make ends meet until he got approved for ssdi which took FOREVER. so anoying how they just cut you off even when yr still sick
0 coins
QuantumQueen
•Oh no, that's terrible. I'm sorry your cousin's husband went through that. Did he try appealing the EDD decision at all? I'm worried about the gap between when SDI ends and when other benefits might start.
0 coins
Yuki Sato
You need to look into applying for SSDI immediately if you haven't already. Unlike regular Social Security retirement, SSDI is specifically for people who become disabled before retirement age and can't return to work. The approval process takes MONTHS (sometimes over a year), so start now! Regarding the LTD through your job - yes, it will almost certainly reduce your benefit by whatever you get from regular Social Security. Read your policy carefully because most employer LTD plans have a "coordination of benefits" clause that reduces your LTD payment by the amount you receive from Social Security (whether retirement or disability). Source: went through this whole mess in 2023 when my SDI ran out.
0 coins
Carmen Flores
•Actually I don't think they can apply for SSDI if they're already getting regular Social Security retirement benefits? My understanding is you can't get both.
0 coins
Andre Dubois
Just wondering - have you talked to your doctor about whether there's ANY chance you could do some kind of modified work? Even if it's just a few hours a week in a totally different capacity? Sometimes EDD will approve partial disability if you can work at least a little bit. Might be worth asking about.
0 coins
QuantumQueen
•My doctor doesn't think I can handle even modified work right now, but maybe in a few months that could change. I didn't realize partial disability was an option through EDD. Would that be considered a separate claim, or would the 52-week limit still apply?
0 coins
CyberSamurai
I've been trying to reach an EDD representative for WEEKS about a similar situation and keep getting disconnected or stuck on hold forever. Finally tried using Claimyr (claimyr.com) and they got me connected to an EDD rep in about 20 minutes. The rep explained that while I couldn't file a new claim for the same condition, I could potentially qualify for different programs. Check out their video demo if you want to see how it works: https://youtu.be/1X-mEsLtbmQ?si=1hcSq3KFtCr4oAmd Definitely worth it because the EDD rep actually took time to explain all my options rather than me just guessing.
0 coins
Zoe Alexopoulos
•I've heard of Claimyr but wasn't sure if it actually worked. Did they ask for payment info before connecting you?
0 coins
Carmen Flores
The rules about SDI 52-week limits are RIDICULOUS!!! People don't just magically get better when the calendar says 52 weeks. The whole system is broken. What are people supposed to do when they're still sick?? The government doesn't care at all about people with chronic conditions.
0 coins
QuantumQueen
•It does feel very arbitrary. My condition has actually gotten worse in the past few months, but that doesn't seem to matter to the system. I get that they need limits, but there should be some flexibility for serious cases.
0 coins
Aisha Rahman
One option you might want to explore is California's State Disability Insurance Elective Coverage (DIEC) program. It's typically for self-employed people, but in some cases, it can provide coverage when regular SDI runs out. There are specific eligibility requirements, so you'd need to contact EDD directly to see if this could be an option for you. Also, check if your employer has any other disability programs or if there are any union benefits you might qualify for. Some employers offer supplemental disability insurance that can kick in after SDI ends.
0 coins
QuantumQueen
•Thank you for this suggestion! I hadn't heard of the DIEC program before. I'll definitely look into it. My employer's HR department hasn't been very helpful so far, but I'll specifically ask about supplemental disability options too.
0 coins
Zoe Alexopoulos
To answer your original question about filing a new claim after 52 weeks - the rule is that you need to have returned to work for at least 60 days AND have a new disability (or the same disability with a period of recovery) to qualify for a new claim. If you haven't returned to work at all, then you wouldn't be eligible regardless of whether it's the same condition or a new one. The system is designed with the assumption that disability is temporary, which unfortunately doesn't work for people with chronic or progressive conditions. For your Social Security question - check your LTD policy, but most will offset (reduce) your LTD benefit by the amount of Social Security you receive. They typically don't care whether it's SSDI or regular retirement SS.
0 coins
QuantumQueen
•Thank you for the specific details about the 60-day work requirement. That definitely rules out a new claim for me then. I'll check my LTD policy more carefully - I was hoping maybe I could receive both without reduction since regular SS retirement is something I paid into for decades.
0 coins
Ethan Wilson
my friend had her doctor write that she had a NEW diagnosis even tho it was kinda related to her old one and she got approved for a new claim!!! might be worth asking your doctor if theres any way to classify your condition differently????
0 coins
Yuki Sato
•This is actually incorrect advice that could potentially lead to fraud issues. The EDD system tracks diagnosis codes, and intentionally misclassifying a condition to get benefits could result in penalties. Additionally, as mentioned above, you'd still need to have returned to work for 60 days to qualify for a new claim regardless of diagnosis.
0 coins
Andre Dubois
Have you considered applying for CalFresh or other assistance programs while you figure out your next steps? They won't replace your income but might help with some expenses in the transition period. There's also General Assistance through your county, though the amounts are pretty low.
0 coins
QuantumQueen
•That's a good idea. I hadn't thought about CalFresh. I'll look into what I might qualify for based on my reduced income once SDI ends. Every little bit will help during this transition.
0 coins
Ethan Anderson
I'm in a similar situation and just wanted to share what I learned from my disability attorney. Since you're already receiving regular Social Security retirement, you actually CAN'T apply for SSDI - you can only get one or the other, not both. However, you might want to look into SSI (Supplemental Security Income) if your total income falls below certain thresholds after your SDI ends. Also, regarding your LTD policy - many have a "pre-existing condition" clause that could affect coverage if your disability started before you enrolled in the plan. Make sure to check that language carefully. Some policies also have different offset rules for Social Security retirement vs. SSDI, so definitely read the fine print. One more thing - if you haven't already, document EVERYTHING with your doctor about how your condition has worsened or changed. Even if you can't get a new SDI claim, having detailed medical records will be crucial for any other benefits you apply for.
0 coins
LordCommander
•This is really helpful information, thank you! I didn't realize SSI might be an option - I'll definitely look into that. My LTD policy is through my current employer and I've been enrolled for about 3 years, but my condition started about 14 months ago, so hopefully the pre-existing condition clause won't apply. I've been trying to keep detailed records with my doctor, especially documenting how things have gotten worse rather than better. It's frustrating that the system seems designed for temporary disabilities when many of us are dealing with conditions that just don't follow that timeline.
0 coins
Zara Khan
I went through something very similar last year when my SDI was about to hit the 52-week limit. Here's what I learned that might help: 1. **Gap coverage is crucial** - Start applying for any other benefits NOW, not when SDI ends. The approval processes can take months and there's often no retroactive coverage. 2. **SSI vs SSDI confusion** - @Ethan Anderson is absolutely right. Since you're already getting regular Social Security retirement, you can't get SSDI. But SSI might be possible if your total monthly income (including your SS retirement) falls below the federal limit (around $914/month in 2024). 3. **LTD timing matters** - Most employer LTD policies require you to apply within a certain timeframe (often 180 days) from when you become disabled, not from when other benefits end. Check your policy immediately to make sure you haven't missed any deadlines. 4. **Document everything** - Keep detailed records of how your condition has progressed/worsened. This helped me when I had to explain to various agencies why I still couldn't work after a full year. The whole system really is frustrating when you're dealing with chronic conditions that don't fit the "temporary disability" model. Hang in there and start those applications ASAP!
0 coins
Connor Rupert
•@Zara Khan This is incredibly helpful, thank you so much for sharing your experience! I really appreciate the specific timeline advice - you re'absolutely right that I need to start these applications now rather than waiting. I m'going to check my LTD policy tomorrow to make sure I haven t'missed any deadlines honestly (hadn t'even thought about that .)The SSI information is also really valuable since I had no idea that was even a possibility. It sounds like you successfully navigated this transition - did you end up getting approved for other benefits, or are you still in the process? Either way, thank you for taking the time to lay out these practical steps. It s'reassuring to hear from someone who actually went through this rather than just guessing what might work.
0 coins
Ethan Davis
I'm so sorry you're going through this - the 52-week cliff is one of the most stressful aspects of the SDI system. I went through something similar about 6 months ago and wanted to share a few things that might help: **Immediate action items:** - Contact your county's social services office about General Assistance and CalFresh (as @Andre Dubois mentioned) - do this NOW, not after benefits end - If you have any retirement accounts (401k, IRA), look into hardship withdrawals as a bridge option - Check if your utility companies have medical baseline programs or payment assistance for disabled customers **Something I wish I'd known earlier:** Some people qualify for California's In-Home Supportive Services (IHSS) program if their condition affects daily living activities. It's not income replacement, but it can provide some financial assistance and services. **LTD reality check:** Most employer plans I've seen do offset Social Security retirement benefits, but the good news is that your combined income (LTD + SS retirement) is usually designed to replace 60-70% of your pre-disability income, which might still be better than just SS retirement alone. The waiting and uncertainty is absolutely brutal, but you're asking the right questions and getting good advice here. Start those applications for everything you might qualify for - worst case they say no, but at least you'll know you tried everything available to you.
0 coins
Eve Freeman
•@Ethan Davis Thank you so much for this comprehensive list! I hadn t'thought about contacting social services before my benefits end - that s'really smart advice. I ll'call tomorrow to get information about General Assistance and CalFresh. The IHSS program sounds interesting too, since my condition does affect some daily activities. I m'definitely going to look into that. You re'right about starting all these applications now rather than waiting - I keep thinking I have more time but June really is coming up fast. The utility assistance programs are another great suggestion I hadn t'considered. Every bit of help is going to matter during this transition. It s'so helpful hearing from people who have actually been through this process rather than just trying to figure it out on my own.
0 coins
CosmicCrusader
I'm really sorry you're facing this situation - the 52-week limit feels so arbitrary when you're dealing with a condition that's actually gotten worse, not better. One thing I wanted to add that I haven't seen mentioned yet: if your condition has significantly worsened or developed new symptoms since your original SDI claim, you might want to ask your doctor about whether this could qualify as a "new and distinct" disability. While EDD is strict about this, sometimes conditions that start as one thing can evolve into something different enough to potentially qualify for a separate claim (though you'd still need that 60-day return-to-work period that others mentioned). Also, since you mentioned you're already receiving regular Social Security retirement, have you looked into whether you might qualify for Medicare if you're not already enrolled? Some people don't realize they might be eligible earlier than 65 if they have certain qualifying disabilities, and having better healthcare coverage could be crucial as you navigate this transition. The timing pressure is real - June will be here before you know it. But it sounds like you're getting some really solid advice in this thread about SSI, LTD coordination, and assistance programs. Document everything with your doctors and start those applications now rather than waiting. You've got this, even though it feels overwhelming right now.
0 coins
Kaitlyn Jenkins
•@CosmicCrusader That's a really good point about the "new and distinct" disability possibility. My condition has definitely evolved since my original diagnosis - I've developed some complications that weren't part of the initial issue. I'll definitely ask my doctor at my next appointment if these new symptoms could be classified differently. The Medicare suggestion is also something I hadn't considered - I assumed I'd have to wait until 65 but if there's a way to get coverage earlier that would be huge for managing my ongoing medical expenses. Thank you for mentioning the documentation piece again too - I've been keeping records but I should probably be more systematic about tracking how the condition has changed over time. It really does help to get practical advice from people who understand how overwhelming this whole process feels.
0 coins
Diego Vargas
I'm so sorry you're going through this - the timing stress of hitting that 52-week limit while still dealing with worsening symptoms is incredibly difficult. Based on everything I'm reading here, it sounds like your best immediate options are: 1. **Apply for SSI right away** - Since you're already on Social Security retirement, SSDI isn't an option, but SSI might be if your total monthly income falls below the federal limits 2. **File that LTD claim ASAP** - Check your policy deadlines immediately. Most require filing within 180 days of becoming disabled, not from when other benefits end 3. **Start county assistance applications now** - CalFresh, General Assistance, and potentially IHSS if your condition affects daily activities The gap between when SDI ends and other benefits potentially start is the scariest part, but starting these applications now gives you the best chance of minimizing that gap. One thing I'd add - if you have any employee assistance programs through work, they sometimes have social workers who can help navigate all these different benefit systems. It might be worth checking if that's available to you. Hang in there. June feels soon but you still have time to get these applications rolling.
0 coins
Connor O'Neill
•@Diego Vargas This is such a helpful summary of the key action items - thank you! I really appreciate how you ve'laid out the priority steps so clearly. I m'going to check with HR tomorrow about employee assistance programs - that s'a great suggestion I hadn t'thought of. Having a social worker help navigate all these different systems sounds incredibly valuable right now. You re'right that June still gives me some time, but reading everyone s'advice here has made it clear I need to start these applications immediately rather than putting it off. The gap coverage issue is exactly what s'been keeping me up at night, so getting these processes started now is definitely the right move. Thank you for the encouragement - it really helps to hear from people who understand how overwhelming this whole situation feels.
0 coins
Carmen Diaz
I'm really sorry you're dealing with this stressful situation - hitting the 52-week SDI limit while your condition has actually worsened must feel incredibly unfair. From reading through all the responses here, it sounds like you've gotten some excellent advice about your immediate next steps. I wanted to add one thing that might be helpful: consider reaching out to a disability attorney or advocate for a consultation. Many offer free initial consultations and can help you navigate the complex interactions between different benefit systems (SSI, LTD, Social Security retirement, etc.). They often know about lesser-known programs or appeal strategies that might apply to your specific situation. Also, since your condition has worsened rather than improved, make sure your medical team is thoroughly documenting not just your current limitations, but specifically how your functional capacity has declined over the past year. This type of detailed progression documentation can be crucial for any benefit applications you file. The timeline pressure is real, but you're being proactive by asking these questions now rather than waiting until the last minute. That puts you ahead of many people who don't realize they need to start planning for this transition months in advance.
0 coins
Amina Toure
•@Carmen Diaz That s'excellent advice about consulting with a disability attorney - I hadn t'thought about getting professional help to navigate all these overlapping systems, but it makes so much sense. The free consultation aspect is especially appealing since I m'already worried about finances. I ll'definitely look into finding someone who specializes in disability law in my area. Your point about documenting the decline in functional capacity is also really important. I ve'been focusing on just describing my symptoms to my doctors, but I should be more specific about how my ability to do daily tasks has gotten worse over time compared to when I first went on disability. Thank you for the reassurance about being proactive - this whole thread has been such a wake-up call that I need to get moving on these applications now rather than waiting. It s'been incredibly helpful to get advice from people who actually understand how complex and overwhelming this whole process is.
0 coins
Chloe Anderson
I'm so sorry you're facing this incredibly stressful situation. Reading through your post and all the responses, it's clear you're getting some really valuable advice here about SSI, LTD coordination, and assistance programs. One thing I wanted to add that I haven't seen mentioned - have you looked into whether your state has any emergency financial assistance programs for people transitioning between disability benefits? Some states have short-term bridge programs specifically designed to help people during gaps in coverage. It might be worth calling 211 (the general helpline for social services) to ask about any emergency assistance programs in your area. Also, since you mentioned your condition has actually gotten worse over the year, I'd strongly encourage you to ask your doctor to write a detailed letter documenting not just your current limitations, but specifically how your functional capacity has declined since your original disability onset. This kind of documentation showing deterioration rather than improvement could be really important for any benefit applications or appeals you might need to file. The 52-week cliff is genuinely one of the most poorly designed aspects of the disability system - you're definitely not alone in feeling frustrated by how arbitrary it feels when dealing with chronic or progressive conditions. But you're asking all the right questions and getting great advice here. Start those applications now and give yourself the best chance of minimizing any gap in coverage.
0 coins
Keisha Taylor
•@Chloe Anderson This is really helpful additional information, thank you! I hadn t'heard of calling 211 for emergency assistance programs - that s'exactly the kind of resource I need to know about. I ll'definitely call them to see what might be available in my county for people in transition situations like mine. Your point about getting my doctor to write a detailed letter documenting the decline is spot on - I ve'been thinking about this wrong, focusing on current symptoms rather than showing how much worse things have gotten compared to when I first went on disability. That deterioration documentation could be really crucial for applications. It s'both frustrating and reassuring to hear that the 52-week cliff is a known problem with the system - at least I know it s'not just me struggling with how arbitrary it feels. Thank you for the encouragement about starting applications now. This whole thread has been such an eye-opener about how many different programs and resources I should be pursuing simultaneously rather than just hoping for one solution.
0 coins